In reply to all of you who have had or will be having a spinal fusion...you are absolutely NOT alone! I too know that the only way I have survived thru all my surgeries is by using prayer, and the support I received from God, and Jesus Christ.
Diagnosed in school with scoliosis at age 10, I am now 56 years old, and survived 18+ surgeries to correct my double curve idiopathic scoliosis greater than 55 degrees.
My largest surgery by far was 3 years ago. One of the top surgeons in this area (Buffalo, NY) performed a 14 hour surgery, followed by 2 days in ICU, and then a week in the hospital in order to fuse my entire spine from C1 (base of my brain) straight down all the way to my pelvis (hips) . He used 2 full length Harrington rods, along with 46 screws, several plates, cages, and misc. wires. Fast forward to today, and I am still in severe pain, living on pain meds, unable to work since 2007, and living on disability benefits. Currently I am awaiting the results of a few x-rays, and CT scans, hoping they will discover the source of my pain. Do I regret the surgery? Absolutely not! I could not continue the way I was, leaning to the left, bent over, barely able to walk, and of course in pain. Initially I felt better, but for some unknown reason I recently started having increased pain a few months ago. Were it not for the love of my caring, devoted husband, as well as the strength received from God, I would never have gotten through any of it.
So, everyone out there considering a fusion surgery, please give it a try. You are stronger than you could ever imagine, and your faith and your family and friends will all be there to support you. If I can ever be of any help to anyone out there considering a fusion surgery , by answering questions, as a sense of strength, or just need someone to listen and sympathize, do not hesitate to contact me thru this site. I pray for all of you suffering from scoliosis, trying to decide what to do next, and in need of a sympathetic ear, I am here. I want to give back to others in a similar situation, as so many people have done for me. I wish you all the courage and strength you will be needing to accept your next step on the long road back to trying to feel better. May God bless.
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Im finding life so hard, I have 4 kids, a 3 storey house, a dog and im a clinical leader on intensive care trying to work through the pandemic.
Im literally sending pleading emails to my surgeons secretary begging for help. He said my scan look great but has acknowledged that im not. I've recently had an MRI sequence on my hip so waiting for the results of that now.
I have never felt so low or debilitated. I dont know what to do.
Has anyone ever had the metal work removed and found that improved any pain source? I am at my wits end now
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Im finding life so hard, I have 4 kids, a 3 storey house, a dog and im a clinical leader on intensive care trying to work through the pandemic.
Im literally sending pleading emails to my surgeons secretary begging for help. He said my scan look great but has acknowledged that im not. I've recently had an MRI sequence on my hip so waiting for the results of that now.
I have never felt so low or debilitated. I dont know what to do.
Has anyone ever had the metal work removed and found that improved any pain source? I am at my wits end now
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