Devic's Syndrome relief mesures

Hi I am a Hospice nurse. One of my patients is suffering from this disorder. She has discribed to me "feeling like her body is tring to close in on itself like a fist". She has lost most of the mobility in her legs and spends alot of time doing range of motion on her arms and hands. She doesn't want to "be a test subject" for all the medications and is looking for some relief mesures other than medications that have been effective.