Sir can u pls provide ur website adress.. I m very much distressed because of this disease. Plss
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Hi, I know this is an older post but hope you still see this. Do you know the name of the Chinese tea you took? Is your blepharospasm still better? Thanks.
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hello Nancy,
Great to see your post.
In fact, my father is also suffering from the same ailment.Could u share the tablets details and your experience,then it will b great .
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i wish you had never written this post, do you know how many people you have given hope to ??? and disappear without a trace. You could be kind enough to tell the name of chinese herbal tea.
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What is different Blepharopasty vs blephariospasm? I had surgical removed before that my doctor said it will not come back it will gone good but is not thru is came back and also cost me $7000.00/. Ladda Drankiewicz
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Blepharospasm is a movement disorder affecting the eyes. You can't have it surgically removed.
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Yes I can relate! I had Botox and my eye has been completly shut for almost 3 weeks, now in my fifth week just returning to normal. Very scary and I will probably never do Botox again. Does anything work?
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Hi, I've just seen your post. I had blepharospasm for 14 months. I had severe spasms around one eye, though didn't have the blinking. It was very embarrassing and I wore dark glasses everywhere. I never had the botox as my neurologist seemed to forget about me. I tried lots of things which didn't work - Chinese herbs and acupuncture,10 days of a juice fast, magnesium supplements and spray. Nothing helped. I tried Steve Zarren's nutritional supplements, which were good and made an improvement but I had to up and up the dose which got very expensive. What eventually worked was something I took by accident. I took some milk thistle tincture left over from a detox kit from a few years earlier. It was just 15 drops under the tongue, which I didn't think much of, but the next morning my spasms were mainly gone. I carried on with the milk thistle, then ran out and took a milk thistle capsule, - Thisilyn. This was over a year ago now and it has never come back. I only take the milk thistle occasionally now. Milk thistle is a liver detoxer and I read that the tincture also clears sugar around the eye area, so maybe this was it. I don't know but I feel really lucky that it has gone.
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acupuncture works for the day you have to have it everydat for your life.after 3 years i quit
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chewing gum helps try cinammon. ada approved also can try tens unit
***this post is edited by moderator *** *** private phone numbers not allowed*** Please read our Terms of Use
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I have been recently diagnosed with the Benign Essential Blepharospasm.
* First you need to find a good Neuro-ophthalmologist, this is an eye muscle disease and they are the right professionals to work on it. I tried three different regular ophthalmologist with no success.
* my treatment is with Botulinum toxin type A (Botox) and work very good so far, but is not permanent, will be applied every 3 or 4 months from now on.
* I have also read that this problem comes from a bad absorption of nutrients such as magnesium, potassium and calcium. This could be true because a year ago I had a mini gastric by-pass surgery which limits the absorption of nutrients in general.
* Drinking alcohol is not the cause but contributes to get the body drier than usual (Dehydration) and eye dryness makes more severe blinking eyes.
* First you need to find a good Neuro-ophthalmologist, this is an eye muscle disease and they are the right professionals to work on it. I tried three different regular ophthalmologist with no success.
* my treatment is with Botulinum toxin type A (Botox) and work very good so far, but is not permanent, will be applied every 3 or 4 months from now on.
* I have also read that this problem comes from a bad absorption of nutrients such as magnesium, potassium and calcium. This could be true because a year ago I had a mini gastric by-pass surgery which limits the absorption of nutrients in general.
* Drinking alcohol is not the cause but contributes to get the body drier than usual (Dehydration) and eye dryness makes more severe blinking eyes.
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My email address is ***this post is edited by moderator *** *** posting of private e-mails is not allowed *** *** all questions should be discussed on our website *** Please read our Terms of Use if u could drop me a line
Thanks
Janet
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I see your post of over a year ago. I have had blepharospasm for years. To my
understanding there is no medication to control it, only botox (which your medical
insurance should pay for the botox, the office visit and the injection of the botox).
When I was diagnosed with blepharospasm, in 1997, it took a few office visits, to
the doctor, to get it under control with botox. Also, if too much botox, is injected into
the levator muscle, can cause ptosis (drooping of the eyelid), which can take at
least three months to return to its normal state. Of course, by then you'd probably
ready for another botox treatment. (A few times I was able to push my treatment to
four months.)
Hope this helps. Susan
understanding there is no medication to control it, only botox (which your medical
insurance should pay for the botox, the office visit and the injection of the botox).
When I was diagnosed with blepharospasm, in 1997, it took a few office visits, to
the doctor, to get it under control with botox. Also, if too much botox, is injected into
the levator muscle, can cause ptosis (drooping of the eyelid), which can take at
least three months to return to its normal state. Of course, by then you'd probably
ready for another botox treatment. (A few times I was able to push my treatment to
four months.)
Hope this helps. Susan
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