Urethral Pain With No Infection

I too have had the same problem for about 4 years. I remember going to the urologist so frustrated for about the 5th time thinking "please just tell me I have herpes or kidney failure" so I could at least put a name to it. I was 20 and he said he didn't see anything and put me on over active bladder meds. They didn't work, and i noticed that the pain got worse whenever i ate sugar. After doing some research. what almost totally knocks this out has been following the "Body Ecology Diet". It is so difficult, but it works for the time you can stick to it. I was totally pain free for 3 of the 4 days i did it. Then the sugar addiction ruined the streak. The idea is eating to reduce inflammation and eating foods that promote normal pH. I am convinced this problem is tied in with making our bodies handle chemicals and food products that we aren't designed to process, and certain people are really impacted by the waste processing of this gunk.

So I've been having problems w non bacteria bladder infections for a long time off and on cipro worked for awhile...so I for one 2 months ago and the antibiotics didn't work...so I changed my diet no milk meat or sugar..then u cut our nuts to...no caffeine just water coconut water ( the real stuff look and make sure no sugar added) and camomile tea helped. Then I eat spirula coconut milk make sure it's got natural ingredients and blueberries for breakfast.. I take licorice root, I put tea tree oil directly on as well as lavender and I wanna buy camomile but it's 60 bucks...lol I just started taking d mannose as well...my symptoms are sooo much better... Oh I also take aciphodopholis, flax seed, and aloe vera juice which was great, the health food store know me well lets just say! But honestly I think these symptoms are our bodies crying out from all the preservatives and sugar and caffeine and non food foods we eat! Oh and calcium and magnesium are great to! Im not perfect yet but mostly pain free and our bodies need proper nutrition and the foods we mostly eat now are c**p! Eat raw foods....

And I forgot to add lemon juice in boiled water w cayenne pepper wich is belived to bladder tissue and a spoon full of natural honey non pasteurized! And I also take a swig of apple cider vinegar..I know all this seems like a lot but our bodies must be outta wack and our bladders are our weak area so this is affected....:) just my thoughts

I have had the same symptoms for the past 15 years, after a childhood filled with searing back pain while voiding (doctors dismissed this as a symptom of stress).  As an adult, I was told it was cystitis, then I was told it was urethritis, then I was told that I had stopped having UTIs and that it was all in my head.  I was told to stop drinking coffee, eating tomatoes, etc.  I ended up in the ER with a full bladder and unable to void.   I had 5 different nurses try to cath me and they couldn't get it in.  I was told that it was my fault and that I needed to relax.  Finally, was able to get a trickle out after caths had been shoved up me all day.  Went to a new urologist who finally ordered a cystoscopy.  He couldn't get the scope through because I had so much scar tissue.  After taking down my history, including childhood ailments, and performing a cystoscopy under general, my urologist has told me that I have a congenitally narrow urethra, which because my symptoms were disregarded for so long, has been almost completely sealed by scar tissue.  My stricture is so severe that I am not a candidate for surgery and am now looking at a urostomy bag in the future.  I am 34 years old and I have to cath myself every day just to keep my urethra from completely closing.  If you are having these symptoms, please have your urologist make sure that you aren't suffering from a stricture.  It is very uncommon for women, and most urologists don't think of it as a female problem.  A urethral stretch is an outpatient procedure and if done before a lot of scar tissue builds up it can be a permanent fix.  I wish someone had taken my symptoms seriously sooner; it wasn't in my head, it wasn't stress.

I have this redish penile head & uthera pain since last week

Went to clinic twice, no urine infection

But, dr gave me some antibiotics, some paracetemol, some anti fungus cream & some purple gold dust / substance that melts in water to rinse my penile

After using above, the pain is lesser, but when i pass my urine, i still feel the pain, especially in the morning time first pee

The pain is like needle poking your penile & a sharp knife cut feel & only the person who experince this can tell the feeling

I am afraid that it might be STD or even HIV

 

I found something very effective for long lasting constant urethral pain (it started post infection).  All tests I underwent were negative.  I got antibiotics anyway but it did not help at all. The pain was there all the time, not only after urinating.

I bought NUROFEN RAPID (it is liquid ibuprofen in capsules and it is an anti-inflammatory). I pierced a capsule and applied some of the liquid directly on my urethra.  I got strong burning pain that lasted for about five minutes and it was really horrible but after that, everything, including my urethra slowly stopped hurting. The day after, all pain from my urethra was gone. The pain came back some days later and I used it again. This happened several times.  Now I have been without pain completely for about three weeks.

When I took ibuprofen orally, it had no effect, only the topically applied one. Apply it before going to bed so that it stays there whole night.

(I have posted here before that I also had some relieve when I used Betadine ointment).

I am a firm believer that many problems are side effects of medicines that one is on. Are any of you who are experiencing these problems on Ambien? Could there be a connection?

Hello everyone. I'm 48 yrs old and I have never missed my cycle unless i was pregnant until now .My last cycle was in March. now for this month I have had the same pain you all have had. I'm in alot of pain and nothing helps. I have been on several meds with no help. I feel like the dr I went to treated my like I was lying and just wanted pained meds!! It hurts to have sex ! I really hope that there will me some kind of here out there in the furture for all of us. I will tell my OBYGN about this message broad, Thank You all

I have been in tremendous discomfort with my urethra and I do not have an infection....therefore I think that I am using/doing something which is causing this....so, I have decided to stop washing with soap in my vaginal area....there is a soap-free vaginal cleanser which should be easily available in High Street chemist shops....

Hi I have had UTIs since I was 2 and by the time i was 20 I was having extreme pain with no sign of infection.  They eventually tested my bladder and it was discovered it was not emptying properly.  They arranged for a biopsy and found i had a narrowing of the urethra.  They gave me a stretch whilst i was still under and although i still have the odd infection the random pain has stopped.  This was 8 years ago and although I will need it done again due to my age I must say the improvement in me is great. Hope this helps someone else :)

My pain is exactly like yours with no infection. They found I have PCOS and uterine fibroid, but it doesn't explain this pain.

Yay!!!!!!!!!!!! Finally someone has posted that has had "urethral pain/burning w/ no UTI" for more than my own 22 years. Mine started as UTI in 1990 - antibiotics cleared the infection, but ----- the burning persists to this day!!! I've endured 9 cystoscopic exams, urethral dilation, urethrectomy, voiding cystogram or VCUG, Been to urologists and then to gynocologists - back & forth, each thinking the other was causing this burning/pain. I even was sent to a dermatologist w/ hopes it was allergy related.I've used many ointments - even was told to douche w/ Maalox!!! ALL TO NO AVAIL!!! I can no longer enjoy intercourse as the mere touching in that area sends me into orbit. Yes, I'm stressed & at times thought I would lose it mentally as I always heard same - urine is clear - no infection. Don't know why "burning continues". Also, I have a "purplish protrusion" at the opening to my urethra which dr.told me was normal? I agree that the paraurethral glands do swell (especially if I climb a step stool or do any jumping in exercise) and the only relief I get is to lie down - with legs far apart & I apply an ice gel pack to my crotch. It feels like I'm swollen (glands swelling) & ice or sitz bath cool relieves. Sure would like a diagnosis specific before I leave this earth or at least, a treatment that helps when flare ups are super bad. I read a Dr. Hoffmann was researching urethritis in women to be associated w/ prostatitis in men..........both have to do w/ glands!!!! Makes sense doesn't it? Let's keep supporting each other and hopefully, one day, we will be burn/pain free & live our lives not centered on our "urethras" and what we wear, eat, drink of worry about.

This horrible nightmare started for me out of the blue on March 9, 2013. Immediately I worried I had a UTI or yeast infection, but I never considered that I would have to deal with it for months with no end in sight! I treated as soon as I could with diflucan and then Flagyl in case it was urethritis caused by a bacterium. That was just miserable, but it seemed to help while I was taking it despite the bad abdominal pains it gave me. After I discontinued the Flagyl, the pain and itching returned along with pressure especially when I stood and walked a lot. I have 2 young kids so I need to be active and can't really get away with lying around on the job. I returned to my GYN and had more swabs done. The only thing the GYN saw on the slide was yeast so he told me I needed to take 4 weeks of diflucan. So I started down that path and got lovely diarrhea so I decided not to take the systemic drug and opted instead for cream inserts. I used terconazaole cream intravaginally for 5 nights and got no relief. After that I ended up going to the nearest ER twice in one week because the pain was 7 out of 10 on the pain scale. They were useless and accomplished little else but to reassure me via ultrasound that my girl parts looked healthy. Finally, I decided I needed to see a urologist because it was now evident to me the problem wasn't to do with my reproductive parts and the pain responded to AZO. I saw a PA at the urologist's office who was female and seemed pretty sympathetic to my plea. She helped me to get scheduled for a cystoscopy in the same week and I was positive they'd see some red flag or something. Nope. The doctor saw nothing remarkable at all and the procedure hurt like a mofo. He sent me away with instructions to take Macrobid 100mg once a day for a month and gave a sample of Toviaz or whatever it's called for over active bladder. The Macrobid was c**p and gave me diarrhea and abdominal pain, again with the freaking abdominal pain! I asked him twice if it would be a good idea to order imaging and both times he said no even though his diagnostics were not useful in figuring out the cause of my symptoms. Finally, I decided to see if another GYN would talk to me about it. I told her all I had tried and described my symptoms and she said it sounded like interstitial cystitis and recommended BIT treatments over the next 9 weeks. They will catheterize me each visit and infuse my bladder with medicine to treat the lining and it will also include a numbing agent. That appeals to me just for the numbing stuff! She also prescribed Neurontin three times a day to help with the pain. The first night I took it I slept straight through for 7+ hours and woke feeling pretty good! Today was my first full day of that med and I wasn't nearly as uncomfortable at my desk job as I have been for the past 9 weeks. Finally I have a little hope, but now I'm a little worried about the link between IC and lupus and IBS and chronic fatigue syndrome and fibromyalgia. Tomorrow I am having skin prick allergy testing too to see if some allergen could be partially responsible for this crud. This has been a wild ride, that's for sure.I found a blog about a woman who claims she cured her IC by drinking 4oz of 100% aloe vera; she recommended George's brand which I have found at Vitamin Shoppe. She also drank an herbal tea called Jean's Greens PPT tea plus Buchu leaf. I'm going to check online to see if I can get that around here or order it online. I also plan to get some marshmallow root and slippery elm. I figure they can't do much more harm than all the trashy meds I've been taking trying to manage this stuff. Anyway, if you're still reading it was some comfort to me to see I am not alone with this condition. I will update after these BIT treatments to let you know if I notice improvement. 

I get this and usually as the weather turns warm and I am not conscious of drinking as much water as I need to. the The reason for the pain is caffeine in coffee, ice tea etc...irritates my urinary tract. I have to avoid caffeine and drink lots and lots of water, as well as, cranberry jucie. It will help and it will go away.

Hi KV... out of all the posts I have read so far yours seems to be the most like my son. My son now 14, was misdiagnosed 3 years ago in Atlanta. They treated him with IV Acyclovir for Herpes when in fact he had Bullous Pemphagoid. Immediately after starting the IV Acyclovir he started having blood in his urine and with in 48 hours he started having HORRIBLE bladder spasms. They stopped the Acyclovir 1 month later which was 2 weeks after they found out that it was not herpes.. the blisters on his body went away with steroids but the pain and the spasms have NEVER stopped. This was a 68 day hospital stay and after trying 9 different narcotics for the pain they settled on Methadone 2 x a day for the pain and when he has break thru spasms that the Methadone doesn't cover he takes Xanax and Loritab at the same exact time and it knocks the spasm out. Occasionally he has UTIs and when those come the spasms are always stronger and more painful.

We have done numerous tests, cystoscopies, ct scans, ultrasounds.. we've tried medicine for bladder spasms like Detrol LA ...extra fluid all day and less fluid all day ... and he NEVER has caffeine .... seems like we've done everything. We even tried completely taking away all foods and he was put on a feeding tube for 2 weeks and then we started back foods group by group. NOTHING helped minimize his pain. and NOTHING seems to help pin point when or why they will come. EXCEPT physical activity it usually always triggers it.

We moved from Atlanta back home to Florida, in hopes that being back with the hospital where he received his liver transplant at 2 yrs old, would bring new eyes and new outcomes. Sadly the numerous Florida docs we have been to all want to pass the buck on his pain and say its mental or its not due to the bladder... HOWEVER, we have started doing laser surgeries, they have removed almost all of the what Atlanta docs called burned or scarred tissue and Florida docs call polyp's or tumors from his bladder. We have one last surgery scheduled for June 2013, the laser was not powerful enough to remove the last large tumor he has growing from his bladder up into and around his right ureter. The FL Urologist is in disbelief that this will cease his pain once removed, thankfully though she is still up for trying. I am praying that this will be our well deserved miracle.

As Im sure you are... I am at my witts end, mentally exhausted and my heart is shattered from what my son is going thru. I hurt so bad for him. He wants so badly to play football again, to go to school again and have friends again. With Science today I don't understand why they cant figure this out....There has to be some researchers somewhere that would be up for taking on this unexplained pain that stems from the bladder.. There has to be several others like us out there, I just want us all to be able to come together and maybe find an end to this monster inside.