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Hi Barb,

Congrats on your surgery and hang in there! Can I ask, which doctor did your surgery?

Please keep coming and communicating on this board!

Jim
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Leesa, Margie, Johnny,

We are thinking of each of you and wishing each of you the VERY BEST of luck. I know it's been a long hard road to get to this point and probably one of the toughest decisions you have had to make. Don't look back. Don't doubt. Go for it.

Margie, thanks for that news. Everyone needs to hear that stuff. Sometimes, especially for those of us who have been through so much, this type of information can put wings on our backs. This board has done that for me several times when I was really down.

As for me, I'm nearly back to work full time. I'm giving my son rides to/from school. Participated in an all day meeting yesterday. It's still up and down but the trend is up. I talk with Dr. Filler tonight. The degree of ups and downs is so strange. Literally, I can have ZERO nerve pain for an hour and then can have tingling in my left shin for 10 minutes only to disappear for 5 minutes only to re-appear as burning in my right foot for 15 minutes. Each minute, each step, each action can bring a new adventure, good and bad. I think, per Filler's NP, this is perfectly normal and means that my nerves are beginning to really wake up and fire.

Oh well, enough about me. Can't wait to hear from each of you and PLEASE, PLEASE, PLEASE let us know.

Donna, a very sincere thanks for staying on this board even when life calls you to resume normalcy. Your thoughts are very much appreciated.

Your friend,

David
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Julie,

FANTASTIC!!!!!!!!

You are also in our thoughts. It's great to hear that you have people in your corner.

David
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hi scamp,

Wockhardt hospital in India charged me 7500 Us including MRI's and surgery. Just had it done yesterday. The ortho and the neuro had a long debate and bascially decided there was enough evidence to support the diagnosis or an L5 nerve root entrapment or piriformis syndrome. So they decided to do the piriformis. My back pain is worse today, but I'm sitting kind of lobsided so that makes sense. My foot pain doesn't usually kick in til about 30 minutes so I don't know if that has improved or not. The orthopaedic surgeon has done quite a few pirifromis releases and he says its hit and miss. He did find some "bands" over the sciatic that he removed but he's not convinced that that was the problem. The neuro said he could do a lamictomy in a few days if the symptoms don't improve, but that doesnt' give it too much time to improve, and I'm heading back to Canada next week. I had a complete week of relief from a CT guided injection to the piriformis last summer but the subsequent injections didn't do much. My back range of motion was good so the piriformis procedure seemed like the way to go. I had a hamstring repair done a few years ago also, as all this stems from an incident doing the splits of all things. I'll definitely keep ya posted.
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Ronny, not sure where your located, but I just had the muscle release surgery done in Cleveland, Ohio by Dr. Louis Keppler. before my ins I think the cost was about 6-8k. my blue cross blue shield brought it way down though. I seem to be like most others that have posted here. Much better than before surgery, but like Elliot said, its a tough recovery. I am at 8 weeks post op and been back to work since 5 weeks. But my surgeon said its going to take several months for recovery.
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I live in Ohio, still had to travel four hours, but found Dr. Louis Keppler M.D. at St Vincent Charity Medical Center in Cleveland, Ohio. He was recommended to me by a Rehab Dr at the Cleveland Clinic. He and his team have done this surgery many times. He also is a surgeon that uses PRP (Plasma Rich Platelets) in most of his surgeries. He has been a surgeon for around 30 years. He tells me this is a long recovery and he is hanging in there with me. I go back for a 12 week post op visit in June. His office has been very helpful too with me living so far away. Barb
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Search for Dr. Louis Keppler, he does nerve exploratory surgery, open incision for Piriformis Syndrome. He called it exploratory surgery because you never know what they will find. He said I will separate the glute muscle, go deep to the siactic notch area, find out what is in the way of the nerve and clear a path, then close with inside stitches and glue. No staples was used on me. He found the piriformis muscle was strangulating my sicatic nerve. he cut it loose. One night in hospital, then home and back to light office duty at 5 weeks. Still have pain, no where near as bad as before surgery. As everyone is saying, its a tough road, but worth it.

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Johnnyrotten,

I'm glad to hear you made it out of surgery safe and sound. Please keep us posted on how you are doing and whether or not you choose to have the laminectomy. I am keeping you in my prayers.

Take care,
Julie
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ronnyjotten:

Good to hear you made it through. I'll be sending healing thoughts your way. Take it slow and easy.

Leesa
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Hi ronnnyjotten

I really admire your bravery in travelling from Canada to Mumbai, India. I am crossing my fingers and praying that you'll make a speedy recovery. Please Please Please keep us posted on your progress. I was offered ps release by a hip surgeon who happens to be Indian but who left the UK for Switzerland. I have found a couple of names of other surgeons here but have lost the energy to ask for referral as I know it will take months and months to get to see someone else and start the process all over again.


You have opened another door to this forum. Good luck and God bless.


JoSurgery in I
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Ronnyjotten,

Good to hear from you. Please keep us all posted during your recovery. We're all cheering you on and praying for a speedy recovery!

Margie
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Question - has anyone on this forum had muscle pain down their leg below the incision? I did mention this to my surgeons PA, she said something about things dropping down. Didn't think to ask her what was dropping. I have started some side leg lifts, but how long did this surgery produced type pain last? Thanks,
Barb
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Hey all,

Discogram was negative. We're now pretty darn certain that my right SI joint is what is causing the back pain and I have bilateral PS. Now the cards are on the table. I *have* to get my SI pain under control or fixed and I *have* to have the PS treated, too. I wish I could do both at once. :(

But, it's not a disc. They are all healthy and good. So, now we know and don't ever have to wonder about that again. All that is left is the diagnostics for PS and I will be able to formulate a game plan.

I feel like I have a long road ahead of me. But I know I'll make it to the other side of this. I have to. I just have to.

Take care,
Julie
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Is your SI joint hypermobile? I had a hypermobile SI joint that was healed two months after PRP injection. I used a place that had a Regennexx machine. In Ohio it cost me $1100 last Aug, one week off work, and two months taking it easy and no matter re lower back pain. They say it doesn't work for everyone, but I am so glad I didn't get the fusion. When insurance wouldn't pay for the SI joint fusion, that's when my research found PRP. The the PIrifromis Syndrome came out with a vengeance, had surgery, that was 9 weeks ago today. Still recovering, very tough recovery. But so far, very much worth it. Good luck to you! Use alt a deep ice and a rice bag for relief till you get these fixed, they can help a lot!!
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One more question, did they do a pelvic MRI? Sometimes there can be a problem in the Pelvic region causing this type of pain. They made me get one before my PRP injection.
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