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I am now 30 years old. I still have hair, but not much. I wear wigs all the time. I have been to 16 doctors, and still no diagnosis. There are so many things that can cause hair loss at any time, and I am not a doctor so I could not possibly tell you what's wrong. I don't even know what's wrong with me.
Have you lost all your hair or just some? Is it gone in bald spots or is it a diffuse loss? If it's spotty then it is probably alopecia areata, and there probably isn't much that can be done, unfortunately. It may grow back it may not. You may want to look into alopeciaworld.com. There are a lot of people on there your age with various kinds of hair loss, and it might be good to reach out to someone.
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That definitely sounds like alopecia universalis. Actually, it sounds so much like it, I'm surprised no one has ever mentioned it to you. Then again, I never even heard the word "alopecia"until I was 18, and like I mentioned, my hair started falling out at age 10, too. It's an autoimmune disorder, which basically means that for some reason, your immune system thinks that your hair is foreign, so it attacks your hair like it would attack a cold. That makes you lose your hair. In very rare cases, it can also make your hair "go to sleep" like you said...that's what happened with me, at least that's what my doctor thinks. It's been 20 years and my hair's not coming back and I've accepted that.
It can be caused by any number of things. It tends to cluster with diseases like Type 1 diabetes, hypothyroidism, polycystic ovarian syndrome, rheumatoid arthritis, and lupus, so if anyone in your family has any of those, that could be why. It can be caused by stress but that's not necessarily the case. In fact, I'd say that's unlikely. Lots of people are stressed, and what you're experiencing happens to less than 2% of the population.
It usually happens to children, but it can happen at any age. You're definitely not alone.
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I don't know what kind of doctor you've been seeing, but you should be seeing a dermatologist.
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