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I myself, am health weight and active and Im STILL trying to get to the root of this vasculitis!
Keep doing the tests....
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Do I need a rheumo? Dermo? Or Internist? of alternative Dr? I keep going round and round on WHOM actually is the best to have help with Golfers vasculitits.
I've tried plaquenil and steroid creams and prednisone, all to which have not helped at all.
Any advice/direction/excperience would be welcome...
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Oh my goodness! Here I was thinking I was going mad but no it appears I too have GV. No formal diagnosis, just Dr Google to rely on at this stage. I have been suffering with this condition since going to Rome 6 years ago and my legs were a terrible mess. The weather was hot, we walked a lot and stood a lot. I've since noticed it every summer to varying degrees. We are avid walkers and I know after a summer hike that I'm going to suffer. I've not sought help in the past as it's usually resolved itself before I get to the Dr's. However I'm currently suffering from the worst but I've ever had. We walked yesterday 10 miles in the Lake District. Wasn't particularly warm. When in the pub later in the evening I felt my feet, ankles and calves begin to itch and swell. Up popped the rash from my toes to my knees. As a female who likes to wear dresses this is a bit distressing. The swelling has abated a little today but the rash is terrible and very itchy. If this can happen to me in the UK with our inclement weather, I truly comiserate with those who suffer in hotter climes. I've photographed my legs to show the GP. I'll keep you all posted he she comes up when any solutions.
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Keep us updated on anyone's findings. Currently I'm trying to get in with a recommended rheumo and I also have an appt. with a highly rated alternative doctor (David brownstein) at the end of August.
I will keep you all updated on my findings....I am so OVER this unpredictability of the nastiness on my legs....not to mention the pain of the swelling...what I call "elephantitus" of my feet, ankles and calves.
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I'm sharing, for I've been frustrated for years and this "GV", seems to be an anomaly in the medical world.
Keep on sharing, for THIS blog is where I found the baking soda remedy! Thank you!
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If you were successful in alkalizing your body to 7.8, your body stops functioning at the cellular level, and you become quite dead.
Encouraging others to employ treatments that you don't understand is high irresponsible.
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I have had amazing results w drinking tsp of baking soda w warm water in am & pm. Not sure what that means, but so far it's the ONLY remedy that has cleared up rash and swelling.
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