My husband had his pancrease removed a year ago. This is not a whippel nore where ant eyelets transplanted. It is gone. Completely. He has slot of pain and has to watch his insuline and enzymes. But yes there are more of them out there
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I am in nursing school and had a pt today with the exact same circumstances, only it happened 8 years ago. The surgery went bad, he got gangrene and most of colon removed as well. He was on hospice a few years ago, returned to better health, then back in with blood stools and vomitting. He too thought he was the only survivor, surgery was in minnesota
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I do not have my pancreas or spleen. I would love to talk to someone else who has the same issues. I was told I would be lucky to make it ten years.
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Yes; I had a total pancreactomy on November 11, 2011, and have been living without a pancreas since.
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Does anyone know where I can get some help with medicare to cover the sensors for my continous glucose monitor. My levels drop constantly in the 10 to 20s. I have no pancreas or spleen at all. I am on disability. I am having seizures all the time. If I can't get it figured out I might as well sign death certificate. My endo says to make sure I have life insurance if I don't get my machine back. I have tried many different things and have gotten nowhere. Have even had doctor write letter to say how important the monitor is but no success. Anyone know what I can do.
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Call doctors at Johns Hophins if you did not have the surgery there. They should be knowledgeable.
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My son is 12 and has a bad liver and wierdly never had surgery but drs that read his ultrasounds said there is no pancreas . How is that?
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i lost my pancreas and spleen in December 2011. I m also having problems with the arms and legs moving spasticly. are you having trouble keeping your sugar down. I had a bout with dka last week. body not absorbing nsulin. would love to talk with you. we are rare and I would love to share and see what we have in common. I m a retired woman. thank you
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I cried reading your post. You are so young . I am facing the same fete at 32. I'm in australia . All the best
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I just saw your story I know this was over a year ago but maybe some how you will get it. My husband had the same thing happend to him. How are you doing a year later with your situation? Did they ever find out what caused your to necrotize? I would love to hear your story.
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I have no pancreas, due to surgical removal for ipmn. I had some chemo after my pancreas was removed. I take zen pep whenever I eat and of course insulin 4 times a day. So far I am having no serious issues. Does your husband take enzymes when he eats?
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I also have no pancreas or spleen, no one said how long I should be able to live like this, I'm 43
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