I just got diagnosed about 2 weeks ago with svt and today they told me it might be wpw...I am about to be 22 and im kind of lost. I have no insurance and i have to keep going to the er is there anywhere that can help me get the ablation done like the doctors have recomended? I am in south ga and they denied me for medicaid but yet im unemployed and really need help. this is ruining my life. Please help
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I had issues my wholelife as well, adn at age 35 found out that it was Tachycardia/ wpw syndrome.... I had a very good DR, that does nothing but these types of problems.. had the surgery but he was unable to fix the issue due to the location of the pathway being located inside the wall of the heart.. been taking meds to no help at all.... I have episodes where my heart speeds up about 24 times a day.. but i still say ,, get a good DR have the surgery, and hope you are not in the 10% club or less.
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@ lexi9650
try to find a hospital that is religion based,,,, I also had no insurance, went to Providence, they paid for all but my Surgeons fee's which he waived,, only thing i paying for is Office visits b4 and after
try to find a hospital that is religion based,,,, I also had no insurance, went to Providence, they paid for all but my Surgeons fee's which he waived,, only thing i paying for is Office visits b4 and after
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Hello,
My name is Vicky, and I also was diagnosed in October of 2008, with WPW Syndrome. My cardiologist didn't waste any time getting me the ablation. I had it done two weeks after I was diagnosed at SCRIPPS Memorial Hospital in La Jola, CA. It was probably the best decision for me considering I had an extremely rare case of WPWS. It's now two years later, and I feel better than ever ;-) the surgery took four hours, and I was sore for about a week, but what's a week? Of course it was the scariest thing I've ever experienced, but the best decision ever made. I live a healthy normal life with no meds. and no more issues. My best advice would be to get the operation done. Make sure you research surgeons. If it's a money issue, most hospitals offer what you call a Medical Assistance program which helps you with the bill, if not covers the bill completely. Good luck ;-)
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My name is Vicky, and I also was diagnosed in October of 2008, with WPW Syndrome. My cardiologist didn't waste any time getting me the ablation. I had it done two weeks after I was diagnosed at SCRIPPS Memorial Hospital in La Jola, CA. It was probably the best decision for me considering I had an extremely rare case of WPWS. It's now two years later, and I feel better than ever ;-) the surgery took four hours, and I was sore for about a week, but what's a week? Of course it was the scariest thing I've ever experienced, but the best decision ever made. I live a healthy normal life with no meds. and no more issues. My best advice would be to get the operation done. Make sure you research surgeons. If it's a money issue, most hospitals offer what you call a Medical Assistance program which helps you with the bill, if not covers the bill completely. Good luck ;-)
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Hello, my name is Kimberly, I was diagnosed in my mid 20's with WPW, when I turned 40 I noticed an increase in my symptoms and began to feel much weaker at times blacking out. In 2007 I decided to have an ablation and felt much better right after the surgery, this past year I am beginning to feel symptoms again, this time very frequent skipped beats. Does anyone know if WPW can re occur? I am afraid to even go back to my Doctor and tell him the symptoms are back in fear that he will chalk this up to anxiety, it seems that every time I have a 24 hr. holter monitor I am having a great day with no symptoms.
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Hi Everyone! I was diagnosed with WPW at the age of 2. I have been on medication since. I have had two previous ablations (one when I was 18 and the other when I was 22) which were unsuccessful due to my "special" case. I am now 23, dealing with the possibility of a third procedure. This ablation will actually being dealing with the outer chamber of the heart rather than the previous which dealt with the inner chamber. It is difficult to deal with and it is nice to hear other's stories. I have only met another person with WPW. However if this one is unsuccessful, I will be looking at a life of medication which is obviously difficult to deal with.
If there are people who are interested in the procedure I have had numerous recommendations like the Cleveland Clinic. I received mine from INOVA Fairfax Hospital. I have always had a very intimate relationship with my doctors since it is a difficult thing to talk about.
If there are people who are interested in the procedure I have had numerous recommendations like the Cleveland Clinic. I received mine from INOVA Fairfax Hospital. I have always had a very intimate relationship with my doctors since it is a difficult thing to talk about.
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my first ablition was about two years ago i didn't know what WPW even was than i just knew that my heart was beating at almost 200 beats a min. when i was in the hospital though my doctor said i could be on med. the rest of my life or get the ablition the only downside to the med. was that it could cause complications if i wanted to have a baby. Even though I got the ablition i still had to be put on med. on top of that and i was still having problems so i had to get another ablition done, luckly now i am off of the med. but i would have it done again its worth it you can tell a difference even in your energy when your done.
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lexi, you should first ask your hospital if there are org. etc. to help pay like merci they should than either have someone meet with you or send you a packet. If you have a regular heart doctor ask them to if they know of anything cause if they have your doctors word it will get passed faster, if you go to church you could also ask them. I have been in your same shoes before and it is very nerve racking. I got mine completely paid for through Vocational Rehabation so you might want to see if you approve for that cause it interfered with me working. Well I wish you Luck!
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hello, in september of '10 i was diagnosed with wpw. i just turned 18 years old in december. i went to a heart specialtist in st.louis and she was amazing with me. she told me my 3 options were 1. be on medications 2. the catheter ablation or 3. do nothing. she told me to keep in mind that if i chose to use the medications the symptoms of wpw (chest pains, shortness of breath, and rapid heartbeating) wouldn't be cured, that the medications were only there to slow the 'attacks' of wpw. so of course i went with the surgery. i went to childrens hospital in november it was a four to six hour surgery. (it only took 3 1/2 for me) they take you back, knock you out and they go through your vein either down in the groin area, arms or neck. (they went through me near the groin area) i think after surgery is the harest part for me... you have to lay flat on your back for 6 hours straight. just so you dont bleed, becasue they do go through a main vein or arterie. but i guess it wasnt too bad because i slept most the time. after the six hours is up the get you up and to see if you are still bleeding excessivly. and if you are they will take procausion and lay you back down for about another hour... It is a minor surgery, same day surgery as well. And the best decision i have made so far in my short life. i ahve done TONS of research of the wpw syndrome and the catheder ablation surgery. and my advise to you is to quickly get the surgery over with becasue every 10 years you dont fix the problem it gives you a higher death risk..
hope i was some help to you.
Vickie
hope i was some help to you.
Vickie
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Hi-
I have to comment because I was first diagnosed with WPW in my early 30s, right after my daughter's birth. Docs didn't explain a thing, no medication, etc...So I lived with it until a doc friend of mine recommend that I keep it monitered, so went in again when I was about 38, no signs of it on ECG or stress test.
Note- I have been living with tremendous anxiety, panic attacks, and tiredness all of my life.
Now I am 44 and for the last year I have been all of the sudden feeling HORRIBLE! My heart started having palpatations again and racing for no reason, just from a sudden movement or after eating, lying down. Wierd. I started experiencing it starting and stopping while sleeping, feeling extreme tiredness, not being able to concentrate, and scary dizziness, feeling like I was going to faint often.
For this reason, I saw a cardiologist, and he suggested ablation. But after a 2 hr attempt was unable to stimulate my heart to do this and sent me home saying I was one of the 10% where it disappeared.
So, I was totally frustrated not knowing what to do.
A friend suggested I look into hormonal issues. OH!!! No one had mentioned this, and I started noticing that my heart really only got super crazy during part of the month. Then I read up on peri-menapause symptoms and realized that this could definitely be whats going on!
I started taking a natural supplement for this and about half of my symptoms have gone away! I am still nervous about it coming back, and don't feel completely well, but not like I want to jump off of a bridge!
I am still going to get a second opinion and have heart monitered to be certain.
By the way- have your children get ECGs ...just found out my daughter inherited my WPW:(
All the best to you-
I have to comment because I was first diagnosed with WPW in my early 30s, right after my daughter's birth. Docs didn't explain a thing, no medication, etc...So I lived with it until a doc friend of mine recommend that I keep it monitered, so went in again when I was about 38, no signs of it on ECG or stress test.
Note- I have been living with tremendous anxiety, panic attacks, and tiredness all of my life.
Now I am 44 and for the last year I have been all of the sudden feeling HORRIBLE! My heart started having palpatations again and racing for no reason, just from a sudden movement or after eating, lying down. Wierd. I started experiencing it starting and stopping while sleeping, feeling extreme tiredness, not being able to concentrate, and scary dizziness, feeling like I was going to faint often.
For this reason, I saw a cardiologist, and he suggested ablation. But after a 2 hr attempt was unable to stimulate my heart to do this and sent me home saying I was one of the 10% where it disappeared.
So, I was totally frustrated not knowing what to do.
A friend suggested I look into hormonal issues. OH!!! No one had mentioned this, and I started noticing that my heart really only got super crazy during part of the month. Then I read up on peri-menapause symptoms and realized that this could definitely be whats going on!
I started taking a natural supplement for this and about half of my symptoms have gone away! I am still nervous about it coming back, and don't feel completely well, but not like I want to jump off of a bridge!
I am still going to get a second opinion and have heart monitered to be certain.
By the way- have your children get ECGs ...just found out my daughter inherited my WPW:(
All the best to you-
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I suffered a cardiac arrest due to W.P.W in Jan, 2009. I guess I am in the very low percentile amount of people that actually suffer a cardiac arrest and, and even lower percentile, of the people who actually survive it. I had to ablations performed to correct the problem because it was located in a hard to reach area of the heart. I just started having weird feelings again on my chest and I was wondering if WPW returns. I have an appointment with my doctor next week but I thought I'd ask anyways.
Oscar
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I too have been diagnosed with W-P W, found on an ECG this year. I am definitely going to get the procedure done, whichever procedure the Cardiologist recommends, (I see him in Dec). What can I expect for recovery, time, limitations, etc..? I am nervous about that. Please reply with guidance :). I am 31 years old, first kind of surgery of the sort and have a 2 1/2 year old at home and my Husband is deployed overseas. Thanks :).
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My mother was denied by medicaid also and we have recently applied for a medicaid spend down that gives you three months of medicaid your choice to cover forward or back medical. My mom also needs the ablation and has no insurance. Fingers crossed and praying! If your medical bills are three times your monthly income you may be eligible. They do not offer this up to you. You have to ask for Medicaid Spend Down. Check with your local office. Also my mother has been blessed with doctors that offer hardship applications and a hospital that has helped her get grants that have covered a range of 80% to 100%. Saying a prayer for you!
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Hi there, I had the same thing as you just had my ablation, its been 6 months after my I had the ablation done. I feel really tired a lot of times.Please reply if you still otu there.
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Hi Kimberly,
I am 45, found out I had WPW in my 30s, ended up with a failed ablation attempt at 44. Later I discovered change in hormones causes heart palpitations/issues...this had put more pressure on the WPW causing the sudden blacking out, etc....I started on a natural hormonal supplement with ingred all shown to reduce symptoms of perimenopause...my symptoms went away by about 80%!!!! See your doc about hormonal issues and if you need advice on the supplement I can send you that from my email -
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good luck, I know how hard it is!!!
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