Couldn't find what you looking for?

TRY OUR SEARCH!

This is my first time ever posting about this, I have searched alot but never said anything in a forum. I am just like everyone in here..I am a 21 year old male, throughout my entire life I have been very underweight. I am 5'9" 120..from what I remember from when I was younger it started when I was about 7 or 8. I remember my first panic attack, I was at my cousins house, I drank alot of soda and it was about 11pm, I all of a sudden felt like I was going to die. I remember the exact feeling. My face got hot and tingly, I started thinking about my parents and how badly I needed them. At the time my mother worked nights, well she picked me up and we went to the emergency room and I was fine, I even remember the song on the car ride there(Vitamin C - Friends Forever) At the time, I was very skinny..I originally went to the doctors to gain weight. Then they did a few tests and told me I needed "surgery". So I went under anesthesia, for both colonoscopy and endoscopy and they found polyps in my stomach and removed a small piece of skin blocking a small amount of my intestines(doctor said I was born with it) they did a biopsy and said it was fine. I was 8 at the time, then I was scheduled to have the same thing done(colonoscopy/endoscopy) when I was 11. I remember this exactly because it was September 11th 2001, I did not go to school that day nor was I allowed to eat, I was scheduled to go to new york city but it was rescheduled for November. Well November came faster than I liked but the tests were the same, polyps and they said I would need to get them checked throughout my life.

 

That brings us to more recent times. Everything was..well getting better. It wasnt normal, but was good enough for me I guess. Last august my father was involved in a horrible motorcycle accident and had list left leg amputated. Times got very rough and I almost lost my father twice due to blood loss. I can say he is much better now and has a prosthetic and is in good spirits. That seemed to turn my life a little. This added not needed stress to my life. I dont mean to sound selfish especially considering my father lost his leg, his life is much worse then mine is..but I cant take stress well.

 

I, like most others, was prescribed topical acne medicine when I was 17-18 but never figured that into the reasoning for my stomach problems. Soooo I learned to live with being skinny and having diarrhea most of the time..I was drastically underweight compared to all my friends, and everyone my age. I went to a dietitian, didnt help much because I was stubborn. I love junk food, I have since I was young. I am being completely honest, I tend to eat alot of junk food(i.e. candy, sugar, caffeine, chocolate) Well I never took it into much consideration. Well about 6-7 months ago, I had a huge bowl of cereal and the next morning I had stomach pains that were unbearable. My mother suggested lactose intolerance. So I stopped drinking milk and started using lactaid pills with just about every meal.

 

That helped but not for long, it was getting worse. So my mom and I went to a gastroenterologist. I told him my symptoms and he suggested some sort of IBD(ciliac, crohns, IBS, some sort of colitis) He put me on creon thinking my pancreas wasnt working correctly, that did not help. He then said maybe I need a colonoscopy/endoscopy. We did both, everything came back normal, ZERO POLYPS, he took samples..again everything normal. So I then had a lower GI exam, where I had to drink barium(sp?). They told me it would take 4-6 hours for it to go through my system, well it took about an hour and a half. But everything looked normal, yet again..with one exception being the doctor said I have a SLIGHT CASE of crohns..we are getting somewhere I thought. So I had multiple blood tests and all samples were sent to Prometheus, a lab in california. Got the results back, yes I have a SLIGHT CASE of crohns. He prescribed me with asacol(1 pills, 3 times per day) and told me to come back in 1 month. Well during that month, MY LIFE GOT COMPLETELY MESSED UP. It started well, my stomach was getting better but 2 weeks in I started getting stomach pains. Diarrhea went from bad to worse, it was gross..stringy, smelly, I always felt the need to go. So I went back to the doctor, he said he would change my dosage(3 pills, 2 times per day) and add a steroid called entocort(3 pills every morning). So I listened and started taking the medicine, again..it got worse. I started feeling sick to my stomach if I wasnt home with the comfort of having my toilet in range. I would get terrible panic attacks for the first time since I was younger. My stomach would hurt so badly whenever I got in a car, or was ANYWHERE that wasnt my home. I liked the fact I knew where my toilet was. The reason I didnt like going anywhere was because I felt constant pressure in my rectum, like I had to go to the bathroom, most of the time it was gas but occasionally it was..well poop. I also had pain and pressure in my stomach and it honestly didnt matter what I ate. This all started happening in april of this year, I lost my entire summer due to this. I stayed in my house and did nothing every day. I played xbox and kept to myself. Didnt hangout with anyone except a few friends.

 

This isnt me though..last summer I did everything! I went to 10 concerts(including warped tour, mac miller, KISS, eric church, brad paisley, the offspring) I was a very active kid, not anymore..this is killing me, not literally but in every other aspect. I graduated high school with a 3.1 and opted to go to a county college to save money. Well my first 2 semesters I had a 3.5 and was on deans list. I havent been back to school since, I cant bare to be anywhere for more than a few hours. Last month was my birthday and I REALLY REALLY REALLY wanted 49er/Jets tickets. Sports have always been my way of life and I have loved to 49ers since birth. Well I was too scared to go because the need for a bathroom. My mom surprised me anyway and bought me the tickets. I took immodium AD(as I do everytime I go out) and sucked it up and went. There were 2 occasions, while in traffic, where I felt the need to get out of the car and run to the woods and go to the bathroom but I held it in. I hate myself every single day for going to the gastroenterologist in the first place. I keep thinking, and saying to myself "man, I wish I was back to the way I was the day before going" I wasnt fine, but better then I am now. I could go and do something without the need to go to the bathroom or fear that I was go in my pants. :/

Loading...

Talk to your GE again!  There are a lot of options for crohn's, make it clear your current treatment just isn't working for you.

Reply

Loading...