I am looking to have a repair. I want to have another baby before i do though, being that they say you should only have a c-section after you have a repair. I found two doctors in georgia who have a very high success rate! Dr. Miklos and Dr. Robert D. Moore. if anyone wants to look into them or if anyone has used them PLEASE PLEASE let me know! its so horrible to live with this and even harder that NO ONE around me understands:(
As many of the women here, I have had an RVF for nearly 17 years. It's painful and very embarrassing. I sometimes felt as if I were the only one. I have had seven surgeries and a Colostomy, but I had it removed. I got it during child birth I'm 4ft 11in tall and when I became pregnant only weighed 94 lbs, my daughter weighed 8lbs and for me that was a large child. I have suffered many issues from this and it totally turned my life upside down. I went through a surgery also where the cut my labia on the left side in half and tried to insert it over the whole to repair it also.
I strongly advise against that. Not only did it fail but, now I have severe pain on the left side of my lady parts. To top it off I have IBS and have to take 9 to 12 anti diarreha pills a day. Some days I can't even leave the house. I have gotten gang green and had to have an IV at home and hook it to myself every 3 hours it is just plain miserable.
I hate to hear of all you ladies with this issue but, it's nice to hear others speak out loud about it. I feel like I have no one to talk to about the issue. My husband is very understanding and so is my family and friends, but unless you have the problem I don't think they just FULLY understand what you go through. I just hope and pray that my daughters don't go through the same problem when they have children.
Maybe one day the will figure out a way to prevent or actually correctly repair this apparent epidemic.
IAM REETA BHUJEL I AHVE DONE RECTO VIGINAL FESTULA SUERGERY 5 TIMES BUT NOW IAM WELL N FINE , SO I HAVE 1 PROBLAME IN MY MENTURATION CYCLE , IT HAPPEND LIKE I GOT MENTURATION LIKE THICK BLACE BLOOT LIKE 3 OR 6 DAYS AND IT LOST,FOR 5OR 6 DAYS AND AGAIN IT COUNTINUED LIKE NORMAL BLEEDING TILL 20 OR 23 DAYS , SO I HAVE BEEN TAKEING NITHING LIKE PILLS , SO I WANT BABY BUT IT NEVER SUCCEDED . SO I WANT TO KNOW DO I HAVE MORE BABY AGAIN ?
THANKS MANDY
THANKS MANDY
guest wrote:
I developed a RVF within a week of the birth of my son in April 2008. The surgeon I was referred to said to wait to see if it healed on it's own. So we waited 6 months - it healed all but the size of a pencil eraser. In Sept 2008 he performed surgery using a "plug" made of skin. It seemed to take - my follow up appointments went well - but by Feb of 2009 the gas started again and when I had soft stool it passed through. When I went back in all I was told is "that sometimes happens and we can try it again". Now who wants to hear that after paying $10,000 in bills and feeling like I went through labor again. My son is now 3. I can probably count on both hands the number of times that my husband and I have had intercourse since this all started. He is loosing patience with my lack of desire and mood swings. He just doesn't seem to understand. If sex actually felt good I might do it but it either has no feeling or hurts. Last year at my annual my OB said that it wouldn't affect a future pregnancy but he would definately suggest a c-section. He didn't think that they would be able to do another repair at that time - so that means 2 surgeries! I think that I would like to have another child, but am terrified of the thought of going through all this again. I'm wondering if anyone else has had a repair then had a natural birth or c-section and did you have problems the 2nd time around. I live in Central Illinois and am not very satisfied with the surgeon I went to the first time. If you are from the Peoria-Bloomington area could you let me know who your doctor was. The male doctors just don't seem to have a lot of sympathy or understanding. I'm considering going to a female for a second opinion.
wow i have been searching for someone who can relate to me for some time now my name is mandy i am 23 years old and i gave birth to my first child a beautiful baby girl march 10 of 2011 she weighed 7 15 it was a easy delivery which is why i cant seem to understand why i am having these problems i also have a RVF we discovered it 7 days after coming home from the hospital with my daughter .I had a surgery on the 18 of march to try and repair it it worked for a couple of weeks then broke through :( saddend by this i went back to the same doc that had dilivered my baby and she then did another surgery it failed as well she told me that maybe i needed to go see someone who worked in this field which i think they should have sent me to someone who had delt with this same kinda thing before .Now i will never know if would have worked the 1rst time or not i had another surgery the 26th of July and it has also failed i feel like im never gonna be fixed ive about lost hope and all patience for my problem i feel really bad most the time my daughter is now 5 months old and i feel like i have missed out on so much already because im either depressed or not feeling well i also have went to a lawyer about mal practice because the doc that delivered my child had no buissness messing or doing my surgery on my RVF they should have sent me some were and i might could have already been healed now i will never know i also filed for disibilty because i cant go back to work with this problem i am to embarrassed and when air passes through the wrong way its loud and theres nothing i can do to stop it i have one friend that i talk to about this vicky is her name she has really been a help to me specially when im just having a bad day n need someone who can relate but like she and my doc has said you dont see many good storeys about people getting fixed from this simply because they dont come to these sights or get involved after they are fixed they try and live a normal life once again withought trying to worrie over this .Anyways im sure glad i found more woman just like me most sights they have chrons and more things that resulted to the RVF my was simply giving birth i hope everyone heals well and can get better from this i dont know what my next step is but i hope its the last one
THANKS MANDY
ok people i havent written in months had my martius flap fix done in oct of 2010 after 26 yrs and 4 children. well it is still successfull.... but still scarey everytime you get that feeling to have a bm. but so far it is all holding. My advise wait till you have had all your children.. then have the fix... each failed attempt will lower you chances of success. Go only to a colorectal surgeon NO ONE ELSE. make sure he a patient person and a kind person. and has experience... Good lord this is a difficult thing to deal with and i sympathize with all of you. Been there done that for 26 years... I most likley will not be logging in again as my life has taken on many other chaotic turns.... But I want people to have hope it can be fixed the 1st time. but be very selective about your dr. choice.... have hope even p to 3-4 weeks post op i had gas and stool come out ( much smaller amt than before) but it did finally heal.... Good luck to any and all
NEWMOMMY2011 wrote:
guest wrote:
I developed a RVF within a week of the birth of my son in April 2008. The surgeon I was referred to said to wait to see if it healed on it's own. So we waited 6 months - it healed all but the size of a pencil eraser. In Sept 2008 he performed surgery using a "plug" made of skin. It seemed to take - my follow up appointments went well - but by Feb of 2009 the gas started again and when I had soft stool it passed through. When I went back in all I was told is "that sometimes happens and we can try it again". Now who wants to hear that after paying $10,000 in bills and feeling like I went through labor again. My son is now 3. I can probably count on both hands the number of times that my husband and I have had intercourse since this all started. He is loosing patience with my lack of desire and mood swings. He just doesn't seem to understand. If sex actually felt good I might do it but it either has no feeling or hurts. Last year at my annual my OB said that it wouldn't affect a future pregnancy but he would definately suggest a c-section. He didn't think that they would be able to do another repair at that time - so that means 2 surgeries! I think that I would like to have another child, but am terrified of the thought of going through all this again. I'm wondering if anyone else has had a repair then had a natural birth or c-section and did you have problems the 2nd time around. I live in Central Illinois and am not very satisfied with the surgeon I went to the first time. If you are from the Peoria-Bloomington area could you let me know who your doctor was. The male doctors just don't seem to have a lot of sympathy or understanding. I'm considering going to a female for a second opinion.
wow i have been searching for someone who can relate to me for some time now my name is mandy i am 23 years old and i gave birth to my first child a beautiful baby girl march 10 of 2011 she weighed 7 15 it was a easy delivery which is why i cant seem to understand why i am having these problems i also have a RVF we discovered it 7 days after coming home from the hospital with my daughter .I had a surgery on the 18 of march to try and repair it it worked for a couple of weeks then broke through :( saddend by this i went back to the same doc that had dilivered my baby and she then did another surgery it failed as well she told me that maybe i needed to go see someone who worked in this field which i think they should have sent me to someone who had delt with this same kinda thing before .Now i will never know if would have worked the 1rst time or not i had another surgery the 26th of July and it has also failed i feel like im never gonna be fixed ive about lost hope and all patience for my problem i feel really bad most the time my daughter is now 5 months old and i feel like i have missed out on so much already because im either depressed or not feeling well i also have went to a lawyer about mal practice because the doc that delivered my child had no buissness messing or doing my surgery on my RVF they should have sent me some were and i might could have already been healed now i will never know i also filed for disibilty because i cant go back to work with this problem i am to embarrassed and when air passes through the wrong way its loud and theres nothing i can do to stop it i have one friend that i talk to about this vicky is her name she has really been a help to me specially when im just having a bad day n need someone who can relate but like she and my doc has said you dont see many good storeys about people getting fixed from this simply because they dont come to these sights or get involved after they are fixed they try and live a normal life once again withought trying to worrie over this .Anyways im sure glad i found more woman just like me most sights they have chrons and more things that resulted to the RVF my was simply giving birth i hope everyone heals well and can get better from this i dont know what my next step is but i hope its the last one
THANKS MANDY
ok people i havent written in months had my martius flap fix done in oct of 2010 after 26 yrs and 4 children. well it is still successfull.... but still scarey everytime you get that feeling to have a bm. but so far it is all holding. My advise wait till you have had all your children.. then have the fix... each failed attempt will lower you chances of success. Go only to a colorectal surgeon NO ONE ELSE. make sure he a patient person and a kind person. and has experience... Good lord this is a difficult thing to deal with and i sympathize with all of you. Been there done that for 26 years... I most likley will not be logging in again as my life has taken on many other chaotic turns.... But I want people to have hope it can be fixed the 1st time. but be very selective about your dr. choice.... have hope even p to 3-4 weeks post op i had gas and stool come out ( much smaller amt than before) but it did finally heal.... Good luck to any and all
Hello There - I am in the same boat. My son is now 3 and I still don't have a earning to have sex either. It is sad. It hurts and I wince when we begin. It doesn't seem fair that this happened to us. I feel the same way. I think it brought on post partum and all I can think of is trying to do this again so i can see why everyone else enjoyed thier newborn. I felt so gross and non human...first of all my body was not the same as it was before, then to have this wierd thing happen. Just scary. I had a repair done 2 weeks after having my little guy. I still 3 yrs later can sense some air go through occationally and don't dare to investigate if stool is slipping through now and then. I think it is and quickly try to distract myself. I don't think I can mentally handle knowing this is still not right. It is good (sort of) to see we are not alone. 3 yrs ago I came on this sight and NOBODY was positive about thier outcome so I come on here now and then to let everyone know my surgury was 98% good and years later pretty good. A long way from where I was and it was absolutely like having another child going through that procedure. As if giving an awful birth was not enough, to have to go through this weeks later w/a newborn, etc. AAGH> I shuddered at the thought of having another child.
I have to say, i woudl 100% go c-section. I believe you put yourself at risk for trying to go naturally. Though I see people do that hear, i just don't see how that is a viable option....Good luck to everyone and it is so good to see so many women stickign together. Keep positive everyone!!!!!
Hello all,
I'm checking back in. I've had another surgery and so far so good. My 2nd surgery was Aug 19th 2011. It is now November 1st 2011 and no reoccurances so far - fingers crossed!! - maybe I'm fixed!! I went to a different surgeon and he was very thorough. He discussed the options with me and together we decided the best approach was a rectal advancement flap. By no means was this a picnic. I was very sore. He went in through the rectum so i had a bruise the size of a dinner plate on my bottom. He cut tissue inside my rectum and made a flap over the fisula. Think of seperating the 2 layers of a kleenex then stretching one out and reattaching it. I couldn't sit flat for 3 weeks. But so far it seems to be working. No gas, no stool. I haven't tried sex yet but hopefully it will be more like before my delivery and won't hurt. Best wishes to all who still live with this condition every day. My best advice is if you have the resources (insurance benefits) and the support system to get this done I would say it is worth it. After 3 years of embarrasment from passing gas in front of people with no control, staying home when you have an upset stomach and running "literly" to the bathroom when you get the urge to go. I still smile and giggle inside when I pass gas and it comes out where it is supposed to. Sounds kind of funny but I'm sure you ladies can relate. Never thought that I would be so happy to be able to control normal bodily functions at 34 years old. Best of luck to you all. I'll check back in from time to time.