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Julie,

8 to a 2. That's great.

You will get this stuff figured out. Best of luck with the ART. I'm not sure anyone around here would even know what that is, thus, I never pursued it. I sure hope it works/helps.

Tiny steps of progress here. Drove to bookstore, took the ornaments off the X-Mas tree, drove to work this morning and I'm able to space out my pain meds to 5 hours over the weekend and I'm getting ready to hit the 6 hour mark this morning. Yippee! Becoming less of a druggie every day. Best news though is that around 7:00 pm last night, my nerve pain, in BOTH legs, disappeared. Completely. Lasted about 3 hours. The funny thing is that when it happened, I became completely, utterly exhausted. I'm guessing it was because I wasn't fighting through physical issues. It's back a little this morning in the left leg but that respite gives me REAL hope.

For some reason, my lower back is pretty sore. I think it's due to the weakening over the last few weeks and the increase in activity. This has me a bit concerned in that I have always had to work/strengthen my lower back and I am just not allowed to since the surgery. At least not the way I used to. Thus, I think it has become rather de-conditioned. This may become an issue as time goes on but it's just another hurdle I may have to clear. Is there anything that comes easy?

Have a great day everyone. We are thinking of you folks.
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Buttpainbigtime,

Wow, you've been through a lot.

How long did you have PS before you had surgery? Did Dr. Filler have any explanation as to why your piriformis because fibrotic and scarred? What was your reaction to the diagnostic injections? What does Dr. Filler propose to do now?

I do not have horrible sciatic nerve pain, but lots and lots of butt pain (lateral butt around trochanters.)

I'm sorry to be asking so many question but I, too, have horrible pain at the sides of my hips around the trochanters and hoped that Dr. Filler's surgery would address that. If you are comfortable, could you please share your experience.

I am so sorry you are having problems with insurance. We need the proper medical care and it ridiculous to have to fight for it or even be denied it. I say, get what needs to be done regardless. You have to do what you have to do to get as better as possible.

Easier said than done.

Take care,
Julie
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David:

GREAT, GREAT news. SOOOOOOOOOOOOO glad to hear you are experiencing some pain-free moments. I think we're all a little "deconditioned". I know I am after a year plus of no exercise. I'm usually very active so my thighs (and other body parts) are.....shall we say.....a little bit out of shape!

keep getting better.

Leesa
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Julie,

I had a RF treatment for SI back in September and it has really worked. The treatment itself was horrible and I was down for about a day after ward. But I experienced complete SI relief and it lasted longer than any other type of treatment I've had.

The question that remains to be seen is if piriformis surgery will have helped the SI pain at all. Dr Filler and Sheila both said it might but the only way to know would be to wait and see. Now 4 months after the RF treatment and 3 months after surgery I'm still not having SI pain, so I'm very guardedly hopeful.

David,

So glad to hear that you experienced freedom from nerve pain!!! Its just a start and I'll be praying that there are many more pain free moments to come.

Donna
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Thanks David I am trying also to get some of my doctors here to write letters to my insurance co. I have considered a medical attorney. Yes, most of the fees were from the hospital around $90,000. I stayed one night. I just think that is outragous. Thanks for your main points I will keep plugging away at this.

Julie, I had PS for a year and 2 months at first diagnosed as bursitis got cortizone shots (2) for that helped a little. Went to accupunture, it actually threw into a major spasm I thought was going to go the ER for at least three days after. Went PT no results at all. Went to Chiro 3 x a week fopr 6 months who does ART it was only helpful for maybe a hour after pain lessened maybe 2 notches. Massage every week for a year. Started a strech program recomended by chiro it made it worse and it stayed worse even after I dropped the strecthing. Had multiple cortizone injections by C Arm and Botox. I epidural in my spine as a nerve block, it did not help sciatica at all so thats when the Pain management Dr. assumed it was my piriformis. I have been to about 7 doctors who could not figure out what was wrong with me until I met with the pain managemnt clinic where I received all the shots. He thought it was PS. No doctor really believes it exists around here. Of course we all know it is very real and given us unbelievable amounts of pain. I have two bulging disks in my spine and this hurts way worse. The botox didn't do a thing at all. Dr. Filler said scar tissue could have been from the 8 cortizone injections I got over the last year as well as I kept exercising even though I was dying of pain. I am a triathlete and a marathoner I still tried even though I was on heavy pain meds I could still function but still was in major pain. Exercise helped me only mentally. I thought I would go crazy.

Yes I still have pain at trochanter its almost like the piriformis muscle is still there even though its completely gone. Hurts from mid butt deep around to side and from side around to front almost to bikini line. So pain wrap all the way around me. Hope this is helpful. Good luck.

David, thanks for your help!

Thanks,
Kym
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Kym,

Yikes, you sound just like me. I'm an ultra-marathoner and rock climber. I have been very guilty, too, of taking pain meds and exercising for mental health. No cortisone in my butt, yet, but lots of prolo. I think that was a bad move.

How did you get PS? What had Dr. Filler said about the continued pain? Did you have relief from the injections and what did your neurography show? Sorry for all questions, but you do sound just like me. Do you think Filler is still the best option?

Take care,
Julie
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I never tried Prolo the injections my pain management Dr. gave me in the beginning worked for about a week then less and less until it became one day two at most this was done assisted by C Arm type xray. Dr. Filler said that my neurography showed 3 nerves being impinged and definate PS also on other side sciatic nerve going thru muscle on both sides. There were also the cluster of veins and femor arterty going thru sciatic nerve on other side too. But no pain on other side Thank God. He said though don't be too hopeful it may come on eventually. The reason for PS he really isn't positive just more of maybe this or that. The nerve thing I was born with. I exercised on morphine before surgery I am sure a lot of people would really frown upon me for this but you yourself probaly understands this addiction we have with running and also for me triathlons. I actually did races on morphine antiimmflamatories and perocet. I am not proud of this but I wanted so badly to be with my social network. I went on anti depressants because as I got worse I had to stop running completely I still biked it hurt but I just put on a brave face to get my mental fix for the day.

Now still on the moriphine and exercising maybe doing more than I should. But Shiela his nurse told me 20 min. max of walking for a month thats all I could do for about 3-4 weeks the I started the ellipical, then riding my road bike at about 2 months mind you I am still on moriphine to do this. Dr. Filler said as long as I didn't hurt WORSE than I already did that this was okay. Sheila had different thoughts. I assumed the doctors thought was more important.

In the end, I still think Dr. Filler was the best person for what I have. Even though I am still ina lot of pain now on a pain scale of 1-10 10 being worst ever I used to hover around 8 and sometimes a 9 even 10 a couple of occassions. I thought I just couldn't go on living. I couldn't take it. Now pain is at a constant state of 6-7 on moriphine and other meds. But it is a little better than before. He wants to do another neurograpghy and maybe try injections again. I may just bite it I am in deep already the cost of those things will not make a dent what already owe. I am NOT a pain med. person at all but this ordeal has changed my life. If for not those meds. I am a angry at the world person. I don't want to see anyone go anywhere or anything. Just too much pain to bother. I hope I can get this to go away.
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I left out of the first sentence of previuos post my pain management Dr. gave me cortizone injections. Opps
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I have suffered from piriformis type pain, sciatica, lower back tightness for over two years. I read this post awhile back and determined that if I ever found truly useful information to add - I would be sure to do so. That day has arrived.

First- If you are experiencing pain in this :moon: region, you are in for a treat. I have friends who have rebounded from heart attacks, borken legs, torn ACL's, etc - much, much faster than our happy butt pain.

Here's why:
Pain in this region is caused by a combination of mental/emotional, personality tendency which harbors stress in this region. The accute symptons are brought on by excessive use and/or accident type of experience. However, this is not the cause. The cause is deeply seated within your psyche.

That is why you will find more frustration on posts of this topic then practically anywhere else.

If you have gone to a traditional doctor - you have started off on the wrong foot. They really don't have a handle on this type of injury, will become frustrated and over medicate you or cut you. The chiropractor will be happy to take your money - and after six months you will be where you are at now. There will be a handful of you who have had success with these (treating the symptoms) techniques - but will have a reaccurance b/c you have not fixed the source. It can reappear in the form of tendenitis or other back pain, even ulcers or allergies, chronic fatique. Its ok if this is hard to swallow or understand - just remember this 3 years from now. Maybe you are there already, read on.

If I described all the information I have accumulated this thread would be 50 pages long. So I will simply point you in the direction. First, pick up any book by Dr. Sarno (USA) Healing Back Pain. The man has 30 years of understanding the mind/body connection and treating it without drugs, manipulation, or physical therepy. It is priceless. This alone may heal you - but in difficult cases, like myself, you may need more help.

Next, Dr. Sarno and others do not know how to treat very difficult cases. Where they leave off - homeopathy will assist you. Homeopathy is the only avenue that will work on not only the physical level - but with deep acting remedies, they will assist in healing your mind/body force to allow for total healing.

It works like this: Homeo (likeness) - Like heals like. Your body remains injured b/c frankly your body does not recognize the injury - otherwise it would heal it. By introducing infinitesimally small quanities of a substance that replicates the symptoms you have - the body recognizes the substance and produces energy to combat it. By combating the intursion - it ultimatly heals the injury that it did not recognize. You have an energy imbalance. This is the same theory as to why vaccines work - but instead of dealing with germs we are dealing with other ailments. Very simple.

Do not self administer!!! If you are extremely thorough, self-aware, and a perfectionist - you can determine what MAY work for you. There are many web sites (forums like this) where doctors around the world can assist you and keep you from messing yourself up. Research. Better yet - pay the money and go to a Homeopathic Doctor - who will assist you. Don't go to a hybrid - go to the real thing. You do not want drugs.

I recommend first utilizing a deep acting remedy - to be adminstered only once within a month (may need follow up) to cure the personality traits which are channeling your stress into this area. This may be enough. Follow if neccessary by treating accute symptoms.

You need time. If you are new to this pain you need to understand that many suffer decades with this affliction. Taking a couple of months to do it right will save you in the end.

You need to trust me - traditional doctors will only screw you up. Read Dr. Sarno who will help you understand why. Then, if needed, homeopathy will be there to help you.

Best Wishes
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Blue Dog states "Pain in this region is caused by a combination of mental/emotional, personality tendency which harbors stress in this region... The cause is deeply seated within your psyche."

This is a classic example of "blaming the victim" and trying to make money off your suffering.

Clearly this person knows nothing about this condition or MR Neurography.

If you are the least bit inclined to fall for this kind of nonsense, please contact e because I have a bridge in Brooklyn to sell you and I'll throw in a bottle of snake oil for free!

I encourage anyone with with a health problem, whether it be back pain or cancer to laugh off this kind of nonsense.
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Sir,
You speak and argue things you don't understand. Why would anyone do that? I suffered for years only to be cured within weeks. That is ok. This information is not for you.

Every bit of that information along with the treatments are practically free - especially if you compare them to your methods I'm sure.

I am only responding so that others who are at their wits end need not fear there aren't other options. Leave it to them to decide. And don't clog up this board if you have nothing positive to offer. Although you may disagree - this is positive for someone.

Once again - Treatment for a crippling chronic injury less than $50 - just $10 if you need not go beyond the book. I rest my case. Please tell me who's getting rich off of that? By the way - I sell nothing.

Follow this link and then you'll need to call many more people than just me crazy. Eventually, you'll be outnumbered. This is a trial conducted by 60 minutes - yes, that 60 minutes. Credible? Probably a bit more credible than FilmFest.

Best Wishes
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Oh, what utter nonsense! You can't convince me that my bilateral muscle atrophy is caused by emotional stress or anger.

It is accurate that most back pain is not caused by budging disks. But that doesn't mean it is caused by anger either!

I watched the video and it is obvious to me that the so-called success stories are people who have chosen to ignore the pain & push through it. I would love to see independent, long term follow-up of them.

The great problem with this approach is if people actually believe this stuff, when the mind over matter fails, they blame themselves for the failure, not the method.

I want to point out that the video was a piece shown on "20/20" not a trial conducted by "60 Minutes" .

Sure - people are free to try this approach, or faith healing or bleeding with leeches. Good luck to anyone who does.

Now, let's get back to talking about piriformis release surgery.
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I'm not a psychologist - but I'd have to say the tone of your responses seem to fit the personality profile my good friend. Just saying...

Hey, you might think I'm crazy but I really, really hope that your attempts to heal yourself work and work fast. Periformis Syndrome stinks and that's the truth. My research on the surgery proved the procedure to be very iffy or I may have tried it myself.

I am just like you and I had something very affordable cure me. If that happend to you - you'd be right here saying "guys, guess what? you don't have to cut yourself open for $10,000 with only a mild chance of it working!" So that's my job. Someone reading this may not have insurance or may be very poor and will find this useful.

Good luck to you and to all of you. My good friend has felt the need to express his caution - I believe you are all very capable of making your own judgements. You should not listen to anyone without your own research - including me, FilmFest or your doctor.

Best Wishes
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(roll eyes...)
back to the forum...

Hey all,

Just an update. I'm a little frustrated right now. I saw my doc today and we discussed the results of my SI block. Since it was positive for the right SI only and all my butt/leg pain remain I now have the honor of undergoing a discogram. My MRI is clean, but he wants to check the discs anyway. It's for L3, L4 and L5 and will be later this month. Great. More waiting.

I spoke to him about my butt pain and how it seems to be coming from my butt and I spoke to him about PS. He's a spine surgeon, so he wasn't too up on PS and treatment. The discogram is a good diagnostic tool so it's good that I'm having it. I seriously doubt this is from my discs and left there in tears telling my finace "my butt pain is in my butt noymy back!" He keeps on telling me that I have to go through this step, too, in order to make sure we know what is going on.

I am so tired of being like this. I can't work, my butt and legs burn like hell and I sit at home all day searching for an answer to what is wrong with me. I'm in month 11 of this and I am so tired. I want someone to tell me why my butt hurts and my legs burn. I do have back pain, too, and assumed it was related to the SI which was related to the PS. I just don't know and I am scared I'm going to be one of those people where they just don't know what is wrong with me.

I am rescheduling (again) my appt with Filler for February because I have to get this test done. I'm going to get there...eventually.

Anyway, just wanted to check in.

Oh, and, DAVID, how did you determine you had PS before you went to Filler?

Take care everyone,
Julie
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Isn't the point of going to Dr. Filler to find out if you have a piriformis or another complex problem that would be helped by surgery?

I wonder if your spine surgeon doesn't believe in piriformis syndrome & he is determined to find a disk problem no matter what.

Sorry you had to delay your app't.
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