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My husband has Churg Strauss. He went about 5 years with the symptoms but no doctor knew what it was. A teaching hospital found and gave the diagnosis after the 3rd trip to the ER. Diagnosis confirmed by the Cleveland Clinic where the disease has been treated often and that was 5 yrs ago. My husband has been treated with chemo drugs, Rituxomed, and IVIG. He is chronically on prednisome for the disease flair-ups. The Churg Strauss support group is a good source of info, several hospitals websites and NIH for clinical trials. After all this time my husband is unable to walk and has been very lucky to have good doctors that have stopped the lung damage. He no longer even needs the 24 hr oxygen from when the disease first started. The support group site also gives doctors in all areas of the world who are specialist treating the disease. Main thing. Do what you love, enjoy your life, but get lots of rest so your body can fight the disease with the given treatment. God bless and good luck.
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