I am 25 years old and diagnosed with Hashimoto's Thyroiditis, Mitral-Valve Prolapse, and depression. In 2009 I was hospitalized for three days because I was unable to walk. My legs were too weak to hold my weight I was also very tired, even more than what I experience with my depression. They did tons of different tests MRIs, blood tests, I saw a neurologist and got an EMG. The tests were all inconclusive but after the three days I was able to walk enough for them to release me and told me to follow up with my doctor. Now my doctor at the time treated me as if it was all my depression or I was imagining it or making it up. I continued to experience the weakness and fatigue to the point i could barely get through going out to do groceries.
I was working at a coffee shop at the time and I ended up taking 2 full months off before even considering going back to work. When I finally did go back I started off with super short infrequent shifts and worked my way back up to an almost full schedule. I was able to do this for about 6 months but I was putting all my energy into working so I wasn't able to do anything else. Eventually it became too much and I cut down my shifts again, until finally after awhile I had to quit because I just couldn't handle being on my feet for that long and as much as my boss was understanding they had a business to run.
Through this time my doctor did the occasional blood test and tried a few different vitamins and stuff but was essentially unwilling to work with me on what was happening so I had to go on unemployment and eventually I gave up trying to push my doctor. Recently, I moved back to my home town and got back in with my old doctor who is extremely good and willing to start from the beginning again and work with me at the very least. But I am so frustrated now because it has been going on for almost 3 years now and I have had to adjust my entire life to try and fit around something I don't even know what it is. I had to give up my idea of owning my own business and go back to school just so I can get a job that I can actually do. I haven't been able to hold a job since everything that I am qualified for would involve extended standing and I can't even do the swimming that I love most of the time and I am at my breaking point.
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Hi Kitcatz,
You could have written my life story! I was diagnosed at 21 years old with Hashimoto's Thyroiditis. It took me 16 years to finally have my thyroid removed. I too, had depression. I had palpitations that sent me to the ER more than once.
I had my total thyroidectomy on Jan 10, 2006. I have put on about 100 pounds since I was diagnosed. My entire family (all the girl cousins on my Dad's side!) have had their thyroids out and we are all suffering.
I wish I could find a really good ENDOCRINOLOGIST that can give me and all of us some answers. I was told that once you have your thyroid removed, you go into a Hypothyroid state for the rest of your life. I believe this is true.
Try and get on a medication called Armour. I believe that saved my life.
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I would highly recommend looking into what's called Biotoxin Illness. If you have one of the related genotypes, it's very likely that it is your issue. The book Surviving Mold by Dr. Ritchie Shoemaker, who is the pioneer in the research, would be a good start.
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Hi, I do understnad what you must be going through. I am 29 and 4 yrs back, my hands went weak & I had to quit job. I ran to every doctor in town & tried different medications - including homeopathy, pranic healing. But doctors don't seem to know the cause & end up giving high dosage pills which lead to disturbing side effects. Now I have trouble with my right foot too. I can't walk sometimes coz i feel nerve weakness & tingling in d foot. I m just trying to be happy & calm- panicking just worsens the symptoms. I wish you get well soon. And please do go through the treatment with the new doc- (I wish some doc wud say that to me! , sorry, but am tired of having given up too..) this is your chance & it might work out to you benefit. Wish you good.
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Same story I had. Misdiagnosed so many times. Fatigue so bad, first was called CFIDS, but kept getting worse and outside the bounds of CFIDS. After a long journey to find what the hell was so profoundly wrong with me, i found out by a lumbar puncture, its multiple sclerosis. I have treatment now that actually works. I dont want to freak you, but knowing finally what was wrong gave me some peace. And i could stop seeing specialists. MS appears to be many other diseases. I asked for a lumbar puncture finally and that was the proof.
have any family history? My mom and her mom had ms as well.
Good luck and I know finding the right doctor is tough but perhaps a neurologist is now in order for you to see.
Blesse be,
Kelley
have any family history? My mom and her mom had ms as well.
Good luck and I know finding the right doctor is tough but perhaps a neurologist is now in order for you to see.
Blesse be,
Kelley
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Hi, I'm John P. More women than men get Hashimoto's but I got it real bad. The weakness in my legs was so bad, I was sure I was headed for a wheelchair. However, lucky for me I discovered a miracle drug called Low Dose Naltrexone (LDN) that restored my leg strength and resolved most of my nerve problems related to this disease. If interested, I've posted my story on YouTube. Just do a search for: Low Dose Naltrexone, Hashimoto's Disorder. Sorry to hear of your problems. Believe me, I've been there.
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I agree this is my life story as well.Diagnosed Hashimotos December 2011 with Antibodies of 227. I wasnt stared on any medications for this at the time was having fatigue and muscle and joint pain. My TSH and T-4 was in normal range. Feb 14 I started having one weird thing after another happen. I was just like you with the leg weakness also SOB and anxiety. Horrible headaches that started in the back of my neck and went up to base of skull.I never go to ER but during this time I had 3 ER visits and was sent to neurologist they suspected MS. Had MRI done and it was ruled out. I went back to my endocrinologist who checked adrenals and started me on 50 mcg levothyroxine. After 1 month of this started having palpitations,sob on mild exertion and elevated blood pressure along with HR around 135-140. I work for my pcp who carried me to the ER his self. I ended up taking 25 mcg levo and it has helped with everything but the anxiety issue.I am currently 38 was 35 at diagnosis.
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