Please, I am PRAYING someone out there can help me! I am at the moment typing on my computer, barely able to sit up straight from pain and I can barely see the screen through my tears. I've been this way for the last 3 hours. Why don't I go to the ER? Because every time I have, they've run every test imaginable and yet found nothing...so I am sent away feeling as if I am crazy and a thousand dollar medical bill as well. Pain medication has no effect what so ever, not morphine, codeine, or Oxycodone...nothing.
It started about 8 years ago, one year after my gastric bypass surgery. Everyone attributed it "dumping syndrome" which I KNOW it is NOT. Then they removed my gallbladder thinking that was the source....it was NOT. I've had exploratory surgery to see if it is a physical abnormality...all was normal. It has progressively gotten worse over the years and once I had a set of twins 7 months ago it has since exacerbated beyond belief.
My pain can begin with ONE simple bite of food...makes no difference as to WHAT kind of food it is (apple, noodle, meat, bread, vegetables)....the only thing that has NEVER started the pain up has been candy or chips! I could usually tell to STOP eating when the pain occurs within the 1st few bites but now I can finish my meal and it comes on towards the end. So I'm up a creek with no warning...
It starts with a knife stabbing me right at the belly button. As it progresses the knife is still jammed in my gut but now it feels as if someone is taking that knife and twisting my guts around it. At this point, often times, the pain is so excruciating I am begging my husband to kill me, and I am completely serious. Rhythmically the knife will twist and untwist lasting for hours....during the "untwisted" moments I can manage to stand or sit upright but during the "twisting" I cannot move from my fetal position and I'm usually screaming into a pillow as not to scare my 4 children (all under 5 years old). When the episode is over I feel as if someone has punched me over and over again and I am tender for hours.
Ironically as stated before, candy and chips have never hurt me like this so I have been living the last 7 months since the twins were born on these kinds of food...putting on a substantial amount of weight.
I saw a NEW gastroenterologist (for the umpteenth time) and he thinks I may have "visceral hypersensitivity". He prescribed me some meds that will take up to 3 months to work (IF it's actually what I have). I am at my wits end. This is severely affecting my life, my husband (who feels so helpless while I am screaming in pain) and my children (who are the ONLY reason I HAVEN'T run an actual knife into my abdomen just so the doctors would be FORCED to look closer at my guts). It's unpredictable as to WHEN it may happen...amounts/types of food have nothing to do with it but it IS the trigger. I am experiencing 1-5 episodes a week.
Does ANYONE have anything that may help me???? I can't take this any longer. I'm ready to beg the doctor to just remove as much intestine as they can ...even if I end up with a feeding tube for nutrition...at least I would be able to take care of my kids!!!!
I'm not trying to sound dramatic....and I'm not exaggerating in any way. I've mowed the lawn with a herniated disc, walked a mile home with a cracked bone in my foot and given birth natural with NO drugs to all my kids (except the twins, but not by choice). I would trade THOSE pains any day of the week. :(
Any help at all would be much appreciated!!!!!
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