Have you tried having a telescope in your urethra? Im having that done in a few weeks to see if there is any inflammation. Otherwise try organic cranberry juice or marshmallow root herb.
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I'm a 39 year old female and have had urethral discomfort for 15 months now. It came on very suddenly with no sign of a UTI. I had a cystoscopy last summer which was clear and have been on Amitriptyline for almost 9 months now. It's helped take the edge off it but the discomfort is always there. I've had to manage my own medication via the GP as my hospital appointments keep getting cancelled. I've not been seen since my cystoscopy. I've been doing some research and wonder if it could be Pudendal Neuralgia - something I will discuss with my Urologist when I eventually get to see her!! It saddens me to see so many people with this type of unexplained condition. I also don't think enough has been done (at least in my case and possibly for most of you) to get to the root of the problem or at least look at different options for pain management. It's not enough for clinicians to say "they don't know".
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Hi, so sorry for your troubles, Im having similar problems. I was meeting with a urologist from Sweeden because I have had so many uti's that I am now semi permanantly inflamed in the bladder and urethra. The urologist recommended I get a syringe- take the needle part off- and buy this cream called fucicort and inject it into my urethra 2 times a day for about a month and a half. I didnt feel any difference for 2 weeks and then everything started to change. I started to feel less and less urgency and was able to live my life again. The only problem was that I felt 90% better and so I had sex with my partner- big mistake. When using the cream dont have sex until you feel 10% better or all the pain will come back. You will have to get pillows to lean against and get a small mirror to look in and then just inject the cream into your urethra in the morning and at night. It does not hurt, it just makes you feel like you have to pee, but youre probably used to that feeling so what does it matter. Just try and keep the cream in all night if you can or at least for a while. Remember dont inject the cream through the needle- take the needle off (it should just pop off). And keep the syringe really clean. Also, if you decide to stop the cream then dont just stop all together, trail it off slowly. Good luck and remember you are not alone!
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I have been going to a number of doctors having the same test run and spending alot of money. Thru a process of elemination I am now being treated by a Neurosug. He understands (first one!) exactly what I am feeling. He has run into this before and said it always comes from #5. That has to do with the spine and location. A pinced nerve is landing right up my urethral but only on my left side. What he said that really made me feel he knew what he was talking about was he said men experience the pain in their testicals. Never crossed my mind that this was a gender shared problem. I'm having surgery in a few weeks and it seems extreme but life can be hard enough to breath through without the added feature of torture! Hope I help some of you, it was really important to me the day I found all of you.
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I want to thank you for mentioning, Tea Tree Oil. I have applied it to my urethral area, and it worked. Pain and spasms subsided. I have been symptom free for two years, but it's returned. I had forgetten the name, and thank goodness, I found your site again, and the name of the oil. This oil does the trick!!!! I'm going to the store and buy more. This is great stuff. I too, have no infections, and this is a God Send!!!!!! Thank you, thank you, once again.
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Thank you I will try anything so sick of this and its only been 2 months
so many people are talking yrs with this I ALSO find using my infared light helps me alot...use while sitting since that is when I have my pain
so many people are talking yrs with this I ALSO find using my infared light helps me alot...use while sitting since that is when I have my pain
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For the last year i have had bad urethral pains. I have gone to the doctor over 10 times for this problem, and each time i go the doctors say that they do not see anything wrong.the only thing that helps is if i drink water constantely everyday before and after urinating, but if i dare to miss a drink of water this feeling would start to come and it feels just like a UTI but every time i visit the doctor and go with out drinking water they tells me i have a UTI but when they give me medicine, all kinds it doesn't work and they only think that works is water. but if i drink water and then go to the doctor they say every thing looks normal, even my uralogist. So they all tells me to just keep drinking water. Do anyone know what they problem may be? becauce I suffer everyday and i and tired of constantely suffering. Do anyone have a clue????
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Hi,
My boyfriend for the last year has been suffering from chronic urtheral pain. He's only 27 and he has no infection, no std's, no crystals, and no adnormalities. He has had his prostate checked and has even had a scope done to rule of any sores inside the urthera. The Dr.'s can find nothing and have nothing to tell him. They just keep putting him on different antibotics and pain relievers which have done nothing.
Reading the above posts it may be possible he's having urtheral spasms. Does anyone know what the best medicine would be try for spasms? Also, those of you who have tried the tee tree oil, does it help pain that is inside the penis? We are getting desperate and I'm even thinking he should go to a psychologist like one of the above posts just to rule out any mental alimente connecting the two.
Any advise would be greatly appreciated! Best of luck to all!
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Hi ladies and gents....... I previously posted as "guest" approx a year ago... my thread is the one that begins: "
I have had 1 and a half years of misery. In February 2009 I developed a bad case of cystitis........"
Although my post ended on a positive, my "misery" continued unfortunately until quite recently......... Doctors tend not to take this issue seriously as most just don't know enough about the problem - there's not enough research into bladder pain/recurrent cystitis as I am told it's not a "glamorous" enough subject area.
As the the previous person's post, I have to say that herbal supplements do not work for me at all.... I have tried absolutely everything that google can throw at me including Marshmallow tea, horsetail tea, D-Mannose powder, Colostrum ... you name it, I've tried it. If you ask me - you're better off saving your money - it's a very expensive past-time and for me personally, a waste of time and energy... if it works for you though, great - I've been desperate enough to try anything, I understand what it's like
I had a second cystoscopy operation in October 2011 as I had developed another bad infection which caused my urethra to become incredibly narrow and painful ..................
The only thing which worked ABSOLUTE wonders for me was a treatment called "Cystistat". I live in the UK so I'm not sure if something similar is available in the USA - I know it's a brand new treatment and very expensive for the NHS to fund but I am eternally grateful to have been given it. It also helped to have found a great doctor who referred me to a consultant at the hospital... the consultant was the one then to refer me for the Cystistat.
I had to have 6 weeks initially of weekly treatment (one morning a week at the hospital) - they insert a catheter into your urethra (with no anaesthetic unfortunately but believe me, the pain is worth it for the results!)....... then Cystistat liquid is injected into your bladder... you then need to basically keep it in there for as long as you can. As soon as the Specialist begins injected the liquid, you can feel it soothing and cooling - it's just such a huge relief! After the 6 weeks, it then went down to once every 2 weeks. Once I stopped the treatment, I gradually felt better and better over the next few months........ I still have the odd bad day when I'm not sure if I have an infection or just bladder pain but the improvement is immense!! If anyone gets the opportunity to try this treatment - go for it!! It sounds scary but it's amazing! I feel like I've been able to get on with my life again!
Good luck everyone.
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If you ever find anything let me know. This started when I was 17 as well. All of the same symptoms and I'll be 25 this august. I have seen 20+ doctors and passed around like a human gunie pig.
I have no infections, been tested for IC, put on low does antibiotics, put on bladder numbing medication, anti-spasmodic, had ultrasounds to check for cysts and tumors, had camera's put up through my urethra to check and make sure the bladder was ok, done pelvic physical therapy and much more that i can't even remember anymore.
I have cut out all caffeine, anything with citric acid, anything with artificial coloring, everything with preservatives, and not longer take baths only showers.
Sex is still painful (although not as bad because my current partner and now fiance' is much more gentle then the only two other people I've been with) I still be bladder spasms about 1-2 times a week, compared tot he 3-4 times a week when it first started when i was 17.
Please if anyone has any idea, I'm desperate. I'm on my 15th prescription in 8 years... I"m done and exhausted.
I have no infections, been tested for IC, put on low does antibiotics, put on bladder numbing medication, anti-spasmodic, had ultrasounds to check for cysts and tumors, had camera's put up through my urethra to check and make sure the bladder was ok, done pelvic physical therapy and much more that i can't even remember anymore.
I have cut out all caffeine, anything with citric acid, anything with artificial coloring, everything with preservatives, and not longer take baths only showers.
Sex is still painful (although not as bad because my current partner and now fiance' is much more gentle then the only two other people I've been with) I still be bladder spasms about 1-2 times a week, compared tot he 3-4 times a week when it first started when i was 17.
Please if anyone has any idea, I'm desperate. I'm on my 15th prescription in 8 years... I"m done and exhausted.
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I was also abstinent for a year during this 8 year stretch with no difference in pain. And have tried 5 different birth controls, including going 1 year with out BC, again no change in symptoms.
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As I mentioned in an earlier post which seemed to be totally ignored, I have Urethritis also (inflammation of the urethra)which causes a lot of pain. An 800 mg dose of ibuprofen usually helps a lot. My condition is due to an autoimmune disease called Reiter's Syndrome or Reactive Arthritis. The BEST treatment I have found is to reduce stress! I'm relatively certain that all of you with this problem are battling some sort of autoimmune response. If there is no injury or infection, the only other reason for something to be inflamed is due to an autoimmune response. Inflammation in our body is a natural immune response to injury and other "problems" like infection. What happens in autoimmune disorder is the body for some reason signals a need for inflammation (white blood cells) to "attack" an infection or injury--but in this case, they are seeing healthy tissue as the bad guy.
Stress relief is the #1 best way to reduce autoimmune disorders. All the tests and drugs some of you have been through could actually be making the situation worse. I've been there! Relax, do yoga, relaxation exercises, etc and you might find some relief.
Stress relief is the #1 best way to reduce autoimmune disorders. All the tests and drugs some of you have been through could actually be making the situation worse. I've been there! Relax, do yoga, relaxation exercises, etc and you might find some relief.
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I read all the posts on this thread and I believe most of us suffer from one of the many autoimmune deficiency. I have been to many drs and undergone all the testing as well My symptoms are mild compared to the rest on this thread, but I have other symptoms not mentioned. Unexplainable vaginal pain and fatigue with body aches before or during vaginal or urithra pain. i sleep a lot during these episodes My husband has been a smokeless tobacco user all his life and he has quit now for a month. My vaginal issues have subsided, but the urithra pain has flared up. It is always wise to build a strong immune system so that is my aim and hopefully change this pattern of pain in the process. Thank you for you input. I will research this immune disorder.
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I got a urinary tract infection for the first time about a year and a half ago. I was put on antibiotics and it went away but came back fairly quickly. For about 6 months, the infections kept coming back and more antibiotics were given to me. After the 6 months, antibiotics pretty much stopped having an effect on the pain I was having. The pain became constant, it was bearable most times, just a slight burn after I pee but if I didn't get enough sleep some night or missed breakfast or waited too long to pee, etc. it would get really bad, like an infection all over again! I just assumed it was more infections and I went to doctors numerous times trying to get some relief. Then one doctor pointed out to me that I had no bacteria in my urine and told me I didn't have that much pain and it was all in my head, I went away from the doctors surgery so confused that day! After a few more months of pain, I finally convinced my GP to refer me to a Urinologist who said he would book me in for an MRI, CT and cystoscopy. All during this, I still had the same constant pain. I went for the tests and scans, gave numerous blood tests and urine samples, had a uroflow examination but everything came back normal so I was told I had nothing wrong with me, something which I couldn't understand because I was getting pain and I guess I assumed medicine had the answer for everything :/ I'm still left with this pain, they said there was no more they could do for me because they couldn't understand why I was getting the pain. They gave me tablets to prevent further infections but that's doing nothing for the pain I have at the moment. It's completely taking over my life! I'm at my wits end! (Oh, I also tried cranberry supplements, a 3-day cranberry regime for UTI's, uva-ursi, cystopurine and Chinese herbal tablets) Does anyone know of anything to relieve the pain?
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Hi there I am suffering the exact same problems did u ever get sorted out and cured?
Thanks
Vic
Thanks
Vic
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