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"I have tics," Anne-Leigh, a girl I went to high school with, announced in front of the whole class on the first day of school. Tics, she explained, meant that her face would often twitch in a certain way, she'd make clicking and grunting noises with her mouth, and sometimes her arm would violently swing her arm or say embarrassing things without meaning to. Tics were uncontrollable, like when you try to stop a sneeze — no matter how hard you fight against that sneeze, your body will eventually make it burst forth, and you have little to do with that.
Most of the time, Anne-Leigh's tics were barely noticeable. I do recall her loudly yelling "tampons, tampons — MENSTRUATION!" during a math test once, but all the rest of us quickly grew used to the facial twitches and small noises, and thought she was kind of cool for being able to get away with swearing in class.
Anne-Leigh had Tourette's Syndrome. Though first discovered in 1885 by French neurologist Georges Gilles de la Tourette, none of us kids had heard about her neurological disorder before she came along. That has changed today — almost everyone is familiar with the name Tourette's Syndrome, and most people associate it with the involuntary swearing that affects about 10 percent of sufferers. Tourette's is much more than involuntary swearing, however, and to those who have it, Tourette's can be everything but funny.
Greg, a Tourette's sufferer featured in the 2009 BBC documentary about Tourette's I swear I can't help it, for instance, would collapse onto the floor as a child, unable to do anything but move his eyes. He'd also scream in class, severely disrupting himself and everyone around him.
What Do We Know About Tourette's?
Tourette's Syndrome is a neurological disorder that comes in mild and severe forms. The most severe form, also sometimes called full-blown Tourette's, currently affects up to 200,000 Americans, with the milder form placing a mark upon the lives of thousands more. Though the disorder most frequently shows up in childhood between the ages of three and nine, often peaking during childhood and adolescence and subsiding afterwards, it can develop during adulthood too.
In order to be diagnosed with Tourette's Syndrome according to the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders, the DSM-5, a person has to:
- Have two or more motor or vocal tics.
- Have had tics, that can occur many times a day (some counting over 1,000 daily instances), every day or nearly every day, for at least a year.
- Have started experiencing tics before the age of 18.
- Not have another disorder that could explain the tics, nor be taking medication that could cause the tics.