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Bulimia and type 1 diabetes are a potentially deadly combination. What should you know?

Lara was 15 when she was diagnosed with diabetes. She had all the symptoms and signs that have come to be expected with diabetes. She was thirsty. She ate all the time but wasn’t gaining weight. The morning Lara was taken to the ER because she couldn’t see, her blood sugar level was 1,243 mg/dl (69.1 mmol/L). The doctors and nurses were amazed that except for the fact that her vision was blurry, Lara was walking around and otherwise functioning normally.

Lara had to start insulin the very same day. Over time, her blood sugars came down. She started gaining weight and growing again. In fact, it seemed like her weight gain just wouldn’t stop. Lara started cutting back on her insulin so she wouldn’t gain as much weight. She discovered that she could splurge on desserts and keep her blood sugar levels down, at least by the next morning, if she took extra insulin. Then she could take off the extra pounds from overeating by reducing her insulin.

Lara had developed a kind of bulimia she thought she could manage with insulin. The problem was, she couldn’t.

By the time Lara started college, she made a habit of avoiding her endocrinologist. When her parents asked how her blood sugar management was going, she would answer, “Oh, I stay in the 100s.” But the fact was, she frequently had blood sugar levels between 700 and 900 mg/dl (about 40 to 50 mmol/L). At some point, Lara realized that she didn’t have to wait until her blood sugar level was dangerously high to make herself throw up. Then after three days and nights of binge eating, Lara wound up in the ICU.

Lara’s blood sugar level at admission to the ICU was 1054 mg/dl (58 mmol/L). Her HbA1C was 21 percent. When it came time to release Lara from the ICU, the doctors sent Lara to an eating disorders program. Lara had developed a condition called diabulimia.

What is diabulimia?

Diabulimia is a portmanteau of diabetes and bulimia. In diabulimia, type 1 diabetics deliberately stop giving themselves insulin to lose weight or to keep from gaining it. Here are four important facts about the disease.

1. Only diabetics develop diabulimia

More specifically, only insulin-dependent diabetics develop diabulimia. Diabetics of any age sufficient to manage their own insulin injections can develop diabulimia, but it is more common in teenagers and young adults.

2. Diabulimia is very common among teenage females who have type 1 diabetes

One study that followed 91 teenager girls who had type 1 diabetes for four years found that 45 percent used insulin for weight control, that is, 45 percent of these 91 teenage girls had diabulimia.

3. Diabulimia is also common in adult diabetics who use insulin

Another study found that 39 percent of adult males who use insulin for diabetes occasionally cut back on insulin injections to lose weight. However, only 20 percent of adult women who are insulin-dependent manipulate insulin dosage for weight control.

4. The most dangerous potential complication of diabulimia is ketoacidosis.

Ketoacidosis occurs when there is so little insulin that the liver has to convert fat into ketone bodies for the body’s fuel. Ketoacidosis is not the same thing as ketosis. In ketosis, the body burns fat for fuel. In ketoacidosis, the body breaks down both proteins and fat to make energy. In ketoacidosis the body thinks it is starving, so it starts breaking down its own tissue. The amino acids released as tissues are broken down make the blood more acidic. They deplete the body’s supply of bicarbonate, which interferes with the ability to digest more food and adds to the metabolic signals of starvation. There are ketones in the urine.

Someone who has ketoacidosis will almost certainly be fatigued. They may, like Lara in the story above, suffer blurry vision. They likely have been losing weight recently. They will have nausea, vomiting, decreased vomiting, and vague abdominal pain. As the condition progresses, the skin and mucus membranes will dry out. The pulse accelerates but blood pressure falls. Body temperature falls. Breathing becomes labored. The breath smells like nail polish remover.

Someone who has advanced ketoacidosis may become very talkative but not make a lot of sense. In the condition continues to be untreated (hospital treatment is required) coma and death follow.

A relatively healthy person can die after just one binge eating episode in diabulimia. It’s a potentially deadly condition. If you suspect someone you care for is misusing insulin, encourage them to be honest about their appetites. Honest overeating is less deadly than skipping insulin to avoid weighing too much at the next doctor’s visit.

Never chastise or belittle a type 1 diabetic for their eating habits. Be there for them. But encourage them to get the medical help they need, not just to manage their diabetes, but also to manage their hunger and addictions to food.

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  • Photo courtesy of SteadyHealth

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