Hi Nerfer,
I think I saw you were in Australia before you were heading to China. Are you Australian based. I live in Melbourne and have desperately been trying to find someone to do some trials.
I've been in talks with a plastic surgeon but he is very expensive with no guarantee at all of success, around $7000 for an hours work, wont even make a dent into my cysts seen as i have hundreds. I have another derm who is going to do a trial who is a lot less expensive in January.
Was wondering if you are in Australia have you had any success at all seeking out new trial methods?
Also have you heard of nadiclinic in Seoul, Korea? ive been in talks with them as well. They say they can remove every cyst $20US per cyst, I am quite concerned about the scaring this might cause though.
Would be good to stay in touch and share any new information we might come across.
Cheers
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I am 28, Male, from India, ever since I was 15 I had these on my scrotum, back, back of my neck, a few on my chest. I was worried what they were, I could not afford going to a Derm at that time, so I just waited to know it on my own. I visited a reputed Derm couple of weeks ago. He suggested a biopsy, he said this could be SM, but he didn't commit that this is SM. I found that this is rare, genetic, hereditary..all nonsense. I feel like I'm a monster..with all those struggles in my life for eeking out a respectable living..SM gave a blow to my self esteem..I can't takeoff my shirt in front of my friends..every one asks what it is..and suggests to visist a Doc..(as if I'm not botered)...no treatment is the worst part...I ahve a god Homoeo Doc at my place..I'm going to visit here and know if this is curable in Homoeo...lets pray to God for a cure..
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Hi! mjr77, sorry its been a year since I last visited this forum. I actually forgot that I have posted on this site. Anyways, I'd be very glad to get in touch with you. You can contact me with this number....zero nine one seven four two four nine three one four. I'll be waiting for you friend. I am excited to get in touch with you. :-) hope we could help each other in any way we can.
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Hi aussie111,
I'm guessing your in Australia and I was wondering if you've seen or know of any derms in Australia that have treated SM. Have ou had any success with anyone?
Im in melbourne and any information would be greatly appreciated.
Thanks
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hey i would really like to know if you have any updates? i have taking doxycycline and didn't get sm until i was 21.
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hey, i'm here. Stop your doxycycline IMMEDIATELY. if you'd like to confirm it, have a skin patch test, however, they will inject some doxy under your skin, and that area will form a cyst which you need to remove again....
but it's unlikely you have genetic SM, you probably have the same case as me since you only got SM at 21. If you want further help ,i'd need to know how long you were on doxy, location/number of cysts you have etc, as much info as possible.
i'm totally fine after 1 year +. Never had sm again since i stopped doxycycline.
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pinocare did not really work for me. To be honest, i think pinocare works for surface level hyperpigmentation, meaning like acne squeezing etc. However, the area the cyst is removed is majorly damaged, which takes a very very long time to heal. If you think about it, it's a very deep epidermal damage. Which means it takes years and years of exfoliation to get through that. i've had a little success with obagi hydroquinone though.
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I can give advice on the different methods you should take, what to avoid, what works and what doesn't.
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Hi everyone, ive been diagnosed with SM 3 days ago and have never felt so helpless...
May I ask if you guys have had a proper test (genetic / biopsy) to confirm?
Also has anyone tried seeing a Chinese doc / acupuncture?
Thanks.
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HI,
Am too having SM and is seem to be getting more to different parts of body and bigger over the years.
When i first diganoised at around 28, it was little and GP said is harmless, few yrs back went back again, doctor said is harmless and there no cure on it. 7yrs later now it getting on my nerves as it has been growing and bigger on my forearms and guess i need to do something.
Along the years, from 28yrs unhealthy lifestyle slowly to a healthy lifestyle (gym everyday) and now going on vegetarian to plant based diet, however by doing that it seem to having more and getting bigger.
I'll really appreciated if someone can assist and advise me what I should do.
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