Steatocystoma Multiplex cause, treatment and diet for prevention

My wife's family has the disorder and my wife and I both think she has it. We have a 2 year son and was wondering if there is a test to see if he has it or not. And if he does could there be some sort of treatment we can start now to maybe prevent the cysts from developing?

Octobestorm,
That c**p that your doctor told you about having to live with it for the rest of your life is ridiculous! I have learned over the years that when doctors say things like that, it means that they don't know what the hell they are talking about! After years and years of going to different doctors who told me that I had to live with my vellus hair cyst condition, I finally found one that knew exactly how to remove them and the process for fading the marks left behind by the cysts. There are ways around everything in life and this skin condition is one of them. It just takes time and a really sharp lancet :-)

To Guest who is wondering if their 2 year old son will develop the condition - I am 37 years old and have had this condition since around 15. Wasn't diagnosed until I was about 30. Jus thought it was some sort of hormonal inbalance that was quite common. Very shocked to learn it was an extremely rare genetic disorder. I have been having carbon dioxide laser treatment for the last 5 years or so. I went for genetic counselling a few months back as none of my family have the condition. I have 2 daughters aged 8 and 9 and am obviously terrified I have passed it on. I asked about testing for the Keratin 17 gene mutation and they would not do it (I live in England). They said it would have to be done in America and the blood sample would not travel all that way in perfect condition and also it would cost around £1100 and therefore too expensive as it is not a life or death disease and and time will tell in any case whether I have passed it on. I was hoping and praying that I am a one off isolated case but the genetic counsellor said this won't be the case. I am either the first to develop the gene alteration or that one of my parents does have it but just did not develop it. We must all stick together with our ideas and research as there is no doubt that no-one else will be doing it for us.

Hi all,

I agreed we have to help ourselves to this problem,

1) Stop it from mutating / spreading within our body

2) Stop it from spreading on to our kids

However, no doctors would help us find a cure as this is non life threatening and they just see it as a cosmetic problem.

We have to create awareness around the world that there are people suffering the same condition as us. Hopefully some scienctist or researcher is kind enough to look into this area and develope a cure for it.

What do you guys think?

Wow, just made a long post as a new topic and didn't even think to see if anyone else had made a thread! Anyways, I hope someday a doctor will see an interest in this case and work to make a cure for SM/PC. Until then, I have to settle for adopting children instead of having them (which, to be frank, is MUCH better than having your own child anyways... with over-population becoming a threat to our existence!).

I suggest to everyone at this forum to visit the my space group about steatocystoma and find a way to contact zirafa(emilsmcro).
Kind regards

I am a 35 year old woman from Australia and I have SM. I inherited it from my father who got it from his mother. My cysts are very bad and all over my face and I have some on my arms. My father, uncle and Grandmother also have them all over their faces. I am yet to see someone write in saying they have it on their face too. Most people have them on their chest , neck arms and back. Are my family the only ones with SM one there faces.

I recently had a baby girl and I am terrified that she too will get SM too. It has haunted me since I was about 17.

I have seen at least 20 different doctors and tried all sorts of tablets, creams herbal treatments and acupuncture, nothing seems to work. The only thing that helps for a while is squeezing. But this is painful and often they can't be squeezed for some reason.

I recently tried laser treatment which was very painful and scarred my face. I am on a mission now to find some sort of cure or something that will help. I worry so much about my daughter may get SM and having to go through what I went through growing up.

This must be a very rare condition as I have never met anyone else with this on ther face other than my family. I often think if a skin specialist had this condition than he/ she would be driven to fine a cure.

I realize that it's not life threatening, but having people stare at you where ever you go eats away at you.

Hello everyone,

I'm new to this forum although I've read most of your posts on this topic. I was diagnosed with SM about 6 years ago by the UK health service and was told there was nothing I could do unless I was prepared to go private and be prepared to suffer irreversible scarring (they are on my chest). I did attempt to go private but ran out of money before I got treated. :( I'm from UK but now live in Germany and was thinking about trying again over here and started to research again. A Google just now turned up a new and interesting result: Apparently, something called an OSIM heating pad can be used to treat SM, or at least sebaceous cysts. As SM (as I understand it) is just another form of sebaceous cyst, I'm assuming this would work. The method seems to involve placing the pad on the affected area for 10 minutes every day for 10 days. Can it really be that simple? Does anyone know? Looking forward to your replies!


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Steatocystoma Multiplex - Cause, Treatment and Diet for Prevention

Diagnosed last month with steato multiplex. Recommend me some treatment, diet, medicine, and lifestyle changes.