is there anyone living without a pancreas?

Guest over a year ago

Now, that I left a comment...I can see more recent comments. Good to know that there ate others out there. Hopefully, we can learn from each other. My name is Kari.

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Guest over a year ago

My fiance had pancreatic cancer and he is a 10 year survivor. His was a bit unconventional in that he had a slow growing tumor inside the pancreas that did not spread outside the pancreas. The doctors at Abbott Northwestern in Minneapolis did a Whipple procedure that removed the pancreas and removed a portion of his stomach. He went for scans each year until year 7. At year 7 they told him he is a survivor and should be able to live out his life as normal. He does have diabetes and does have to take enzymes to digest food but that's little to pay for his outcome. We are thankful every single day for his outcome. We wish you the best.

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Guest over a year ago

Hi my mum had her Pancreas removed 40 years ago the best insulin that was ever use was the beef insulin which they do not use any more my mum uses the synthetic instilling which causes her Bloodsugars to go all over the place yes you get the diarrhoea and all the other things bat Phone two years on she still alive if you would like to email me it is ***this post is edited by moderator *** *** posting of private e-mails is not allowed*** all questions should be discussed on our website *** Please read our Terms of Use With any questions I will do my best to help you do not give up hope with this

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Guest over a year ago

Hi I had my Pancreas Removed in Feb 1996 at Hammersmith Hospital ln London following a Trauma now almost 22yrs on I am still alive and kicking. Yes I am a Type 1 diabetic using an Insulin Pump & getting first class care at Guys Hospital Diabetic unit. I use Dihydrocodiene Tablets to control any pain Creon 40000 capsules to digest my food and I have some nerve damage to my legs. When all this started my local hospital let me down big time. I was in the end told there was nothing that could be done, In other words I was left to die. I was lucky I had a referal to Hammersmith Hospital and a wonderful team who looked after me from the Prof of Surgery to everyone involved. My advice to anyone is if your not getting the care you need get a second or even a third opinion you will get the right care never give up. I am almost 77yrs old and I intend to keep going for a long time to come.

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Guest over a year ago

Hi my niece is 7 she became very I'll last year. After 3 days in the hospital they found out she was born without a pancreas. She now has a pump and is diabetic. She has her ups and downs its very sad.

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Guest over a year ago

I have lived without a pancreas for almost 2 years. Your symptoms sound like mine. I have come to realize this is how. It's going to be. As for diabetes, carb counting . Even with that my sugar takes dives for no reason. And then goes high with stress and pain. Hope you are doing better.

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Guest over a year ago

thank god she is doing good, please give us all some examples of the food she eats and how she copes with the diet, thanks

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Guest over a year ago

Hi I was the first child to be diagnosed with familial pancreatitis.i was 12 yrs old. I had a complete pancteatectomy and complete Whipple. I was told I would never live a normal life no children and would likely die in ten yrs. I am now 36 and I have 3 beautiful kids. My 18yr old son was 2 when he was diagnosed.because we had felt w mine we were able to control his and he leaves for college in August. My name is Colleen Butler and I am from Nashville

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poonamrana94363945 over a year ago

is it possible for human live without pancreas.

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Guest over a year ago

hi i had my pancrease remove 26yrs ago in april 28th iv had problems but we had a granson with ducen muscula distroph and put my efferts in to him x

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Guest over a year ago

My sister had her pancreas removed after it died following a "routine procedure" (she had never had pancreatitis). 18 months later she is doing very well. She is a type 1 diabetic and has to watch for "crashing" even more diligently than for high sugar. She also has to take enzymes for digestion twice a day, has to eat something at least every 3 hours, but is able to digest most foods.

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Guest over a year ago

I am 29 and just had my pancreas removed a month ago. Since then I’ve been to the hospital 3 times. I’m miserable. It’s hard adjusting to being insulin dependent and the pain!!!! I had diarrhea too but they gave me Creon (pancreas Lucas’s) pills to take a couple before I eat ANYTHING! I’m here for support as well!

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Guest over a year ago

Hi there I am about to get 95% of my pancreas taking out and my spleen as well,
What are your thoughts?

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Guest over a year ago

how are you doing? i learned more about living without a pancreas from the ***this post is edited by moderator *** *** posting of web addresses is not allowed*** Please read our Terms of Use than any doctor. you will need to take vit d, a , k, and b-12 sublingually every day. your body can't break down fat soluble vitamins anymore so pills won't work. must be under the tongue. other than the obvious insulin you will need a lot of creon with any meal, snack, or even a bite of anything with fat in it. yes, even walnuts, avocados, olive oil etc. my story is long but juvenile diabetic since 1971, body ate up the rest of pancreas in 2012. very funny watching ultrasound techs try and find it!!! if you are having any bms the consistency of soft serve ice cream or peanut butter you aren't taking enough creon. i take 3 each 24,000 untis with a meal and less with snacks. the ramifications of having juvenile diabetes for 47 years are worse than the loss of exocrine system. legally blind, 2 kidney transplants and peripheral neuropathy but i just keep going. tell us about yourself!

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Guest over a year ago

Hi joe, I am schedual for this procedure as well and im 28. Im kind of scared of the life expectancy and outlook. I am really curious to know if you don't mind what exact procedure she had. Did she have an islet cell transplant? or just a plain pancreatectomy with splenectomy? or was her spleen preserved? I am really curious to know as in medical litterature it is very hard to know what variables effect survival rate. Thank you for your help. And also thanks for providing a positive outlook :).

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