I'd like to be in touch with others who have had a total pancreatectomy. It's a bizarre condition. During one of my stints in the hospital, a nurse told me that I must have had a partial pancreatectomy because a person couldn't live without any pancreas at all. I tell people who doubt that life is compatible with a TP that you can't live well with no pancreas, but that you can live. When I consider the alternative (advanced pancreatic cancer), I guess I AM living well. Hope to hear from someone who "gets it". Would be happy to pass on any information I have gleaned from this experience to those facing this surgery. Chucha
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Hi -- not sure you even look at this site anymore, but I have been searching for someone who has been through TP and Splenectomy. Hope you are doing well. I am a 66 yr old female. Had Whipple procedure 4 yrs ago for suspected PC. Turned out to be IPMN, a precancerous condition. I am not diabetic yet...will be after this surgery, of course. Also had unrelated breast cancer at the same time. Lucky me!
I worry about being a brittle diabetic and also about fighting infections without a speen. I live alone except when taking care of my little grandson at my daughter's house 2-3 days a week.
Can you give me any additional information about your experiences since surgery? I would be very grateful. Janet
Hello...I am a 59 year old female who had a TP 9 years ago. All of my pancreas, spleen, duodenum, gallbladder, part of my small intestine, some liver bile ducts, 1/2 stomach, uterus, ovaries and appendix ALL GONE. Yes, I frequently have people (including doctors) claim I must have had a partial and like you, I offer for them to do an MRI and see there are only staples that will show up in place of the organs. I was on TPN with no food by mouth for about a year. I've had several hospitalizations with sepsis, blocks and a few other "unique" circumstances but I keep managing to pull through while giving the doc's more information on our condition. I live in Northern California and would enjoy a conversation.