Red/Purple Painfully Swollen Feet & Legs :: Dr.'s can't figure it out!!!

Please let me know when you find out what the diagnois is,,Please. I have awful burning pain with swelling up from my heels to my chest. It started below my knees and so far up to my chest in 2 weeks..I was turned away from one ER four times. Went to another hospital and was admitted. Treating with anti biotics but not touching..

I have only one swollen leg now for three months. The leg below the knee was purple, sore and swollen and slowly moved down to foot and just the foot and ankle are purple now most of the time. Same thing here if I wear the support socks and elevate the leg it will get better. If I put that leg way up above my heart it will go flesh color again but back to purple when I put it down. Had ultrasounds showing now blood clots ( I did have blood clots in that leg two years ago.) I had lung tests and no copd. I do not sleep well and will check into sleep apnea. My lymph nodes are enlarged and my liver is dense and enlarged. I am 60 years old. The doctors do not know what it is and I did the two weeks on antibiotics also and that just took down the swelling a bit. Would love to know if anyone has any diagnoses?

possible peripheral vascular disease;would explain pain,discoloration etc talk to your specialist

i have just started with the same problems was looking for information when i found your conversations. i am on oxygen at night soon to be tested for sleep apnea. i am diabetic 53 white caucasian. i am also extremily over weight. i am scared. i'm enjoying being a grand mother but i most nap often i'm always not feeling well.i'm given nothing for the pain my doctors won't prescribe any. the whole thing is exabcerated by my psorisis on my feet sorry about the spelling i don't know how to use spell check except for it to tell me i'm wrong i will continue to look here for updates

Reading your story, it was like I wrote it. In some things, I am not effected like the charlie horses that last for hours. Mine occur often but only last for seconds. The pain in my hands also goes all the across my upper back nad shoulders. It drives me crazy! Ice packs seems to help that the most. I have have carpal tunnel surgery to correct ths to no avail. I have a palnoma tumor removed from my upper back to no avail. They say I have fibromyalgia, RA, Possible nerve damage from breast cancer 5 years ago. These symptoms came on over night. This was not slowly things creeped up. I have one pair of shoes I can wear. They are very nig on me, and the top barely touches my feet. When these wear out, which is happening I dont know what I am going to do. I feel for you. I think I am going to ask for a stress test and see if maybe this is a heart issue. I cant think of what else it could ne.

I see we list things about ourselves.

I am 52 white female. I am very over weight, I have had breast cancer, I have lots of problems with kidney stones (probably 30 surgeries) life long problem. I fell at work off a ladder 13 years ago. Since then, I have had both knees replaced, lots of problems with my back. I do have sleep apenea. Ive had a complete hystorectemy, gall bladder is gone and so is my appendix. I got cellulitus from my cancer surgery. Geez, I think that is all. Sorry for the misspellings

Have the drs looked into it being Raynauds Syndrome

have the doctors looked into it being Raynauds Syndrome my 23 yr old sister has . same problem and drs haven't figured out what it is either

I have the same symptoms and have Reflex Sympathetic Dystrophy (RSD), or Complex Regional Pain Syndrome as they call it now. My legs  get bright red, very painful to even brush against - at times purple. I have trouble walking - my muscles feel very tight and it hurts, especially when standing still. I had a crush injury in my hand 12 years ago and this has spread and worsened. Look into this as a diagnosis - it's not one a typical one.

Did you find out what this is? My mother-in-law was taken to a burn unit today because she has had what sounds like the same thing for months and the doctor's can't figure it out. She got into so much pain and it had spread up her legs. My sister-in-law says her legs are starting to have a smell to them. I've seen pictures, and her feet and legs look like "zombie legs." She can't walk because of the pain in her feet and hasn't been able to for 2 months. She was a very active person before this, so it's a real bummer. Another clue is that it is also in her hands, but not to the extent of the feet. PLEASE RESPOND! You could really help someone and my kids are dieing to see their grandmother and play again!

Have you heard of Peripheral arterial disease? My dad has been having the same problems with his feet and his doctors can't figure it out either. I've been doing some research and it sounds a lot like a possibility. I hope every one here finds out what's wrong and gets well! 

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My mother has suffered for the past ten years from COPD. Appoximately 5 years ago she started retaining water in her legs and just recently they have started discoloring, turning purple. It turns out that pulmonary hypertension and/or congestive heart failure are a co-disease associated with COPD which tend to cause vascular restriction and eventually right ventrical failure. The purple legs are a direct result of poor circulation in the vascular system caused by pulmonary hypertension. Unfortionately, there isnt a way to completely cure yhe discomfort, discoloration , and swelling, only ways to ease them a bit. Best of luck and god be with you. Josh

To everyone, I sympathize and share many of your symptoms and frustrations. At this point I am confident (from a music major with a law degree expertise) that my swelling, painful, tingling and numb feet. I have not been dx'd with diabetes and have constant blood tests. I have undergone a right side heart cath which definitively dx'd Pulmonary Hypertension probably secondary to liver disease and a subsequent transplant. I am being treated by the PAH clinic at Duke. They have RX'd diuretics, Whatever the generic name for cialis and a relatively new drug called Opsumit. The latter drug seems to have really helped with the Pulmonary shortness of breath and fatigue but may be exacerbating the lower extremity edema which I think causes the pain and neuro deficits. Still VERY FRUSTRATING although I am extremely grateful to be on "this side of the dirt". Not only is walking and almost any ambulation almost always painful but comeon! the procession of my choir on Sunday Morning or standing and sitting during the Anglican service while wearing EEEE width alan edmonds is infuriating. To top all of that off my beloved internist, my rock star transplant team and a friend who is a vascular surgeon in an area of our state within the proximity of a major league medical university, tend to shrug as if to say "Hey, You're still alive aren't you.?" As I type this I am attending a professional academic conf but skipped a friend and future national president's receptin bc I couldn't fathom the though of shoving my feet into dress shoes or standing, as I arrived this afternoon I suspect that flying with the compression and de-compression issues makes it worse. I hope some of my experience and good results as well as my continued frustration to the point of depression, helps someone.

I do not know how to post my above "tale of Woe" to the group at large and it looks like it only was directed to one poster. Everyone, including the moderator has my permission to post "my post' at large.

Sounds like you might have Lymphedema.

If you haven't been tested for Lyme disease...you should get tested! It creates multiple symptoms causing all kinds of issues. This is caused by a tick bite, I have stage 3 myself. I never saw a tick or got the red bulls eye rash. Please rule this out....it stumps doctors!