is there anyone living without a pancreas?

Guest over a year ago

hi there, can you tell me why you had the cyst removed if not cancerous?
we are facing this right now, they want to remove hubbies pancreas IN CASE things change
I am not sure this is a good idea...so far non cancerous
the cyst is on the main duct
I just dont know what to do
Sorry for all you went through

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Joe over a year ago

My mother has been living without a pancreas for over 40 years,we think she is the longest surviving person in the world without one,she too had a lot of problems in the beginning ,it has not been plain sailing but she is almost 70 now and still going strong.

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Guest over a year ago

Hi my name is Ndaba Simelane from a tiny country called swaziland I have spent the last seventeen years living without a pancreas was diagnosed with type 1 diabetes the two years before then have never been treated as a patient without one it just can't be found in any scans of my abdomen. There are no symptoms to show this but doctor seem shocked each time I take an abdominal scan. I don't take any supplements just use insulin

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Guest over a year ago

Just to add it was destroyed by my body, started having serious complications when my appendix started failing had it removed last year november

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Guest over a year ago

Hi, i am living w/out pancreas since 7 months now ... hard diabetes and digestion problems ... life is nice and quality more than acceptable ...

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Guest over a year ago

I have Necrotizing Pancreatitis too ,I have been in and out of the hospital 5 times this year I have less than 1/3 of my pancreas left, I have had a feeding tube in about 12 weeks...... my question is did you have a Jtube and if so how long did you keep it ??????

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Guest over a year ago

go to John Hopkins in Baltimore Maryland specifically for Dr. Vikesh Singh, M.D., M.Sc. He specializes in this condition and can help you much better.

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Guest over a year ago

to the people looking for someone living without a pancreas I had mine removed 4 yrs ago it has been really hard on me and my family

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Guest over a year ago

I have lived nine years without a pancreas, spleen, duodenum, part of my small intestine, gallbladder, many liver bile ducts, 1/2 stomach, uterus, ovaries and appendix. The entire pancreas was removed (not a Whipple) it is a total. Yes, I am diabetic and I'm on an insulin pump and a CGM (continuous glucose monitor) I was not diabetic prior to my surgery. I take enzymes with all meals and I take many supplements because of the missing duodenum. I had a mucinous cyst on my pancreas that was pre-malignant and I have lost eight family members due to pancreatic cancer. There are many support groups you can find by googling. Please contact me if I can be of any assistance. I have had several hospitalizations but manage to pull through and learn a great deal through the experience. I am happy to share.

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Guest over a year ago

Keep the faith. Excercise regularly no matter your mental state or health and use moderation. We all must die physically but we can have life in the flesh and spirit in Christ. I should have died almost 20/years ago wont go into details and every year brings on new pain anf challenges but with evey challenge a new solution comes from the Lord and I live and enjoy life more than healthy people mentally and physically my age in out 60s.

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Guest over a year ago

Thank you for your response. Yes, I keep the faith. Additionally, I was an international inspirational speaker for 20 years before becoming ill. I received a great opportunity to test my own techniques. Every day is truly a gift.

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Guest over a year ago

Greetings from St Louis. My now 30 year old daughter is living without her pancreas for almost 5 years. There are now 24 centers in the US that do the Total Pancreatectomy Auto Islet Transplant. Ellie's remaining healthy islets were placed in her liver and after 3 months she no longer needed insulin. The U.K., Australia are also doing this surgery. University of Minhesota has been doing this surgery since 1977. The youngest child I'm aware of is a three year old boy and he's doing fine, many children have had the surgery. Genetics plays a big part for many, and others there is no cause for their CP. we have a very active FB group that has supported many.

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Guest over a year ago

Hi, I have been living without my pancreas for 37 years. I had mine removed due to hereditary pancreatitis. I have also lost my spleen and gallbladder. I have had the pump now for 10 years. I'm here if you all have questions I can help answer

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Guest over a year ago

Hello fellow pancreas free person... It's great to hear of someone who has lived so long without a pancreas.... I'm coming up on 9 years. I'm absent of a few more organs than you and I also inhereted pancreatic issues but it's pancreatic cancer. I live in Northern California and would enjoy a conversation.

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Guest over a year ago

Hello my name is Kimberly Bennett I'm 50 saturday March 11. In early 2004 I had a test done to view my pancreas due to a scan showing a cyst on it. They said they had to use dye to get a better view, this was the beginning of the ultimate mistake of a lifetime. This was the 2nd bout of pancreatitis in my life. The whipple was done on august 25,2004. Half my pancreas was removed. I immediately was diabetic and had to take synthetic enzymes to digest good. Soon after followed digestive disease and malabsorption. It was and still is extremely rough
Every day is a battle. I'm 2008 at osu some internal tests were run because of my sugar being out of control diabetes. The diareah, the inability to, which still is a major problem, digest food even with pills my body can't break the food down. Intense pain, constant nausea, vommitting. Life is very hard. In 2008 the Drs were stunned with the results. He came out of the room in disbelief. Somehow my body they think must have absorbed the rest of my pancreas. I have no pancreas no gall bladder, removal of part of my intestines, and my bile duct transplanted ( it's mine but been relocated. It's 2017 and I'm still alive. I thought I was the only one till I found your article. Thank you I've felt so alone with the medical community saying the majority of partial removal make it less than 6 months and I shouldn't be here I can't survive
I get blood work done A LOT I can't eat red meat or fatty meats no fried food but I am not just breathing I'm alive. There is hope, but I too would like to know how many there are of us alive with no pancreas I'm curious and hopeful

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