This reply is for Mike. I believe my issue started occuring after I had been using a recumbent bike at the gym for a few months. One day I just started having the issue so I believe that could have been a potential cause for me. I stopped the bike but the issue persisted. Over a few weeks time i would find that after I got off the bike my entire backside tingled. I figured I ". . . got a great work out in." Looking back today, that was likely me doing some damage. One day following a major workout (1.5 hours), I found my penis was inflated in the middle but not the top when I went to the bathroom. It was like I had a ring around it and the top and the bottom weren't hard but the middle was. It improved within three days but then I had one episode of getting up a night after that.
I've had the issue two years now but I've never had an issue with an erection. In fact as I get ready to turn 40, I find that my sex drive is stronger than ever.
John
I've had the issue two years now but I've never had an issue with an erection. In fact as I get ready to turn 40, I find that my sex drive is stronger than ever.
John
Loading...
Still no relief from symptoms here, just heading into my second year with this and I've given up with standard urologists.
I've noticed that if I'm dehydrated it seems to wake me up less, but that could also be coincidental.
As with John, I remain reluctant to try strong meds.
Rezz
I've noticed that if I'm dehydrated it seems to wake me up less, but that could also be coincidental.
As with John, I remain reluctant to try strong meds.
Rezz
Loading...
Below is the correspondence I had with an author, Dr. Mels van Driel, of a scientific article on SRPE, SLeep Related Painful Erection. I would have visited this doctor at Johns Hopkins in Baltimore but I am in Ny. If I get no help soon from the urologists I am seeing now, I may indeed take a trip down there. Just last night and every night for the last year, I wake up 4 or 5 times a night with a abnormally hard erection and need to urinate or walk around so the erection will detumesce. Today I visit my urologist again, and I will strongly argue that he give me baclofen.
Dear Eugene,
Today, I prefer baclofen in doses up tll 60 Mg ante noctum. Dr. Burnett from John Hopkins in Baltimore is the best specialist for you!
Kind regards,
Mels van Driel, Groningen, The Netherlands
Verstuurd vanaf mijn iPhone
Op 28 sep. 2015:
Dear Dr. van Driel -
I came across you article on SRPE:
J Sex Med. 2008 Apr;5(4):909-18. Epub 2007 Oct 30.
The treatment of sleep-related painful erections.
van Driel MF1, Beck JJ, Elzevier HW, van der Hoeven JH, Nijman JM.
Unfortunately, I seem to have this problem. But, two urologists I have gone to here in the US have never heard of it. After reading your article I started taking Clonazepam and my symptoms subsided though I have needed to increase the dosage to 1.5 mg each night and the problem is reduced but not gone. I still have one or two SRPE events per night.
First, what is the appropriate specialist I should see regarding this?
Second, have their been any recent developments in treatment of this problem?
Thanks,
Eugene
Dear Eugene,
Today, I prefer baclofen in doses up tll 60 Mg ante noctum. Dr. Burnett from John Hopkins in Baltimore is the best specialist for you!
Kind regards,
Mels van Driel, Groningen, The Netherlands
Verstuurd vanaf mijn iPhone
Op 28 sep. 2015:
Dear Dr. van Driel -
I came across you article on SRPE:
J Sex Med. 2008 Apr;5(4):909-18. Epub 2007 Oct 30.
The treatment of sleep-related painful erections.
van Driel MF1, Beck JJ, Elzevier HW, van der Hoeven JH, Nijman JM.
Unfortunately, I seem to have this problem. But, two urologists I have gone to here in the US have never heard of it. After reading your article I started taking Clonazepam and my symptoms subsided though I have needed to increase the dosage to 1.5 mg each night and the problem is reduced but not gone. I still have one or two SRPE events per night.
First, what is the appropriate specialist I should see regarding this?
Second, have their been any recent developments in treatment of this problem?
Thanks,
Eugene
Loading...
Yes, that is him. Let me know if you plan to go see him. I would nquite with his secretary if he is knowledgeable with how to treat SRPE specifically since it seems most urologists have never heard of it.
Again, I have not seen him Dr. Burnett yet. I may travel to see him if I do not get successfully treated in NYC.
In fact, I am writing from my urologist's office n NYC right now. I will ask him for baclofen today. I want a solution.
Eugene
Again, I have not seen him Dr. Burnett yet. I may travel to see him if I do not get successfully treated in NYC.
In fact, I am writing from my urologist's office n NYC right now. I will ask him for baclofen today. I want a solution.
Eugene
Loading...
hi I am from Canada and I almost tried all of above medicines with no effect except Propecia with a little bit affect, I also went for pelvic floor therapy with no effect. I have a question for you , do you also get lower back pain, I get pain with erection and during day I also have the pain all day.
Thanks
Thanks
Loading...
I also sent email to the doctors who wrote SRPE article and amazingly they replied , here is one respond from one of them:
"Please try or 20 Mg amytrytine 10.00 pm or (because especially the nocturnal erections are androgen dependent) 50 Mg cyproteronacetate
Daily, in general the erotic erections Will persist."
however my wife is a doctor and she told me not try above medicine because it is for depression. :(
"Please try or 20 Mg amytrytine 10.00 pm or (because especially the nocturnal erections are androgen dependent) 50 Mg cyproteronacetate
Daily, in general the erotic erections Will persist."
however my wife is a doctor and she told me not try above medicine because it is for depression. :(
Loading...
I also suffer from lower back pain and there seems a correlation between the pain and the erections for sure.
Rezz
Rezz
Loading...
Eugene here. I asked my urologist for baclofen, which he fairly easily agreed to. He gave me a prescription for 10mg tablets
I took 15mg before bedtime by breaking a second tablet in half. Well, my erections at night definitely subsided, they were not nearly as rigid and bothersome. It definitely seems that baclofen was effective. I will continue tonight but I will lower the dosage to 5 mg.
The reason is that I think it was a mistake to take too much dosage as an initial dose. I had extremely vivid and far out dreams, they were very interesting but made me really uncomfortable and restless the entire night so much so much so that I woke up really affected by the dreams. It is what I imagine a drug trip to be. Baclofen works on gaba b receptors in the brain which acts as an inhibitor or relaxor of muscles. It is used in people with multiple sclerosis who have muscle spasms. It appears to be a relatively safe drug to take, based upon my readings and there seems to be little tolerance problems meaning it remains effective long term.
My plan will be to take 5mg tonight, for a few days, then up to 10mg for a few days then up to 15mg then maybe up to higher dosages if I don't get the desired effect. the articles on sleep related painful erections have found that some patients need up to 40mg.
So I begin my journey to effectively treating this problem. Maybe you others should request your doctor prescribe baclofen, and we can all see how effective it is for us and compare notes.
I took 15mg before bedtime by breaking a second tablet in half. Well, my erections at night definitely subsided, they were not nearly as rigid and bothersome. It definitely seems that baclofen was effective. I will continue tonight but I will lower the dosage to 5 mg.
The reason is that I think it was a mistake to take too much dosage as an initial dose. I had extremely vivid and far out dreams, they were very interesting but made me really uncomfortable and restless the entire night so much so much so that I woke up really affected by the dreams. It is what I imagine a drug trip to be. Baclofen works on gaba b receptors in the brain which acts as an inhibitor or relaxor of muscles. It is used in people with multiple sclerosis who have muscle spasms. It appears to be a relatively safe drug to take, based upon my readings and there seems to be little tolerance problems meaning it remains effective long term.
My plan will be to take 5mg tonight, for a few days, then up to 10mg for a few days then up to 15mg then maybe up to higher dosages if I don't get the desired effect. the articles on sleep related painful erections have found that some patients need up to 40mg.
So I begin my journey to effectively treating this problem. Maybe you others should request your doctor prescribe baclofen, and we can all see how effective it is for us and compare notes.
Loading...
Baclofen will likely help you and yes when you first take it it can cause mental/psychological side effects.
I personally don't like taking it but if I don't I'll be in excruciating pain.
I personally don't like taking it but if I don't I'll be in excruciating pain.
Loading...
Has anyone had any digestive changes with this problem? I find that I have a lot more gas in the morning in particular and my stomach makes all sorts of gurgling noises over the past 2 years in particular. I've been managing the issue for 3 years total. No real improvement but it also hasn't gotten worse. Also, I'm seeing different qualities of symptoms on here. Is anyone truly in pain when they wake up at night? For me its definitely a harder erection than typical when I wake up but it is more uncomfortable than it is painful.
thanks,
John
thanks,
John
Loading...
Harder erection than normal, and just very uncomfortable to sleep with because it persists. But, as you say, it is not painful in the usual sense. There is no stinging or burning sensation as might occur in priapism when the tissue becomes starved of oxygen.
Loading...
hey guys , I am taking Propecia , I am having this problem for over a year and since I started propecia it is working good and I do not wake up with pain, I took 1-2 mg Propecia and 10 mg baclefon everynight, Propecia 1 mg is not usually covered under insurance coverage since it is for hair growth but you can ask your doctor to give you 5 mg and then take quarter of the pile everynight, try it, hopefully it work for you as well
Loading...
I started on baclofen about 2 weeks ago and noe zi take 15 mg before bed and I dot get erections at night anymore. Occasionally, 15 mg dpes not work or seems to wear off during the night. I just take 5 mg more and back to sleep. This seems to have solved my problem, and right now it is difficult to believe how disturbing this problem was just two weeks ago, waking ,e up 4 times per night with an erection that would not go away.
I am very happy I seem to found relief and encourage everyone to try baclofen, although Imhave read that others have needed a higher dosage to get relief.
Eugene
Loading...
Thanks for your updates Eugene. It's great to hear that you no longer suffer from the nightly disruptions!
I'm trying to hold off taking baclofen for as long as I can, in the hope that a natural alternative may be discovered in the future.
Merry xmas,
Rezz
I'm trying to hold off taking baclofen for as long as I can, in the hope that a natural alternative may be discovered in the future.
Merry xmas,
Rezz
Loading...