Thank you. I have been living w/ these symptoms for over a year. Antidepressants...that's not the way I present. And I do have the support of a therapist on my team who is very aware of this. It gets worse, and some days, I just can barely sit here to type. My team is finally on it...as the focus has been on back surgery and crps ii. These are under control. My background is in education, and almost all family members were in the medical profession. Appreciate your words. I am still not convinced it's not some sort of lupis....in addition, I was in the ER ...about a week later, I had three mri's w/ and w/o contrast on my back and brain. The radiologist picked up that calcification was found, and could likely be in her kidney. While I have,, now, aggravated and left kidney pain, it is not extreme. I typically do not write on boards, but I found all comments to be interesting. Stay mindful and in peace, all, as much as possible. ....but don't give up. Last, I do have a great team of doctors, less my GP....this was where I recently discovered they were not paying attention to my labs and incorrect dx of R.A. that has been in my file for over a yr. Meaning, if something does not seem right or ignored- wouldn't suggest trying to thoroughly research your medical problem on your own unless you are in the field or adept in that kind of research, but do pay attention, proactive, talk to your med professional if you have one you trust.
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Hi, any chance this is FCAS? I have been reading a lot about it because of my daughter, it happens to her late summer as the colder days are starting and she gets a slight rash, dizziness, light headed and a general feeling of being unwell. I have seen doctor but until I put her rash together with winter it didn't make sense.
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I have read the symptoms on the messages below and it sounds like Typhoid Fever. It's more common during summer but can happen anytime. Tell your doctors to run a test for it. It's easily cured with antibiotics. :) Hope it helps.
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Donna- how did the obtain specimen to test for these organisms? Blood?
Thanks
Jennifer
Thanks
Jennifer
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My son is 14 Type 1 diabetic and he has all these symptoms. He has been getting them off and on for about 6 years. He got so ill that he is now on home and hospital for the second time. He was diagnosed with Gastroparesis and then re tested and was withing normal range. He does not have celiacs he does not have arsenic poisoning he does not have bacterial overgrowth. That is as far as we have gotten... I am lost. Not sure what to try next
They put him on anti depressants at one point it did nothing anti anxiety did nothing. He also gets migraines and we do chiropractic for that he seems to not get that so much now.
I spoke to a lady who swears by stem cell therapy using her own stem cells she goes to some website but it looks like a scam, so I just don't know. Interesting to see how many people have the same sort of thing. I am so sorry you are all suffering with it too.
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Hi Donna where did you find this Physician? I would be interested in talking to him/her & did you recover?
Regards
Judy
Regards
Judy
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This is the first I've read of this,tearing up that maybe someone finnaly knows., I've been disabled with this since 1998, I had MRSA in 2005 got somewhat bettter and relapsed (my belief) 6 months later, treatment for it seemed to give the only long term relief ,lasting from lasting 8 months then the symtoms came back.,cannot thank you enough.Gratefully Sarah
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Realizing not everyone is the same and having symtoms since Nov. 1998 to the point of disability . In 2008 I moved here to Wisconsin ,and well water no more Fluride so I the symtoms in my case are caused by something else ,,as well also Fluride doesn't explain the August relapse of acute symtoms yearly.
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I know your post is quite old but I was wondering how you were able to test for black mold in your home and how you knew your symptoms are linked to black mold toxicity. For years I've had nausea, dizziness and general fatigue. I realized if I took reactine daily, my symptoms improved. I have been living in the same apartment for 7 years now. It is an older building. The first 3 or 4 years I had an older man living above me who regularly flooded his apartment. Over time the ceiling in my living room/kitchen has increasingly warped and is starting to crack. The last 2&1/2 years I have been unemployed due to depression so this means I am at home most of my time. With this my symptoms have worsened to the point that the reactine is not helping. I have a known allergy to mold spores too, as well as others. I have recently put this all together and suspected that I may be living in an apartment that has black mold. I would like to look into it further by testing for it.
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Home Depot carries a do-it-yourself mold-testing kit for about $10. The PRO-LAB Mold Test Kit is designed for Do-it-Yourself use with reliable results as it uses the same sampling methods that are used by professional mold testers ...
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Is it possible that you are an alocoholic? My Dad was an alcoholic and he faked all kinds of medical conditions. Lay off the moonshine and you will feel better. Also, I used to work for the Job Centre - a state organisation giving money to the work shy and some other people. Many Jobseekers would manufacture untestable medical conditions, so they didn't have to work. The funny thing was that it was all untestable stuff: lupus, chronic fatigue, ME, back problems and, the classic "the doctor has diagnosed me as suffering from stress and depression". Your condition sounds like genuine alcoholism but I just want to express how angry it makes me to here all the replies with idiots hanging in about their untestable "diseases", for attention and/or cash.
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