Couldn't find what you looking for?

TRY OUR SEARCH!

Hi guest are you in Australia
Reply

Loading...

Hey Katie! I'm in Michigan! Where are you? I too have noticed everyone else seems to be out of country. What treatments have you tried?
Reply

Loading...

I am a 20 years old black female currently doing my 3rd year in pharmacy with the University of Limpopo in South Africa. I was diagnosed with SM at the age of 14 , my dermatologist suggested we prick the cysts and empty them one by one, I found it painful than the condition so we stopped. The cysts multiplied covering both the neck and the chest. Last year I went to a different dermatologist who tried removing them by cautery. But the cysts never stopped multiplying ... I just need a permanent solution this condition is affecting me psychologically.
Reply

Loading...

HI THERE! SAME CONDITION HERE =( DONT KNOW WHAT TO DO ANYMORE..
Reply

Loading...

I'm from Vancouver too and I'm searching for something to alleviate the itchiness and to prevent more from popping up! This past week they have been appearing like wild flies around my body. SM has been dormant but with me since my early teens and now it's becoming more aggravating. Have you found any solutions?
Reply

Loading...

Hi. I also have the same disease and I'm also a Filipina. Please keep posting about this. Mine is spreading on my chest in an alarming way.
Reply

Loading...

Hey guys I'm based in Washington DC. Native American, Swiss German and Irish but my skin is naturally very tan. I was diagnosed at the university of Michigan when I was a teenager. Cysts originally appeared on my neck than spread to my back and chest in my 20's.

This year I started getting chemical peels on my back and that has helped tremendously. Clears away old skin so nothing can get clogged.

I never did any harsh acne medications. I drink tons of water, avoid greasy foods and dairy. If I do eat dairy it's organic whole milk or yogurt or yellow cheeses. For some reason white cheeses make me break out. I also incorporate fish oil and vitamin packs in moderation and try to eat more line caught fish than other proteins.

I also puncture and excise the cysts on my neck with an 11 point blade. i do have a higher pain tolerance but once you reach the cyst there is no feeling there. I make sure I am clean, use alchol pads before and after and voila, cysts less noticeable and heals quickly. A little iodine stops infection which I've never had an issue with. If you have a family member you are comfortable with they can do this as well. I bought the supplies on amazon for about $50 total and they last a long time.

For body wash and lotion I use cetaphil or the new cetaphil for oily skin, works great.

i have able to get this more under control with a little patience and persistence. keep at it guys. And don't be afraid to puncture and excise these little guys yourself!
Reply

Loading...

Hi there. I'm a 28 year old female who is based in Virginia, very close to Washington DC. I've been struggling with SM since I was a teen. Cysts are primarily on my chest and back. I've had a few extracted by a dermatologist and they aren't as hard but they're definitely not unnoticeable. I've tried acne medications in the past to no avail. I think I will try to excise some myself and attempt to get the sac out too.

Question for anyone who has tried to remove any on their own - how are they healing? Would you mind sharing before and after pictures with me, if you have any? Also, have you been successful in removing the sac from the cysts without puncturing or traumatizing your skin too much? Dr. Pimple popper has many videos on her excisions and she often needs to give the patients a stitch per cyst.

Glad to know there's such a supportive community. It often feels like I'm alone in this experience, especially when summer time rolls around :(
Reply

Loading...

Hi Ckuo! I'm from vancouver as well. I also have the same problem! I just recently had the severe itchiness and saw many many Dermatologists. We're you able to find a place in vancouver to get them removed?
Reply

Loading...

I should mention that there is a Steatocystoma Facebook group that can be joined. However it has Spanish title "esteocistoma multiple/steatocystoma multiplex)

Reply

Loading...

I have read quite a number of the posts on this site, but not all, so may well be repeating something here. I am 65 years of age now and have had SM for as long as I can remember. I have suffered with many eruptions over the years, mostly in awkward places and the embarrassment like many of you and for me, as a competitive swimmer all my life, it was always uncomfortable and embarrassing. I am lucky not to have any on my face or legs. I have them removed when they get too much to deal with but I have removed hundreds by puncturing them with a sterilised needle without ever infecting the area or leaving a scar.

The bad news is that as you all know by now, there is no cure and you just have to live with it. One of my daughters, now 33 yo, has the worst case I have ever seen as they are everywhere. She has accepted her lot in life and doesn't care what people think or if they stare, she just moves on.

Best wishes to you all

O'Timer.

Reply

Loading...

Hey reallySad,

Im in SG as well and have had SM for 2-3 years now (I'm 21). Are you still visiting your Derma Lim Kar Seng? I plan to have it checked out as it's been growing quite noticeably on my trunk area. Is he still avail and what are his rates like?

hope for a reply, and press on guys!
Reply

Loading...

Hey, I'm from Indonesia and I got the same problem. Can you *Warning! Do not post your e mail address!*? I fight for this skin problems since I was a kid bro. Btw nice to meet you
Reply

Loading...

Hi. I have seen many dermatologist as well. Only one had been willing to do the laser and I was an id**t since I never went back and hence, moved.
I am taking accutane now and am hoping to see some results. Have you heard of anyone having any positive results?

Reply

Loading...

hi how can i contact u for more information?
Reply

Loading...