Anything that drys the eyes out increases the desire to blink. Dry eyes is where Bleph usually starts 1 in 5 people. Keeping well hydrated helps. Cosufferer
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I was also wondering if there is some kind of meds that a person could take I was diagoniesed with Blepharospasm in Nov and been having problems since June after finding out that I had a4 inch mass in conceted to my bladder and I was very upset and worried but I have found that when I get up set and dont get enough rest my eyelids blink worse but twith life today who can stop getting up set if anyone knows of meds are something else that can be done I would love to know I am doing botox every 3 moonths and have doen 2 rounds already and dont seem to be any different except I am not having the spasms I am just having alot of blinking and lights drive me crazy when they change all of a sudden tahnks
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there is a man that you can google search his name is steve zarran and he is remarkable and the information is fantastic.. he has been blink free now for 18 years.. if she contacts him will you please tell her to tell him she was told about him from cynthia thomas i would really appreciate it.. you can read his story first and i know she will feel like i did.. I WAS EXSTATIC!!!!!!!! i too suffer from blepharospasms and just called him yesterday after reading his story.. let me know how she does ok.. SO MUCH LUCK TO HER!!!!!!!!!!!!!
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Has anyone seen a neurologist for his condition? I see a dry eye specialist and a plastic surgeon for botox injections, but was wondering if a neurologist would be a better choice. If so, is there one that specializes in eye treatment. I just wonder if there is an underlying effect that my doctor's are not actually looking at for the cause.
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My 10-year-old daughter had the eye widening and twitching - progressing to rolling, all uncontrollably. We went to a naturopath, who detoxed her from her kindergarten immunizations. This decreased the rolling some. We reduced the amount of gluten in her diet. This helped a little. The remedy that has appeared to work for us is the elimination of MSG and autolyzed yeast from her diet. When she does not consume, she is symptom free. When she partakes, depending on the amount, her eye will twitch and roll the next day. We were never diagnosed by an MD, but all of her symptoms led me to this post. I hope this helps someone who is searching.
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With Beta Carotene my twitching has all but been eliminated. If you decide to try this, be sure to purchase NATURAL Beta Carotene and not synthetically made. The brand I buy is "NOW" and I bought them online for about $13.00 for 180 tablets.
Because this supplement is not regulated by the FDA there are no guarantees or promises, of course. However, everything I've researched online says the NATURAL product causes no harm. NOW brand is a company that goes through a certification process for their products. Nancy
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Nancy, I have tried a number of natural products to ease the blepharospasms and have not found anything I feel has helped enough, so I have resorted to the Botox injections with mixed results. I would prefer natural treatments. Please give an update; Did you continued with the Natural Beta Carotine and if so, did you continued to see improvements? maureen
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Hi Pearce: I was also diagnosed with this condition and so was wondering whether you got any responses or any useful pointers.
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I am not getting great relief from the Botox injections. Thanks.
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-Kelly
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It is neurological, the root of problem is the brain not eyes. Of course, what is seen is abnormal movement in eyes, spasms ans often squeezing shut. She needs to see a Neurologist. Also as a 12 year sufferer of this I can say treat the dry eye that 99% time goes with this due abnormal blink reflex.. Aggressively. Our tear film is poor quality causing irritation & severe light sensitivity as well. I have for 5 years went from severe dry eye to mild using a product by Carlson called Moisture eye, it is salmon oil and borage oil, available at health food stores or online. It has helped decrease the light sensitivity and the feeling of gritty eyes which does help( not cure, there is NO cure). Light exercise also increase the oxygen to the brain which I have found helpful. I do get Botox A injections, they help give me ok to good time for about 6-8 weeks which for me is worth it! Vs. blindness ALL the time. Flax seed has also been helpful again with the dry eye that goes hand in hand with Bleph. Deep sleep and rest are very important, melatonin is a natural sleep enhancer. Sleep is the only time this condition gives us a break by the way. The Benign Essential Research Foundation in Beaumont Texas as a Bulletin Board for much needed support as this is a life changing, often disabling condition. There is also a fb group for blepharospasm and many for dystonia of which Bleph is a focal dystonia. Good that your sister has you for support!
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Blepharospasm is a neurological condition. A focal dystonia, the problem is in the basal ganglion of your brain. Yes, a neurologist or a highly trained ophthalmologist would be more helpful and appropriate than a plastic surgeon.
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I've had the spasms for 19 yrs and I swear it is something I wouldn't wish on anyone!!! I have been having the injections since the beginning with success until about 10 yrs ago now they're just a waste. I'm like a prisoner in my home. Can't stand the staring!! Good luck to us all who is going through this.SILK
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Thank you, Nancy it sounds good. Unfortunately I have diabetes and HBP so I would have to speak with my PCP. I've had Blepherospasms for 19yrsand botox injections don't help anymore. But thanks for the info. Right now I'll try anything.
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