Hi Martin,i have alot on the forehead maybe 50 at about 1 to 2 mm.Are the results really good with co2 on the face,ive heard mixed reports about
scaring and pigmentation problems.also i was told that the co2 laser cuts
the skin to remove the cyst is it true?
scaring and pigmentation problems.also i was told that the co2 laser cuts
the skin to remove the cyst is it true?
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Hi folks, especially to my fellow Singaporean comrades…
I’m in my mid 20s. Got diagnosed with this ill-fated condition few years back.
Been to the National Skin Centre aka NSC a few times already. For me, it’s fast becoming something like an installment you got to pay every 2-3 months. What they are doing for me now is to cut up the smaller ones on my arms and neck (visible ones) and then squeeze the c**p out.
When enough new ones develop for me to hate myself enough, I’ll pay my installments. It costs around S$250 for around 10+ removed each time…
Aint Singapore aspiring to become some sort of medical hub? With all the talk about the laser treatments going around, a senior consultant at NSC actually told me that they do not have any of those laser treatments around… it’s NATIONAL skin centre yah?
Does anyone know whether such laser treatments are available anywhere in Singapore? Please share with your fellow ill-fated folks around… >__<
Speaking just a teeny weeny bit about the psychological effects of SM…
Since it has started to get quite bad (in the tens to a hundred on the chest and then some on the arms and neck), I have to come to terms with the fact that I probably have to spend the rest of my life alone. Cause trust me, even if you are able to hide it from your gf/bf at first, it’s emotionally painful when you have to come out in the open about your condition to him/her. Even if he/she says that they can live with it, you will constantly be gripped with the pressure of thoughts such as “Since I love her, given my condition, I will not be what is the best for her, shouldn’t I leave her”…
I reckon that to avoid this emotional trauma, I better accept this harsh reality of life sooner… Of course this is easier said than done. Many a time, when I am lying on my bed trying to sleep and this predicament comes to mind, it really sinks me to the abyss of God Knows Where… Haiz… I think the gist of this c**p really lies in the psychological department…
I’m in my mid 20s. Got diagnosed with this ill-fated condition few years back.
Been to the National Skin Centre aka NSC a few times already. For me, it’s fast becoming something like an installment you got to pay every 2-3 months. What they are doing for me now is to cut up the smaller ones on my arms and neck (visible ones) and then squeeze the c**p out.
When enough new ones develop for me to hate myself enough, I’ll pay my installments. It costs around S$250 for around 10+ removed each time…
Aint Singapore aspiring to become some sort of medical hub? With all the talk about the laser treatments going around, a senior consultant at NSC actually told me that they do not have any of those laser treatments around… it’s NATIONAL skin centre yah?
Does anyone know whether such laser treatments are available anywhere in Singapore? Please share with your fellow ill-fated folks around… >__<
Speaking just a teeny weeny bit about the psychological effects of SM…
Since it has started to get quite bad (in the tens to a hundred on the chest and then some on the arms and neck), I have to come to terms with the fact that I probably have to spend the rest of my life alone. Cause trust me, even if you are able to hide it from your gf/bf at first, it’s emotionally painful when you have to come out in the open about your condition to him/her. Even if he/she says that they can live with it, you will constantly be gripped with the pressure of thoughts such as “Since I love her, given my condition, I will not be what is the best for her, shouldn’t I leave her”…
I reckon that to avoid this emotional trauma, I better accept this harsh reality of life sooner… Of course this is easier said than done. Many a time, when I am lying on my bed trying to sleep and this predicament comes to mind, it really sinks me to the abyss of God Knows Where… Haiz… I think the gist of this c**p really lies in the psychological department…
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Hi All,
I was diagnosed with SM beginning this year, after I read on it and learned more about it I was absolutely shocked that theres now cure and sufficent treatment for it....Even though it started developing when I started puberty around 13. Mine started out as huge nodule like pimples that would form on my chest. I also had alot of little fine bumps on my chest and face that resemble measles. The nodules on my chest were painful then theyd erupt over time like a pimple would. I just thought that I had a very bad acne problem and so did the id**t doctors. I even had a small cyst on my wrist that at 13 I really didnt know what the heck a cyst was so I just ignored it. I also had them under my underarm which I was told may had been caused by my deodorant. I actually popped the ones under my arm and they never grew back! Though I still do have one under my arm that Im leaving alone.. now that im more educated on this condition.
All of my cysts are mainly on my chest, Ive been blessed that I dont have alot of them on my chest and body like others may have but I am still affected the same physically, emotionally and mentally. I have had several cysts removed from my chest this year which left some ugly scarring from the stitches. Im a brown skinned African Amer. so scars are more visible than lighter tones. I dont reccomend surgical cyst removal to anyone with this condition. If I had known it would be healed this way I would have chosen to have them drained instead being that they may still grow back if removed improperly.
The dermos in the past have all seem to be very nonchalant of the SM condition....Im only 25 years old, my dermo scared me when she told me Id have to go to genetic counseling If I had planned to have children someday. She told me that in a very uncompassionate way and it seemed she didnt care at all. It seems like alot of the dermotologist arent eager to help you because they dont know what to do, and since they arent dealing with the disease, so there like just live with it. Its like they just completely dont have any answers at all and thats the most stressful part. I understand that this is something that is heriditary but I believe God controls the fate of that.
I live in America, and you dont see or hear about too many cases of this rare disease. I believe those who do have it here hide it and just deal with it which is why there hasnt been any eagerness for doctors to find a simple treatment for something as simple as a lump of fatty cells under the skin.
My goal is to get enough money or fame oneday where I can bring this disease to the attention of the world at large for those of us suffering with this condition.
In response to all the negative comments made on this page, you guys all need to maintain a positive energy for eachother because its enough negativity in the world as it is. Things could be alot worse. There is some kind of treatment out there for SM , we just have to keep searching. My advice to everyone until there is an actual treatment is to take great care of you body, dont drink and smoke, excersise regularly and eat healthy!
Id also like to know if anyone has had a draining procedure for their multiple cysts and how effective is it? Does it leave scars? and since its considered a cosmetic skin condition would insurance cover draining?
Thanks
I was diagnosed with SM beginning this year, after I read on it and learned more about it I was absolutely shocked that theres now cure and sufficent treatment for it....Even though it started developing when I started puberty around 13. Mine started out as huge nodule like pimples that would form on my chest. I also had alot of little fine bumps on my chest and face that resemble measles. The nodules on my chest were painful then theyd erupt over time like a pimple would. I just thought that I had a very bad acne problem and so did the id**t doctors. I even had a small cyst on my wrist that at 13 I really didnt know what the heck a cyst was so I just ignored it. I also had them under my underarm which I was told may had been caused by my deodorant. I actually popped the ones under my arm and they never grew back! Though I still do have one under my arm that Im leaving alone.. now that im more educated on this condition.
All of my cysts are mainly on my chest, Ive been blessed that I dont have alot of them on my chest and body like others may have but I am still affected the same physically, emotionally and mentally. I have had several cysts removed from my chest this year which left some ugly scarring from the stitches. Im a brown skinned African Amer. so scars are more visible than lighter tones. I dont reccomend surgical cyst removal to anyone with this condition. If I had known it would be healed this way I would have chosen to have them drained instead being that they may still grow back if removed improperly.
The dermos in the past have all seem to be very nonchalant of the SM condition....Im only 25 years old, my dermo scared me when she told me Id have to go to genetic counseling If I had planned to have children someday. She told me that in a very uncompassionate way and it seemed she didnt care at all. It seems like alot of the dermotologist arent eager to help you because they dont know what to do, and since they arent dealing with the disease, so there like just live with it. Its like they just completely dont have any answers at all and thats the most stressful part. I understand that this is something that is heriditary but I believe God controls the fate of that.
I live in America, and you dont see or hear about too many cases of this rare disease. I believe those who do have it here hide it and just deal with it which is why there hasnt been any eagerness for doctors to find a simple treatment for something as simple as a lump of fatty cells under the skin.
My goal is to get enough money or fame oneday where I can bring this disease to the attention of the world at large for those of us suffering with this condition.
In response to all the negative comments made on this page, you guys all need to maintain a positive energy for eachother because its enough negativity in the world as it is. Things could be alot worse. There is some kind of treatment out there for SM , we just have to keep searching. My advice to everyone until there is an actual treatment is to take great care of you body, dont drink and smoke, excersise regularly and eat healthy!
Id also like to know if anyone has had a draining procedure for their multiple cysts and how effective is it? Does it leave scars? and since its considered a cosmetic skin condition would insurance cover draining?
Thanks
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Dont worry bro, you arent the only one suffering from it. Learn to accept it as part of your life. The question I pondered for a long time is if you have gf who eventually become your wife some day, assuming she doenst mind SM as its not life threatening or contagious, have you considered if that it is possibly hereditary and your kids might get it as well?
We are one of the lucky ones to get it. haaa. what a joke. I went for a treatment once at NSC a couple of years back. All they could do was to use the needles to poke n express it out. It may appear again at the same spot of new spots appear elsewhere. The spot if you leave it to heal by itself doenst leave much of a scar. Do not try to express it out yourself any further as it will damage the tissue which results in a darker scar. I took more fish to assist in the healing.
And yes, they are still around though less visible now. I noticed that if you leave it for too long, it hardens and will be tough to remove. I have not tried any other medications except to eat less oily food and drink more water.
I didnt pay as much as you did perhaps becos i visited a poly clinic first and eventually was paying at the subsidized rate. Go check it out.
Best of luck to your life and live life as it is. Nobody will bother and nobody can help. We can only help ourselves~
We are one of the lucky ones to get it. haaa. what a joke. I went for a treatment once at NSC a couple of years back. All they could do was to use the needles to poke n express it out. It may appear again at the same spot of new spots appear elsewhere. The spot if you leave it to heal by itself doenst leave much of a scar. Do not try to express it out yourself any further as it will damage the tissue which results in a darker scar. I took more fish to assist in the healing.
And yes, they are still around though less visible now. I noticed that if you leave it for too long, it hardens and will be tough to remove. I have not tried any other medications except to eat less oily food and drink more water.
I didnt pay as much as you did perhaps becos i visited a poly clinic first and eventually was paying at the subsidized rate. Go check it out.
Best of luck to your life and live life as it is. Nobody will bother and nobody can help. We can only help ourselves~
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Hello to all the recent newcomers. I'm not sure if you've all read back to my first postings, but I live in Manchester, England and I have regular treatments with CO2 laser at a local leading dermatology hospital. I saw my derm last week. I've been on Roaccutane 20mg per day for the last 12 months. My derm is hoping this will stop new cysts forming and seems to think it is working although I think at best it may be slowing the process a little. He has booked me in for more laser treatment in February 2008. Yes it does cut through the skin and he then has to dig/squeeze the contents and remove the sac but it does heal pretty much without scarring. If I left the dressings on for as long as I am supposed to ie about 2 weeks, then there would be no scars at all, but after a few days I become allergic to the sticky tape and cannot tolerate them so end up removing them and letting them scab over which leaves a tiny white mark on some (not all). The treatment here is free although he has commented on the cost and may decide not to treat me indefinitely (although he has now been doing this procedure one or twice a year for the past 6 years or so). I am now 36 years old and have 2 daughters aged 7 and 8. I am starting to seriously panic about the chances of having passed this onto them. I am always looking for that first lump and it breaks my heart. I am praying to God that my SM is a sporadic case as none of my family have it and it may not be a hereditary case. Do all of you have family members with it? I mentioned this to my derm last week and he has now referred me to another hospital for genetic counselling. Not sure what they'll do exactly. I know the chances are 50/50 but they might be able to tell me if I have the inherited type (which for those of you who don't know is a genetic mutation of the Keratin 17 gene). Keep in touch.
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I'll try to make a web page that we'll call Steatocystoma club.What do you think about it? It think we have to fight for us and most of all we have to find the solutions for our children!!!!!!!!!!!!!!!!!!!
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Hi people!
As you can guess I also have SM. I have multiple cysts on my chest, neck and forehead, that mean a lot. My father has it, my grandfather had, and a few more members of my family has this disease. So I can say that I've seen many different types of SM. The truth is that there isn't any cure for this disease. I'm a young scientist(chemist) and I believe that there must be a solution.
About the treatment:
Now I'm on 0.7 mg/kg Roaccutane therapy, my dermatologist(who God by himself sent to me :)) gave me that. It will slow the growth of the cyst for a time. We are also making incisions, small cut with a scalpel, then she squeeze and with a thin pin(needle) she drags the whole capsule out. The other method is that she put in the cyst a wire and through that wire goes strong electricity. That coagulates the content inside cyst and then she squeeze it(this is good for smaller ones). She said that in a year all of them will be out and it'll be ok. I don't have scars, maybe a little little ones. Some of my cysts on my neck have 7 mm diameter.
Guys I would very much like if we could make our own club where we could share informations about this. I was very happy when I found this forum: It's easier when you met people who have the same problem like you do, and psychological and other problems.
I think that SM- guys and girls should live healthy, I think that essential acids are good for us, healthy food and lot of water could slow down the growth. We can experiment and share the results and it could help us!!!:)
***** and we can communicate through this
**edited by moderator**
As you can guess I also have SM. I have multiple cysts on my chest, neck and forehead, that mean a lot. My father has it, my grandfather had, and a few more members of my family has this disease. So I can say that I've seen many different types of SM. The truth is that there isn't any cure for this disease. I'm a young scientist(chemist) and I believe that there must be a solution.
About the treatment:
Now I'm on 0.7 mg/kg Roaccutane therapy, my dermatologist(who God by himself sent to me :)) gave me that. It will slow the growth of the cyst for a time. We are also making incisions, small cut with a scalpel, then she squeeze and with a thin pin(needle) she drags the whole capsule out. The other method is that she put in the cyst a wire and through that wire goes strong electricity. That coagulates the content inside cyst and then she squeeze it(this is good for smaller ones). She said that in a year all of them will be out and it'll be ok. I don't have scars, maybe a little little ones. Some of my cysts on my neck have 7 mm diameter.
Guys I would very much like if we could make our own club where we could share informations about this. I was very happy when I found this forum: It's easier when you met people who have the same problem like you do, and psychological and other problems.
I think that SM- guys and girls should live healthy, I think that essential acids are good for us, healthy food and lot of water could slow down the growth. We can experiment and share the results and it could help us!!!:)
***** and we can communicate through this
**edited by moderator**
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Does anyone know a good doctor with SM experience in the UK, preferrably in the south east or London region at all?
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hey brams1 sorry for the late reply...
i would actually appreciate if you could share with me Dr. Anderson's information through email - I know he (or his assistant) wasn't too helpful in the first place, but if I get more information then perhaps I will try to contact him again and if all goes well hopefully report back to all of you with the results.
If you don't mind can you email me the information that you received? I tried but couldn't find your email address on this site, so the one I used to register is:
********
thanks a lot for the help it is greatly appreciated
p.s. I am currently attempting to contact another dermatology expert, and if successful i will get back to all of you with the results.
**edited by moderator**emails not allowed**
i would actually appreciate if you could share with me Dr. Anderson's information through email - I know he (or his assistant) wasn't too helpful in the first place, but if I get more information then perhaps I will try to contact him again and if all goes well hopefully report back to all of you with the results.
If you don't mind can you email me the information that you received? I tried but couldn't find your email address on this site, so the one I used to register is:
********
thanks a lot for the help it is greatly appreciated
p.s. I am currently attempting to contact another dermatology expert, and if successful i will get back to all of you with the results.
**edited by moderator**emails not allowed**
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Medseeker email me ***** and i can give you the info
Dr Anderson sent me.Also to Emilsmcro if you start a web page where we can share treatment options that would be great ,as alot of you know the ave. dermatologist isnt overly interested or compassionate about treating this condition,but it sounds like some of you are lucky enough to find a good one.
Brams
**edited by moderator**
Dr Anderson sent me.Also to Emilsmcro if you start a web page where we can share treatment options that would be great ,as alot of you know the ave. dermatologist isnt overly interested or compassionate about treating this condition,but it sounds like some of you are lucky enough to find a good one.
Brams
**edited by moderator**
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Hi guys!
I'll definitely form a web page called **** and I really hope we will communicate through it and find the solution for our problems. If anyone has a question, just ask. I have a lot of experience with SM!!!!!
:-)
Kind regards!
**edited by moderator**
I'll definitely form a web page called **** and I really hope we will communicate through it and find the solution for our problems. If anyone has a question, just ask. I have a lot of experience with SM!!!!!
:-)
Kind regards!
**edited by moderator**
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Steatocystoma multiplex with unusually prominent cysts on the face
* R. HOLMES11St Thomas' Hospital, Lambeth Palace Road, London SE1 7EH AND
* M. M. BLACK11St Thomas' Hospital, Lambeth Palace Road, London SE1 7EH
*
1St Thomas' Hospital, Lambeth Palace Road, London SE1 7EH
SUMMARY
A patient is described who had unusually large facial cysts which histologically were typical of steatocystoma multiplex. An excellent cosmetic result was obtained after plastic surgery.
Does anyone has this article, if you have please mail me to ***
**edited by moderator**
* R. HOLMES11St Thomas' Hospital, Lambeth Palace Road, London SE1 7EH AND
* M. M. BLACK11St Thomas' Hospital, Lambeth Palace Road, London SE1 7EH
*
1St Thomas' Hospital, Lambeth Palace Road, London SE1 7EH
SUMMARY
A patient is described who had unusually large facial cysts which histologically were typical of steatocystoma multiplex. An excellent cosmetic result was obtained after plastic surgery.
Does anyone has this article, if you have please mail me to ***
**edited by moderator**
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Hi All, whilst all of you appear to be very helpful in helping one another seeking solutions, do you actually realise steadyhealth.com actually deletes your contact details in particular web address and email address.
To help one another get in touch and communicate further, I suggest we leave either phone numbers or mailing address rather than emails as email address will be simply get wiped out and we are back to square one again!
Jumbo
To help one another get in touch and communicate further, I suggest we leave either phone numbers or mailing address rather than emails as email address will be simply get wiped out and we are back to square one again!
Jumbo
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To fellow SM folks in SG:
I consulted dermas in SG who have the CO2 laser equipment on the practicalities of using it to deal with the cysts.
At least two dermas have advised me that the CO2 laser leaves scars that are similar to what you get from cigarette burn marks...
Which at the end of the day means it wouldnt make you better off >_<
End of sharing. P/S: Can anyone enlighten me more about the appropriate diets that we should be having? like abstaining from oily food, i'm not so sure if eating oily food will affect SM actually...
By the way, what is it meant by "essential acids"?
I consulted dermas in SG who have the CO2 laser equipment on the practicalities of using it to deal with the cysts.
At least two dermas have advised me that the CO2 laser leaves scars that are similar to what you get from cigarette burn marks...
Which at the end of the day means it wouldnt make you better off >_<
End of sharing. P/S: Can anyone enlighten me more about the appropriate diets that we should be having? like abstaining from oily food, i'm not so sure if eating oily food will affect SM actually...
By the way, what is it meant by "essential acids"?
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Essential oil acids, when you drink them they make the fat acids very low.My dermatologist, and me too, we think that there isn't any correlation between food and the growth of cysts. It's the gen who gives the order to skin what to do and our skin does this :-):-). But I would recommend to drink essential acids to everyone because has many positive effects.....:-)
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