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My husband is very dizzy and it is getting worse since his stroke in 2005. No one seems to know what it's coming from. Please help with suggestions.

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I am not a member here but saw your post in a google search about dizziness post stroke.
My father had a stroke almost 2 months ago & he is experiencing dizziness. We had an EEG done & it showed nothing. The dr. put him on antivert (anti dizzy med) but it's not helping. We are wondering if it's related with his eye sight. his sight was affected & that may be related to his dizziness.
Sorry I am no help, but I've been researching this for weeks & it seems like a common side effect from strokes that cannot be treated & may get better or worse with time. :-(
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My husband had a stroke 2 months ago and gets dizziness daily, and he's worse in the mornings. He wasn't so bad when he first came out of hospital and has only had the dizziness (also headaches, moodiness, depression, lethargy, indigestion) since he has been on his meds (which he started when he came out of hospital). I've now agreed with the doctor to take him off his tablets one at a time for a month each to see if he improves and hopefully pinpoint which tablet or tablets are affecting him the most. It obviously might not be any of them and just part of the stroke but it's worth a try. We have taken him off his bp tablets (Candesartan) and he doesn't feel so lethargic but still gets the other symptoms but it's early days. Next I'm going to take him off his cholesterol one (Simvastatin). Both are statins and I'm wondering if this are causing the problems. He's also on Plavix and aspirin for blood thinning. I know these are necessary to prevent another stroke but if these are the problems then I think quality of life is more important rather than length. I'll let you know how he gets on but it's worth thinking about if your husband is on various tablets and if you haven't already tried the same either get his doctor to change them or do the same as me. Good luck. Also - my husband also drinks a few glasses of wine a night so that's the next step - have a few nights abstenance. It is hard and I sympathise. The carers get very little advice and practical assistance.
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My mother started complaining of dizziness about a year after a deep brain hemorrhagic stroke. We have exhausted all efforts to find relief. It started with occaisional spells of dizziness and 18 months later now we only have spells where she is not dizzy. We ran inner ear testing, vestibular testing, vestibular therapy, all sorts of pharma for dizziness (slowly introduced and then weaned - only taking lipitor for prevention), and vision testing (she has a misalignment, but Neuro-Ophth assured this wasn't causing dizziness). We were told this was a common side effect and often hard to diagnose...that it often presented after a stroke and would usually resolve after several months. I think it is difficult for us to determine if this is actually a result of neurological healing (i.e. the dizzy nerve got impacted by the stroke and now it has feeling) or some other underlying issue. Either way there appears to be very limited options to manage this dizziness other than medications which essentially knock you out. I have searched for any type of research related to this "common" side effect but there does not appear to be any substantive work occurring. If anyone is aware of other alternatives I would love to hear.
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My father also now has very short periods of being less dizzy. He had a stroke..bleed in the base of the brain three years ago. Although vision was affected at the time he managed for acouple of years. He also has had a range of investigations on eyes and hearing. No problems found. the doctor has said the dizziness is the result of scarring after the stroke. It has puzzled us why the dizziness could 'change' fomr day to day or even hour to hour. Very bad and it is accompanied with nausia. now however, he gets almost no respite. We are desperate to help him. can anyone offer advice?
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I thought I had a stroke in August 2007--the doctors say I got lucky and didn't have one ( but I had something that affected me like one)since then I have had vertigo for 2 1/2 years--I finally got rid of it----by decreasing the inflammation in the body,  taking EGCG (thickens your blood), I stopped drinking diet pop and now drink it every other day, I eat lots of fruit and vegetables -and I take lots of fiber stuff==and when I feel vertigo coming on I eat an apple with all the apple seeds included and in 24 hours my vertigo goes away.  I am 44 years old--, a female and this works for me..all the medications do is put me to sleep--for 12-18 hours a day, so eating apples seeds have helped me-along with diet and exercise.  I am no longer able to work a job--because of how exhausted I get...but I am so glad the vertigo has went away--but hot weather and heat can bring it on again...
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My sister had open hear surgery about 1 1/2 years ago. She almost didn't make it. The doctors brought her back after heart failure. She was sedated for a couple weeks so she could recover. After a couple weeks, it was determined that she had a stroke during that time. She finally went home with the care of her daughter living with, and then had a siezure. After the siezure, she was hospitalized with a breathing tube that the nurses couldnt remove. A day or so later, they were able to remove the breathing tube. Ever since then, she has been extremely dizzy. She has been in bed for a year and a half now. She will have her good days, not many though, where she can walk around without her walker and has walked herself into her doc appts. We tried all medical doctors, and decided to try a chiropractor that promised to help. Well she's seen him now 13 times with no help. He tells her to eat a high protien, no carb diet. That is not working. He told her not to drink diet soda and drink lots of water. That too is not helping. She is severely depressed now. I am glad to hear she is not alone, but why can't someone fix her??? She is so tired of this!!!! We all are that are trying to help her. All we can do is visit her as often as possible. What a life! Please someone what is the trick!!!!!! We are desparate here!!:-|
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My 85 year old mother had a stroke in 11/2010. In May 2011 she started feeling dizzy. Her pcp changed all her meds and stopped some trying to see if that was the source. She went to an ENT and Eye doctor. She also went to a balance clinic and received several treatments for bppv in 9/2011 and again in 2/2012. None of this lessened her dizziness. In May 2012 her pcp prescribed .025 mg of ativan (lorazepam) to be taken in the morning and .025 mg at night. From the first dose her dizziness has been cured and has been to date. We just went to her pcp yesterday and I asked in light of the ativan helping cure her dizziness now did he know any reason. He said it really is unknown why it helped. I am just so grateful it did.
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Simvistatin has caused many people to become depressed or even angry while taking this medication. I and a friend of mine both were on Simvistatin and both had anger issues. He had a heartattack and I had a stroke. Once we stopped the medication the depression and anger went away.
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Guest wrote:

I am not a member here but saw your post in a google search about dizziness post stroke.
My father had a stroke almost 2 months ago & he is experiencing dizziness. We had an EEG done & it showed nothing. The dr. put him on antivert (anti dizzy med) but it's not helping. We are wondering if it's related with his eye sight. his sight was affected & that may be related to his dizziness.
Sorry I am no help, but I've been researching this for weeks & it seems like a common side effect from strokes that cannot be treated & may get better or worse with time. :-(


Yes, unfortunately, I am finding out that dizziness is very common. I am now on a motion sickness pill OTC Bodine. It hasn't really made a difference. My eyesight was affected also. My right peripheral vision in both eyes. When I walk around at work, home, or anywhere; everything shift from right to left as I walk. It is very distracting and can make me more dizzy. When I lay in bed and turn my head or flip from one side to the other side. I get dizzy. When I wake up and prop myself from bed, I am dizzy, so I don't think it is all from my vision. It seems anything can make me dizzy and no one seems to have a cure. We just keep trying different things to see if they help, but not cure.
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Guest wrote:

My husband is very dizzy and it is getting worse since his stroke in 2005. No one seems to know what it's coming from. Please help with suggestions.


Unfortunately, we are all in the same situation. Doctor's can only prescribe medications for dizziness or recommend OTC drugs for dizziness, but so far nothing really makes it go away. I would recommend some balancing exercises, so he can prevent himself from falling. I had my stroke in March 2012, so about 6 months now, I am dizzy pretty much all day, more dizzy when I become tired. Keep bugging his doctors for a solution, but they don't know either unfortunately. It's a hit or miss trial and error situation. Preventing him from falling is very important.
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i had a stroke in 2000/2001 and have been bothered with dizzyness, depresstion, bother with eye sight, sleeping some weeks for more than 12 hours a day then not sleeping at all for weeks then sleeping normal for a while ,sometime lack of consentration , lethargic ect docs have me on vertigo pills which help some time but i only take them when i feel really bad .
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Dizziness following CVA there may be an issue with the vestibular system and the visual system, these two areas and the brain must be a to process input stimuli properly from the environment, Otherwise there will be a feeling of motion sickness, dizziness, nausea a sense of unbalance not feeling grounded within ones environment. Locate a therapist who has vestibular and balance certification.
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My wife is 56 and had an intracranial Hemerrhagic stroke 2.6 years ago and although is slowly getting her mobility in her left leg, she was not dizzy for the first 8 months after her stroke.  Now, she gets dizzy every time she sits up or stands up.  We have asked doctors and no one seems to know what is wrong.  Even Healthsouth, desert canyon rehabilitation center in Las Vegas, which is suppose have expert knowledge of this type of issue had no clue.  They said balance and dizziness will go away after time.  She was going to this facility for nine months out of pocket payments.  She only started moving her leg and walked with assistance after they kicked us out for complaining that nothing was improving.

 

Has anyone found anything since the initial posting?  We are told that laying down too much is a cause of the dizziness, but that is not true.  My wife sits down so much more now then ever and she is still dizzy. 

 

I can offer this.  Anyone that needs help with excersizes or what to do after a stroke such as mobility issues, please ask.  I feel that I am an expert at this stage of the game.  Nothing was on the net two years ago.  I want to offer anyone assistance if they need it

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my husband had a stroke in 2004. said he could never walk again etc. but he beat the odds and can manage to walk, now like a crab these days but gets there! has total left hand neglect, ie does see anything on his left. now getting regular light headiness/dizzy spells. cannot move left side. the dead arm moves out on its own almost as if to balance him?, brain does not seem to react to instruction, ie turn to right. having tests for ear infection and has been on anitibiotics and now awaiting ear scan. he said tonight he feels it is do with his brain. Please advise if anyone else has the same symtoms as we really dont know where to go from here. scan done and said to to no further stroke/brain damage. ANY reply would be appreciated as my husbands carer, I am out of my mind and not well myself. He is 68 and I am 62.
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