The cure for Steatocystoma Multiplex: 5-fluorouracil-----it is a medicine for skin tumour

treatment? i was diagnosed last month please help me:(

pls email me :( need help:( i was diagnosed last month:(

to the guest who posted the "update (important)" post, do you have an account where we can pm you?

page 6 my nickname is "really sad". guest and really sad are both me, all the long posts regarding the updates. sorry for the confusion.

my email is on page 6 you can email me.

It's been almost 3 months now, i have had nothing new, everything i removed is gone and have stayed gone. doxycycline was the main allergic cause for my SM. for those who have been diagnosed and meet with these requirements:

1. Non-heredatary
2. Late diagnosis and occurance of SM
3. Did not happen during puberty

Please circle back, and check any medication/food you started taking new during the beginning of you noticing you had SM.

To those who fall in the other categories, there is no current cure. Surgical removals (cutting out and stitching) or lancing is the best option. YOU WILL have to suffer this moments of scarring. forget lasers and creams. they will do nothing. the cysts are right above the fassur of the skin, which is pretty deep, i saw it during the removals of mine. Lancing removes the cysts, bursts it, you can squeeze out the sac too, this however does not remove the cyst wall. In my case, i was convinced that doxycyline was the culprit, so i removed everything surgically once and for all.

Email me if you guys have any questions, i will be happy to spend any amount of time to help

Hi everyone,

I havent been checking this forum for a while now, but it seems to be getting more lively. Anyway, I have to agree with everyone about the the laser treatment. I went for CO2 laser and luckily the dermatologist said she wanted to try on 5 cysts first to see if it works. The results of laser: Very painful, doesnt remove the cyst, bad scarring, and some of the cyst even grow which mean the sebocyte did not get killed by the laser. If she was so kind to do it on my whole chest during the first appointment, you can imagine what kind of scarring there will be. I didnt go for the 2nd check up. The conclusion, you pay money to get scars instead. So dont waste your time on laser.

I suspect that the Derm working with the laser was not really experience with SM since she is my lecturer in the general hospital where usually people go there to remove warts, so I went to an 8th dermatologist who worked in a specialized aesthetic clinic specializing in laser to ask if Erbium laser will work. She said no because you still have to drain out the content. Laser is just to remove the superficial layer of the skin.

I have been reading the post by ReallySad about the allergic to doxycycline. Actually that is what I think too because there are just too many documented sporadic cases of SM which if they have all the patients data to make a statistical analysis (chi-squared for example), for the % level of significance they needed in medicine to make an association between SM and genetic just doesn't fit into the criteria. I'm a sporadic case too. My brother has skin allergy too but it manifest in urticaria form. So it could be some epigenetic factors behind this.

What I realized also from this forum, quite a lot of us are Asian. me too. If this is genetic could it be it is more prevalent among Asian?

 

Last but not least, lets just keep this forum going. I was really motivated after reading everyone's posts.

I have SM at 1st I just had it on my chest which was unfortunate but I lived with it. Now they have spreaded to my neck and forearms which completely changed my life. I was thinking about just getting them all removed and just getting tattoos everywhere and maybe that would solve the problem

How old were you when it started? and how old are you now?

very sad to read that the "cure" turned out not to be one, just wanted to thank everyone who's been posting all the information they can findi'm female, late twenties, have had sm since early teens (so over ten years now...)this condition makes me feel completely hopeless to be honest, i don't need to tell you that i definitely do not (almost never) have a love life because of this, i'm so ashamed of myself every time i see my skin or walk past a mirror even

the toll this has taken on my mental health is so huge that i do not see the point of living anymore at timesand yet even that is not enough to motivate any doctor i've seen to help me out 

Hang in there, I'm 31m w/the same condition since my late teens. You'll find someone who will see past it and from a brighter/different perspective, at least you'll know quite soon in the relationship who is "real". Hang in there, and don't give up.

Feel like it goes in circles. Someways I am able to look past, other days I can't even think. As you just said before me, you will find someone who looks past. Thankful to have a great wife. As far treatment, I'l tend to go twice a year. It's pretty much choosing scars or cysts. That needle they used has been successful for me in small, scattered areas. But the larger or closer together seem to fail. Anybody try anything new lately? I keep buggin the derm to try stuff. Occasionally he will, but that shock / needle has been beat for me for little ones

miorlego

if yours is a sporadic case, i may be able to help you

find my email and i can give my suggestions

-reallysad

Same here, one day I'm perfectly fine walking around having a laugh, and then suddenly you saw a guy your age walking around shirtless during a hot sunny day with smooth skin. That moment you feel like it is okay to get hit by a car because there is no point on living anymore. Btw, any tips to get a great wife like yours? :)

Thank you all for your time nd for sharin such information. I envy most of you cos of your geographical exposure/Advantage. The first cyst case i had ws in my early teen years, i ignored it completely. Nw its all over my bck, chest nd upper arm. The dermatologists in Africa are as clueless as i am abt dis case cos it is rare. Hopefully i intend seein one next month to see how much help he can render. Its scary when you think of the fact the condition has no cure for now,. I'm 26 amd probably hav nt taken off my shirt in public for over 5yrs now. At this point, i believe in miracles! Science is failing us, God won't. I'll be back to share updates.

Hi there,

I sent you an email few weeks back. Did you get it?

Hi, I have SM and I am on doxcycline. I thought I had noticed an increase in cysts in the last few months since I have been on it but didn't make the connection, as a few doctors said that it would help.

Are you saying that it's only because you are allergic to it that it makes your SM worse, otherwise it would be fine?

Was there any other side affects you had while on doxcycline? Ive had no side affects but am now concerned it is making my SM worse.

Thanks