Burning mouth syndrome treatment

are you doing better? Are you sucking and spitting the konopin?

May I ask what milligram? I take Xanax .5 mg, 3x a day and have for 14 years. I just started yesterday taking 4 to try and keep my anxiety down from the burning tongue. I can't ask for clonazepam because it is also a benzodizapine so that would be double dosing me with the same drug family. Did you have you B vitamin levels checked? My B2-Riboflavin was <5, so I'm taking 100mg of B2 daily. I am so hoping that's the answer for this mess. I hope I've not gotten too personal but desperation will make one ask anything. Thank you for your help.

With the klonolpin I am sucking and spitting ( gross) .5 mg 3 x a day. I do not swallow itl My dr. told me to take vitamin b1/ bentofiamine (150 mg) 2 pills, twice a day ( 4 pills total). If I take xanax and klonopine, I get nauseated. When I get the stellate ganglion injections I take 1/2 of a .5 mg xanax before the shot so I don't get nervous. I will be happy to answer any questions as we all need each others suport with this.

Any help for the BMS yet?

where is your blog?????

What was it that helped you

gooze wrote:

Biged11543 wrote:

Basically that I have burning mouth syndrome. Prescribed clonazepam and I am already doing better

May I ask what milligram? I take Xanax .5 mg, 3x a day and have for 14 years. I just started yesterday taking 4 to try and keep my anxiety down from the burning tongue. I can't ask for clonazepam because it is also a benzodizapine so that would be double dosing me with the same drug family. Did you have you B vitamin levels checked? My B2-Riboflavin was <5, so I'm taking 100mg of B2 daily. I am so hoping that's the answer for this mess. I hope I've not gotten too personal but desperation will make one ask anything. Thank you for your help.

.125mg 3 times a day. Likely will increase the dose to 100% eliminate symptoms.

Went to see Dr Sciubba. Like someone else said, really nice man. After asking me a lot of questions about symptoms and stuff I was taking (see earlier post), he diagnosed me with BMS and has prescribed clonazepam. I'm taking the kind that dissolves on your tongue (I don't get the sucking/spitting stuff other people were talking about). Each tab is 0.125mg. I'm to take it 3 times a day, beginning just before lunch.

I asked him if people are able to get rid of this and he said yes. He said we'd try this dose for 6 weeks and will see how that goes and adjust from there.

I'm on day 1 of using it and am pleased to say that I've reached the end of the day with only the slightest tingling, irritation, burning feeling (whatever it feels like to you) at the tip of my tongue, left side of my tongue and a little raw feeling on roof of mouth. So, huge improvement. Usually, it starts to get bad around 2:00 in the afternoon and by bedtime, I'm just really bothered by it.

He also told me to keep my tongue busy so my tongue isn't fixated on rubbing around on other parts of my mouth. He recommended sugar free hard candies. I got Jolly Rancher sugar free (yummy) and Breathsavers sugar free. I figure you could also use ice chips (don't chew, allow to melt on your tongue). I also like sipping a big glass of ice water. Super cold stuff seems to help.

My ego as a girl who has always dealt with life's pressures really well hopes all of this straightens out and goes away so I can get off the clonazepam down the road. I figure I tried everything I could on my own. I'm cutting way down on potentially stressful situations and continuing to go to a hypnotherapist which has been really helpful too.

I'll try to check back in maybe 4 wks from now to give you all an update

Is it possible to get an address for the doctor you saw? I live in Florida. I'm glad you're finding relief & pray we all do. Thanks for the update.

1232 Race Rd., Baltimore, MD

Thank you, I will write him and send my test results. I'm willing to pay his charge if they don't mind to work with me long distance.

Please tell us what is the remedy. There is no blog address listed in your post. I have had this problem that everyone is talking about - taken different meds and nothing works. Thank you for your help

how do i find your blog?

how do i get on your blog to find the simple solution for burning mouth?

I don't know how to get on to the blog. But I do know that I have had 9 stellate ganglion blocks. My burning mouth syndrome is from neuropathy. The stellate ganglion nerve blocks have decreased the burning/ tingling sensation by 80 percent. I went to a pain dr.