The cure for Steatocystoma Multiplex: 5-fluorouracil-----it is a medicine for skin tumour

Hi guys.

it has been a while. How are you doing? how was the treatment going? :-D

hi guys, i'm 32 yrs old, i'm a Filipina, i have SM since i was 13 it started to came out more as i aged. right now i have it around my neck, chest, armpit, abdomen area, lower arms, back, butt and at the back of my thighs. i have few on my neck and armpits. but i have a lot of noticeable cyst on my abdomen area, lower arms and the back of my thighs. I really hate this condition, but there's nothing i can do with it, it really makes my life miserable ang frustrating for having this. Even my social activity was affected because of this, i avoid going out ang socialize with my friends or other people because i'm afraid they might notice it and ask about it. We know that there are a lot of mean people who'll just make fun of this condition, simply because they didn't know what's it like if you have this. this week i'll go to my derma to remove cyst on my neck, i've done this treatment a few years before, fortunately it doesn't leave any scars on my skin. i'm optimistic that our scientist could develop more options on treating this kind of disease. do you guys ever feel the same way like i did? it's kind a relief knowing i'm not the only one dealing with it, that i could talk to someone who could understand what i feel.

Hello everyone.

how are you guys doing? try to check this out.


is it a new treatment?


***edited by moderator*** web addresses not allowed

You can't post web adresses!!!!
What is it about??? And what about the rest of the guys/gals???
Those who where fluent in chinese?? I have the contact from the doctor
in China who's in charge of the 5 fl treatment...
I havn't calles myself cause i don't speak chinesse and the doc
doesn't speak english...
Anyone willing to call???
For those who haven't read it.. I own a smoothbeam device, so if anyone wants to know south América, contact me. I'd love to help.
Of course the use of the device would be 500% free
i'm now having 2 visits a week to my derms (i have 2 derms removing my cysts for about
2 hours, twice a week) and fully using the sb device. My condition as many have already figures
out is quite bad, but slowly improving...
Well, hope anyone writes back. I think it's a big deal for us to keep in touch

HI GUYS,

I'm from Reno, Nv in USA. I would love to have company to travel to china and I'm ready! Anyone interested?

Hey guys, have you ever tried any supplements? personally, I find vitamin A, D and k , omega 3 and 6 quite helpful for my cysts.

If you have any suggestions, please do post them.

Take care

Nerfer, how are you??
You find those vitamins helpfull in wich way?
What do they do??
I've been doing some research about zinc, i'll give it a shot (also with vitamin a) wich i read also helps...


Hasn't anyone tryed levulan (ala) with photodinamic therapy??
I've done it a couple of times and it also helped.

Hello everyone!

I'm 17, and I've been recently diagnosed with SM just a couple weeks ago. I've had this condition for a long while now, and it's getting worse. I'm limited to the clothes I wear because of it and it frustrates me. However, I'm really glad there's a forum for SM; it's a reminder for me that I'm not the only one struggling with this disease and that there are other people experiencing the same feelings as I am about SM.

Well anyways, I've been reading up on the 5-fluorouracil injection and it's giving me hope. I have a couple of questions though. I told my teacher about the injection and she said that because it's also used for cancer (meaning that it stops the formation of cells), I could lose my hair... Is this true? How safe is it? (I know I'd probably be taking risks anyway.)

Are there other ways of maybe decreasing it's noticeability? I've been taking Flaxseed and Omega 3 but I don't know...

Thank you so much. :-D

Hey perroloco, the reason is that all those supplements promote or enhance healing process. From what I know, cysts actually are very small, if you can take right nutrition , it may suppress the condition.



Take care

Thanks for the fast response nerfer!
So you are currently taking all those vitamins? Wich amounts??
And do you feel they're working on you??
I strongly believe that the cure/managment of the disease Is simpler than we all think, for instance the use of vitamins, as long with a propper diet... Help me out a little and i'll start taking them inmediately.
I was already using omegas (animal omega from universal) for the last 6 months...

Please be reminded, for supplements, acid based one is better for the healing process.

Take care

Nerfer, could you answer what i asked above?
What are those vitamins exactly doing for your cysts?
I've read somewhere that some special form of zinc (gluconate
and some other) may help reduce the activity of the sebaceous gland...

Besides, surfing around i found a site with this info
Chemical and Interaction
4-oxoretinoic acid
4-oxoretinoic acid results in decreased expression of KRT17 mRNA
15982314
Acetaminophen
Acetaminophen affects the expression of KRT17 mRNA
17562736
alitretinoin
alitretinoin results in decreased expression of KRT17 mRNA
15982314
apocarotenal
apocarotenal results in decreased expression of KRT17 mRNA
17034753
bexarotene
bexarotene results in decreased expression of KRT17 mRNA
bexarotene results in decreased expression of KRT17 protein
17178900
Carmustine
Carmustine results in decreased expression of KRT17 mRNA
15980968
Ethinyl Estradiol
Ethinyl Estradiol affects the expression of KRT17 mRNA
17555576
Ethinyl Estradiol
Ethinyl Estradiol results in increased expression of KRT17 mRNA
14976129
Fenretinide
Fenretinide results in decreased expression of KRT17 mRNA
16467112
Hydralazine
[Hydralazine co-treated with Valproic Acid] results in decreased expression of KRT17 mRNA
17183730
Isotretinoin
Isotretinoin results in decreased expression of KRT17 mRNA
Isotretinoin results in decreased expression of KRT17 protein
15982314
Methylnitronitrosoguanidine
Methylnitronitrosoguanidine results in decreased expression of KRT17 mRNA
12634122
N-(4-methoxyphenyl)retinamide
N-(4-methoxyphenyl)retinamide results in decreased expression of KRT17 mRNA
16467112
nitrosobenzylmethylamine
nitrosobenzylmethylamine results in increased expression of KRT17 mRNA
17616710
Progesterone
Progesterone results in decreased expression of KRT17 mRNA
18037150
Tamoxifen
Tamoxifen affects the expression of KRT17 mRNA
17555576
Tretinoin
Tretinoin metabolite results in increased expression of KRT17 mRNA
Tretinoin results in decreased expression of KRT17 mRNA
Tretinoin results in decreased expression of KRT17 protein
15982314
Tretinoin
Tretinoin results in decreased expression of KRT17 mRNA
16604517
Valproic Acid
[Hydralazine co-treated with Valproic Acid] results in decreased expression of KRT17 mRNA
17183730


That is from refgen... I'll ask my dictors next week to ask them if that is really what i think, and if the use of any of those drugs might be helpfull... Some of the listes, like tretinoin, i already know that they're safe to try (in the topic version at least)....

Well, you can do your own research on that and let me know. You can find my Mail on a few previews posts.

Take care.

Hey, sorry,I am kind of busy writing my graduation paper, The supplements Im taking are just some normal form of nutrition prescribed from my local pharmacy. the reason I took them as I mentioned before it just acts as a extra material to suppress my condition.



btw, perroloco, the Tretinoin you mentioned , I am quite interested in that, Are you taking them regularly, how is that going?



Take care

I haven't tryed tretinoin yet, but i will and let you know.
For all of you reading this, read my previous post and try to find anything by youselfs... Ask your doctors about any of those drugs and what do they think...
Nerfer, could you tell me exactly wich vitamins aré you taking and in which doses? Thanksss


Well, hope any of you will start doing some f#%^#}~ research.
Take care

what I am taking now:

Vitamin A 8000IU

D3 400IU

K 150IU

Omega 3/6 600mg each



hope can help



take care