We were totally sick of it.
She was in hospital 7 times in 18months. Really bad infections. On drips, All the tests under the sun.
Right i will start at the beginning of our story.
When she was 3 she first became really ill.
Went into hospital an it was found she had a kidney infection.
After tests an sent to a childrens hospital in Liverpool,
They said she had a reflux on the left side.
She was put on antibiotics (half a spoon every night) until she was 5 (trimethoprin)
After that everything was fine. Till she hit 15/16. An it all started again Infection after infection....Sometimes water infection sometimes kidney infection.
Lots of the times No bacterial growth. But so ill in hospital!!!!!!!!
She again had test after test. They now say she has a Duplex kidney.
That is One kidney (left one) is still whole an normal shape, but it is divided into 2 (2 Chambers). Each chamber has a tube coming off it. So she has 2 tubes on her left side.
What they say is. Because your plumbing isnt normal you are prone to get infections.
My daughter is on antibiotics now for the rest of her life to protect her from damaging her kidney. She already has a small amount or scaring on the deformed kidney from an infection
The one thing we think triggered off all this again, is her becoming sexually active.
She still suffers with back pain especially in a morning an sometimes it burns when she goes toilet.
If she has an alcholic drink she suffers too an has to drink lots an lots of water the next day.
But over the last 12 months it seems to be settling down.
She is at the min having Gyni tests as her periods arnt normal now an she produces a lot of discharge. Not sure if its connected.
My daughter an i went through hell when it was really bad. I felt like they didnt believe us because no bacteria was found.
But after reading up lots an lots its quite common to have no growth. They dont tell you that tho do they. Just fob you off.
Are you taking medication?
I guess you know all the things to do to help avoid infection like
Avoid acidy drinks
drink cranberry juice
wipe from front to back
dont wash using any smellies
shower not bath
use the loo before an after sex
wear cotton full pants
If you have any questions please ask
I do have a question though, what kind of test did the doctor do in order to find out about your daughter's "double" kidney? Thank you!
Kelsie.... The duplex ( Double chambers) was found by a normal scan. She then went to a kidney specialist hospital to have it confirmed. Dye was injected her hand (vein) an it took a few hours to go round the body an then a scan was done again. The dye highlighted the kidney.
I've been told I most likely have significant scar tissue in my bladder due to all these infections, but I haven't seen a urologist since I was a little girl and I'm not thrilled about starting now; my mother worked for the only urologist in town for years, and since I know him personally, I don't really want to see him as a patient now.
Hi Kelsie, I am not sure why your doctor doesn't know about this but it seems to me you have a lot of symptoms of Interstitial cystitis. I myself was recently diagnosed. One of the most common things is UTI symptoms with no bacterial infection. It is common in women who have ahs recurrent UTI's as well as surgeries down there.