Chronic fatigue, Sjogrens Syndrome, cognitive disfunction, tendonitis.Are they all connected?

Have a Blood Test for:

"Alpha 1 Antitrypsin Deficiency."

This deficiency allows multiple inflammation throughout our body or specific areas such as HEART, LUNGS, LIVER or MUSCLES, TENDONS, NERVES, etc.

If this is the case, Geneticists are working quickly on this problem and help is very promising. ..... Due to the link to many other inflammatory diseases eg. Fibromyalga, Endometriosis, Tendonotis, Lupus etc.,

INDOCID as an Anti-inflammatory will help. The other Anti-inflammatories not so helpful for me. I can also see a lot more clearly now after a couple of months treatment.

ASK for the Blood Test ..... It's pretty routine, but nobody does it.

I pray for all your healing everyone.

"Nonquitter" 61yrs

Really sounds like you all have a gluten sensitivity. There is a special test that will give you the actual truth, but it hasn't made its way to all the states yet. You can get a standard gluten test from your doctor, but if it comes back negative, you still could have a gluten allergy and the test was a false negative. There are many grains such as quinoa, buckwheat, amaranth and others that you could be allergic to as well. There is a book you can get called 'Why do I still have thyroid symptoms when my lab tests are normal?' written by Dr. Datis Kahrrazian. In the back of the book there is info, and I think a web site that will give you a list of doctors that can actually help you. Also I have seen some videos on youtube by 'undergroundwellness' that has some good info on Hashimotos Thyrioditis which you may also have. It is an autoimmune disease that most people with hypothyroid have but doctors don't treat that part of it. They just treat the hypothyroid part. Pretty much all people that have hashimotos thyroiditis have a gluten allergy. It doesn't have to be celliac disease, either.

It amazes me to see so many women in the same situation dealing with the pain and other various symptoms and multiple diagnosis. I am 44 and have been diagnosed with fibromyalgia, chronic fatigue, and epstein barr. A typical mono test after the fact will almost always come back negative unless your having a flare up. There is a "titer" test but its very specific and most doctors have to be told about it. I was told by the cleveland clinic to come back if I developed more symptoms after they tested me for lupus. I have had and am still having more symptoms including blood in my urine from unknown causes so the dr put it. I never went back because of the way I was treated. In fact I am off all meds and have not seen a dr in over a year and half. I am still in pain and still exhausted all the time, however...I am pushing myself to do more (and believe me it is not easy) but I have found that I do feel better on average. The gluten mentioned in one of the replys is a big factor as well. The less gluten the better you feel. There are many things that can be done to help us feel better....no one said it would easy, but look at how many side effects you get just from the meds. I wish you all the best but you absolutely have to keep moving....the less you move the less you will be able to move.

You could be low in Magnesium. It is known as a miracle cure as often we are massively depleted and Restless leg Syndrome can be greatly improved. I have had it since I was a child and the only thing that helps me is two Magnesium tablets one in the morning and one in the evening before sleep. ***this
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Well I find myself here because my mother has the same symptoms to a lesser degree than me and she has just been given a Sjogren's diagnosis.  Many of these post could be mine though I have found some relief I wanted to pass on.  My main symptoms are pain and hypersomnia, though I have dry mouth, eyes, etc also.  I went through all the meds that keep you awake until there were no more to take.  I was told to take 2 aleve twice a day for pain (insane). I felt like I was carrying 100 lbs on my back all day every day.  I easily get tendonitus from moderate exertion which then lasts months.  I've also had constant sinus problems since I was a child.  A few years ago my wife wanted to try a new diet and I offered to follow it with her best I could to support her.  My pain went away unless I physically overwork myself.  I could stay awake all day long and my sinuses dried up!  I narrowed the diet down to where I have 1 cup fresh carrot juice every morning, eat no beef, pork or dairy, and I do light execise 5 days a week and my life is not the same.  I have tested skipping one of these at a time(mostly out of frustration) and found symptoms to come back quickly - eating pork brings the pain within 36 hours.  Believe me, I don't do these things because I'm a health freak.  I'm 35 yrs old and was a meat eater.  I don't follow the diet strictly, but I do have alot of fresh fruits and snack on seeds and nuts.  I can't imagine life not on this diet.  With how strong the symptoms will return only deviating from the diet one or twice, I can't see how I could still be functioning if not for it. The book is call the Hallelujah Diet.   I still have lighter symtoms that I struggle with and they tend to come in cycles for 3 or som months at a time once or twice a year.  Sure do miss hamburgers.

Sounds like you are suffering from adrenal exhaustion. It is the most overlooked problem by doctors. Take Herbal adrenagize for at least three months, possibly more to always help you. You will find it at any health food store that carries herbal supplements. I have had this problem and now I can go all day without any fatigue thanks to this natural supplement.

Have you ever looked into LDN treatment and instead of levothyroxine, which makes you more sick, to use T3 only or NDT or a combination of both.?

It's crazy that do many other people are experiencing pretty much the same symptoms. Doctors don't know what to do with/for me. But if there are so many of us, it's obvious this is something- not just in our head. I'm not sure why doctors are not communicating with each other so they can hopefully connect the dots. I'm trying everything that people recommend but I recently quit my job teaching bc I could not function. My students and my own husband and children were/are getting maybe 25% of " me" I do feel better knowing I am not alone and my symptoms are almost EXACTLY the same as others.

I have many similar symptoms, recently I have been researching my symptoms on the internet to see if they relate to magnesium deficiancy. So far every single one can be related to magnesium deficiancy. I would advise you to do your own research, there is a lot of information on the internet. There are also different kinds of magnesium suppliments to take, the most common they put in suppliments is magnesium oxide, and that is the most ineffective.

Hi I am 49 and I am experiencing the same symptoms but my blood test is negative. can you have Sjogrens still with out being positive on the blood test?

Was wondering if you have begun the Xolair injections yet and, if so, can you tell a difference in how your urticaria is. I am 59 years old. Have had autoimmune chronic urticaria for 7 years. Have been tried on about everything out there except the Xolair. My immunologist says that will be our next trial. However, I do not have asthma and it is still only approved for asthma patients (I think). I also have Hashimoto's thyroiditis, hypothyroidism, and pernicious anemia (B-12 deficiency that has to have B-12 shots monthly).

Urticaria is such a debilitating illness. You can't make plans to do anything because you don't know from one day to the next if you will be covered up in hives. I take so much Benadryl and other antihistamines that I feel loopy most of the time and don't feel safe to drive a car sometimes.

There is no one that I know of in my area that has this horrible autoimmune disease, so I can't communicate with anyone who really understands the agony and torment I live with every day.

Hoping the Xolair is helping you! I see my immunologist in next month and I'm hoping she will work something out so I can start Xolair.

Thank you!

Oh hun i can hear your frustration. Go on Healthunlocked it is good to read others stories as you could have autoimmune problems.
Like you I am gaining the weight & have been labeled with Fibro Myalgia.

They need to keep testing, negative test often happen but it does not mean nothing is going on.
Another tip any strange changes that can be seen take photo's of with your mobile if you have one.
This way Gps /consultants cant say it is all in your head.
Dizzy moments i can relate to it is like being spaced out it is horrible.
Anti-inflammatorys i am the same with & like you i have the stomach problems.

I have said before i am saying it again on here you need to be seen by a 'GOOD' Rheumatologist that understands
autoimmune conditions...Lupus, Hughs, Cushings.....Ect
It just goes to show how many of us are not being diagnosed or properly medicated.
Take care X

ever had a flouroquinolone antiobiotic. cipro and all its buddies have destroyed your body.

HAVE YOU BEEN GIVE FLOUROQUINOLONES ANTIOBIOTICS. IF SO, THEN YOU HAVE FLOUROQUINOLONE TOXICITY SYNDROME. GO TO FLOUROQUINOLONE TOXICITY SUPPORT AND READ THESE PEOPLES STORIES.

have you taken a flouroquinolone antiobiotic such as cipro, levaquin, avelox, or floxin. if so you probably have flouroquinolone toxicity. it is a terrible pain as i have it also. go to flouroquinolone toxicity support and see if you can relate to all these other people. there are thousands of us out there. good luck.