born with only one lung

outraged two over a year ago

My name is Stephanie and I am very greatful to have read your threat. Me and my husband is feeling so alone in this situation because not many parents have been through this.

We have just finish our CT scan and mri for our baby and the doctor said my unborn son is missing with his right lung.

When I read your thread and your son said he is the fastest boy in the world, I cried. I'm praying that my boy as healthy as yours.

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outraged two over a year ago

Dear Mama Halifax,

My name is Stephanie and I am very greatful to have read your threat. Me and my husband is feeling so alone in this situation because not many parents have been through this.

We have just finish our CT scan and mri for our baby and the doctor said my unborn son is missing with his right lung.

I am very glad that your little angel is very healthy! When I just read your post, it gives me hope for my unborn son! Thank you so much it really does make me cry with tears of joy.

May I know how old is your daughter now? And how is she?

Love,

Stephanie

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Guest over a year ago

My son was born with only one lung . The doctors did not find out till he was about 3 months old but now he is 32 years old!! Other than having asthma through out his life he has lived a normal life just as any other child. We have been really blessed . Thank you

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Guest over a year ago

Hi my name is Rhonda and my son was born with one lung in 1985 and now he is 32 years old . He has lived a long normal life other than having really bad asthma. He has went sky diving and flew to Colorado springs this past year and he did just fine, no problems . His whole life we let him be the judge of what his body allowed him to do and never had any major problems. Good luck with your travels !! God bless you

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stemmed sitar over a year ago

15 year ago i posted also an Message here. My little girl Julia is now 3 years old. She is still on oxygen 24/7 en has an Stellar breathing machine. She has one right lung, and one Pulmonary vein to her heart. But her biggest probleem is her airway stenosis. Without the stenosis she would have Much more quality in life. She has this stenosis through an artery which is pushing her Airtube The docters here in the Netherlands (Rotterdam), Belgium (Leuven), Engeland (London) and USA (Seattle) who’ve seen the CT and MRI find it to riskfull to operate her for placing an stent (which must be strong enough). Do you, reader of this message, know a specialist / docter which can help us maybe. If you read this many years later you can always contact me.

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stemmed sitar over a year ago

Correction 1,5 year ago (not 15)

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Guest over a year ago

I was born with only my right lung (I am 13 years old), thank you for sharing this story :)

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Anonymous over a year ago

I have heard a lot of stories that we can live with just one lung without problems.

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varshini over a year ago

What problems can occur when you are 50 or older, if you are having only one lung from the birth?

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Guest over a year ago

my grandson was born with one lung also. he is now 14 and doing just fine. he lived in California for the first 5 yrs and was in the hospital every time he got a cold. we moved him to our farm in Indiana and got him in Childrens hospital with a great pulmonologists which put him on Advair and he has not had to use oxygen or albuterol since then. whatever you do make sure they have a good diet and exercise on a regular basis this is the only way to keep them strong. also find a good pulmonologist that understands his issues and gives her breathing test and the correct
meds. good luck and god bless

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Guest over a year ago

My grandson was born with missing lung abd heart pushed over he is now 19 and has been the healthiest of his 7 siblings. He plays basketball. Rides skateboard. Swims and everything everyone else does.

_removed_

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elder hoe over a year ago

Hello, my nine month old son was born with only his right lung. His right lung has grown larger in compensation and his heart is pushed to the left. He has monthly check ups with a pulmonologist and will have a yearly echocardiogram to check for pulmonary hypertension. He is doing really well!

. I am so thankful to have found this forum and hear about the inspiring stories of others living with one lung. You all bring me so much hope!

I want my son to live life to the fullest but I am so very afraid for his future.
How do you find a balance between treating your child just like anyone else and letting them live life while also trying to keep them healthy?

Does anyone know of ways to connect since it seems like Yahoo groups have been discontinued and sharing emails on this forum is not allowed?

Thank you!
Rachel

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