Hello, let me first tell you that I came upon this forum because I have been free of my symptoms for three years and am currently going off medicine that finally solved my problem, however, I am suddenly experiencing part of my problem again and thought maybe I could find something else out.
I first started with a severe attack of Vertigo for 56 hours, few months later it happened again and a few months later yet again. After the ear, nose and throat specialist saying again that it was a "virus" my family doctor called me when he found out I was in the hospital and said "It's not a virus". He has studied the head for so long because his wife suffers severe migraines. He said I am sure you have a defect in your inner ear and we can do all the MRI's etc. and it still may not show up but I am going to give you medicine that I am sure will take it away. He gave me Xanax XR 1 mg and within four hours I was up, the room wasn't spinning and I was sick as a dog. I was even able to go to work the next day. I didn't like the fact that it was listed as an anxiety drug but it worked! I was on it for a couple years and decided I wanted to try and go off of it. I was down to 1/2 a mg when my daughter was severely sick and I just got stressed out and it started again (that was in June) and I had to go back up. Since I was taking that for the Vertigo I still needed to take that but then had to take 5 mg of Lexapro for anxiety. Long story short I am going down on the Xanax but you must do it very slow and I think my heaviness in the head and a feeling of unsteadiness is the effect as I developed a chemical addiction to the drug, not a psychological addiction. People that develope a psychological addiction would be taking more and looking all over to get more. I want to get off. The doctors have said when you are sick and need a medicine it works you do not become addicted, some of you may beg to differ with that.
Although there may be a defect that causes this I still believe that stress is the cause that brings it on so think if you have had extra stress, a death in the family (that was my original stress when this happened), etc.
Also, for those that get the true ROOM SPINNING where you can't get out of bed and the room is literally topsy turvey, a trip to the nurologist and him doing a special adjustment in a matter of a few minutes will take that away. It's calcium deposits that get in the fluid and throw off your balance. That is a horrible nasty feeling but the adjustment that he does will work. I hope this helps as it is AWLFUL and worrying about it comming back at any time is worse but since being on the medicine I only had it happen once and it wasn't for but a minute.
I first started with a severe attack of Vertigo for 56 hours, few months later it happened again and a few months later yet again. After the ear, nose and throat specialist saying again that it was a "virus" my family doctor called me when he found out I was in the hospital and said "It's not a virus". He has studied the head for so long because his wife suffers severe migraines. He said I am sure you have a defect in your inner ear and we can do all the MRI's etc. and it still may not show up but I am going to give you medicine that I am sure will take it away. He gave me Xanax XR 1 mg and within four hours I was up, the room wasn't spinning and I was sick as a dog. I was even able to go to work the next day. I didn't like the fact that it was listed as an anxiety drug but it worked! I was on it for a couple years and decided I wanted to try and go off of it. I was down to 1/2 a mg when my daughter was severely sick and I just got stressed out and it started again (that was in June) and I had to go back up. Since I was taking that for the Vertigo I still needed to take that but then had to take 5 mg of Lexapro for anxiety. Long story short I am going down on the Xanax but you must do it very slow and I think my heaviness in the head and a feeling of unsteadiness is the effect as I developed a chemical addiction to the drug, not a psychological addiction. People that develope a psychological addiction would be taking more and looking all over to get more. I want to get off. The doctors have said when you are sick and need a medicine it works you do not become addicted, some of you may beg to differ with that.
Although there may be a defect that causes this I still believe that stress is the cause that brings it on so think if you have had extra stress, a death in the family (that was my original stress when this happened), etc.
Also, for those that get the true ROOM SPINNING where you can't get out of bed and the room is literally topsy turvey, a trip to the nurologist and him doing a special adjustment in a matter of a few minutes will take that away. It's calcium deposits that get in the fluid and throw off your balance. That is a horrible nasty feeling but the adjustment that he does will work. I hope this helps as it is AWLFUL and worrying about it comming back at any time is worse but since being on the medicine I only had it happen once and it wasn't for but a minute.
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To the researcher//student:
Does the dizziness occur after eating/ around lunch time?
no, for me it's been throughout the day
Do you find it a lot harder to read and concentrate on reading?
no, I've been on the computer for at least an hour, and read the entire paper today
Do you experience abdominal bloating after meals?
sometimes, definitely not always
Is your fatigue accompanied by weak limbs?
no
Is your fatigue worse in the day/night time?
no, it's throughout the day
Do you urinate exessively?
I don't think so...!
I hope this helps you, help all of us out here.
Does the dizziness occur after eating/ around lunch time?
no, for me it's been throughout the day
Do you find it a lot harder to read and concentrate on reading?
no, I've been on the computer for at least an hour, and read the entire paper today
Do you experience abdominal bloating after meals?
sometimes, definitely not always
Is your fatigue accompanied by weak limbs?
no
Is your fatigue worse in the day/night time?
no, it's throughout the day
Do you urinate exessively?
I don't think so...!
I hope this helps you, help all of us out here.
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Hi, Im also your age and find I have gone through a very stressful time resulting in the same symtoms as you... exactly. I'm wondering if you have had any luck with your search for self improvement and a clear head.
good luck
karl fenning
good luck
karl fenning
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the last person who wrote back on 1/10/08.. theres no name, it just says guest but i'm hoping you read this because you are describing EXACTLY how i feel with the "jolt" like feelings and the constant heavy head, my eyes feel like they dont want to sty open.. their always a bit closed, and the dizzyness is so hard to explain.. its not liek things are moving its just like my head is always moving feeling and when i try to close my eyes and lie down i cant actually see that nothing is moving so therefore i really feel dizzy and it gets me nauseas... it kind of stems from the back of my head where my spine meets my head... its just terrble :[
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I have many of these symptoms. I was thinking something might seriously be wrong. 1 week ago I traveled to San Francisco, from Sacramento 2 weeks of training. I thought I caught the flu as my head seems to spin alot. The location I'm staying is on the 27th floor, and my classe are on the 12th floor. We are fed all the soda's we can drink, so I was drinking diet coke's about 4 a day. I can't really change the location I'm staying but for the next week I will cut out the aspartame, and see if that helps
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Wow, it sucks that no one has a diagnoses for this yet. I have been unbearably nauseas for months the fatigue was so bad I went to the dr an of course nothing abnormal. Then went to another dr more test all normal again. Ultrasound normal. ER visit with possible appendesitis...normal! What the hell do i do? I went to the Eye Dr. today and there is a small difference between my left and right eye he prescribed glasses thinking it might help with my balance. I have a feeling this is not going to help. I don't know some people say Lyme Disease and that it comes back negative a million times. It could be anxiety as I am under heavy stress but this whole thing started months before the stress did. Do I have a brain tumor? Is it neurological. I'll try anything at this point but my insurance is making me jump through hoops. HELP!
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Has anyone looked into mercury as a possible cause?
I broke a tooth a while back (which exposed a filling), and the first time I had my teeth cleaned thereafter, my symptoms began within a few weeks. It started with bizarre abdominal pains, then came dizziness, sensitivity to noises & light, headaches and subtle nausea, extreme fatigue and heavy head feeling, etc., etc.
I have no idea if the tooth issue is related to the symptoms, just curious if anyone else has explored this. I've had virtually every other possible diagnostic test you can think of already.
I broke a tooth a while back (which exposed a filling), and the first time I had my teeth cleaned thereafter, my symptoms began within a few weeks. It started with bizarre abdominal pains, then came dizziness, sensitivity to noises & light, headaches and subtle nausea, extreme fatigue and heavy head feeling, etc., etc.
I have no idea if the tooth issue is related to the symptoms, just curious if anyone else has explored this. I've had virtually every other possible diagnostic test you can think of already.
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Don't flu shots have mercury in them too!? The nausea set in right after a flu shot 3 months ago and never went away!
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I had a flu shot and the nausea set in right after that and still hasn't gone away 3 months later. Don't flu shots contain Mercury????
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It looks like they do, just based on a quick google search. For what it's worth, I had a flu shot several months into this ordeal, and around that time developed a new symptom: pain between my eyes and along my nose. (I had the flu shot on 10/10/07, and according to medical records I first reported the face pain to my doc on 10/24/07). Could be a coincidence . . . but I am fresh out of other ideas.
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I am 33 years old female that eats right and runs marathons. I had an episode of vertigo 7 days ago and ever since have a headache, dizziness or nausea every day. It's most of the day, with no pattern. Because I have an acupuncturist who is specialized in NRT (nutrition response training), he was able to find it was related to mold. He asked me if I had done anything recent to my house or had a leak in my roof. We recently had a leak come through. 90% of mold problems are found in roofs, the rest being in window frames and bathroom/kitchen fixtures. My acupuncturist has seen this before, and said it's very important to get the mold out of the house. We are having our house looked into.
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Sounds like a Chiarti 1 Malformation possibly with associated syrinx.
Chiarti 1 malformation is a fairly common cogenital (birth) defect and is suspect of hereditary influence.
Chiarti is the name of the gentleman that found/described 4 cranial malformations. Forget the other three for now. Type 1 is a malformation of the shelf upon which rests ones cerebellum - right at the base of the skull.
The Cerebral tonsils slip down through the spinal chord opening and actually rest on the spinal chord.
Many people with this type of malformation are asymptomatic. Of those that are symptomatic, the most common symptom is headache.
Keep reading.
The headaches generally originate at the base of the skull/top of the spine, are frequently assiciated with neck pain and also shoulder pain. These rather unique headaches although nearly identical to a tension headache, are almost always brought about during some straining event...coughing, sneezing, straining during defacation, heavy lifting.
In addition, the malformation is also fairly frequently associated with another abnormality known as hydromyelia or syringomyelia or syrinx or cyst. The brain resting on the spinal chord causes a disruption of the flow of cerebrospinal fluid. The fluid backs up in a canal in your spinal column that should have closed shortly after birth. If this pocket of CSF expands, it can cause all kinds of problems like: vertigo, fatigue, tingling in hands or feet (depending on location of syrinx on spine), faintnes, nausea, hyperreflexivity and/or attaxia (weird muscle reaction), weakness, drop attack (sudden and complete loss of muscle control causing a fall).
Magnetic Resonance Imaging clearly identifies both Chiarti 1 Malformation and any associated syrinx if one exists and enough of the spine is imaged.
MRI's cause no harm.
If you have these malformations, it is relatively important that you not use chiropractic manipulation to relieve symptoms and not have lumbar or other spinal puncture in diagnosis.
Besides, MRI's don't hurt.
There is no cure for Chiari 1 Malformation but surgery, which is relatively safe, can sometimes relieve symptoms and can be important in treatment of an associated syrinx which may lead to serious complications.
Chiarti 1 malformation is a fairly common cogenital (birth) defect and is suspect of hereditary influence.
Chiarti is the name of the gentleman that found/described 4 cranial malformations. Forget the other three for now. Type 1 is a malformation of the shelf upon which rests ones cerebellum - right at the base of the skull.
The Cerebral tonsils slip down through the spinal chord opening and actually rest on the spinal chord.
Many people with this type of malformation are asymptomatic. Of those that are symptomatic, the most common symptom is headache.
Keep reading.
The headaches generally originate at the base of the skull/top of the spine, are frequently assiciated with neck pain and also shoulder pain. These rather unique headaches although nearly identical to a tension headache, are almost always brought about during some straining event...coughing, sneezing, straining during defacation, heavy lifting.
In addition, the malformation is also fairly frequently associated with another abnormality known as hydromyelia or syringomyelia or syrinx or cyst. The brain resting on the spinal chord causes a disruption of the flow of cerebrospinal fluid. The fluid backs up in a canal in your spinal column that should have closed shortly after birth. If this pocket of CSF expands, it can cause all kinds of problems like: vertigo, fatigue, tingling in hands or feet (depending on location of syrinx on spine), faintnes, nausea, hyperreflexivity and/or attaxia (weird muscle reaction), weakness, drop attack (sudden and complete loss of muscle control causing a fall).
Magnetic Resonance Imaging clearly identifies both Chiarti 1 Malformation and any associated syrinx if one exists and enough of the spine is imaged.
MRI's cause no harm.
If you have these malformations, it is relatively important that you not use chiropractic manipulation to relieve symptoms and not have lumbar or other spinal puncture in diagnosis.
Besides, MRI's don't hurt.
There is no cure for Chiari 1 Malformation but surgery, which is relatively safe, can sometimes relieve symptoms and can be important in treatment of an associated syrinx which may lead to serious complications.
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Chiari 1 Malformation is a congenital defect of the hindbrain.
The herniation of the cerebellar tonsils though the foramen magnum. Your brain slides through the hole through which your spinal chord is supposed to connect.
Symptoms (in order of most often cited):
occipital headache - headache at base of skull often associated with neck and even shoulder pain. The headaches are almost always associated with strains such as sneezing, coughing, strain during defacation, WEIGHT LIFTING (someone described these headaches perfectly and then mentioned they were a weightlifter).
Neck pain and/or neck stiffness
Feeling of heavy head
and then in no particular order:
fatigue, dizziness, unbalance, difficulty swallowing, hiccoughs, sleep apnea, and some others I'm sure I missed.
Generally this is no big deal - fairly common. Some estimates are 1:1000.
Occassionally though, the cerebellum rests on the spinal chord restricting or interfering with the flow of cerebrospinal fluid.
This fluid flows up your spinal chord and around your brain (through 4 ventricals), and back out where it gets recycled.
If you have Chiari 1 malformation, it is somewhat likely that you also have the leftover canal in your spinal column which should have closed shortly after your birth. If it's there and the CSF is impeded, it can back up into your spinal column and form a cyst or syrinx. This is called hydromyelia or syringomyelia.
Symptoms:
fatigue
vertigo
dizziness
tingling in hands or feet (depending upon the location of the syrinx on your spine)
Although there is no cure for Chiari 1 malformation, surgery can sometimes relieve serious symptoms. If you have a syrinx and increasing symptoms, surgery becomes more imperative. There is a chance that the syrinx can cause irreversible damage to your spinal column including paralysis.
Why I know:
Experiencing increasing fatigue and increasing episodes of vertigo and weakness, increasing frequency of these occipital headaches I've had since puberty. Fainted/lost muscle control on Tuesday morning. Tuesday night was experiencing such vertigo and headache pain that I became nauseus and started vomiting. The pressure caused by vomiting increased the headache pain which caused more vomiting.
Dr. called in anti nausea medication.
Wednesday morning feeling worse although no longer vomiting. Went to Dr. had another fainting/drop attack in waiting room and again in exam room. Sitting upright caused extreme fatigue. Lying down caused vertigo. Change in position caused drop attack/fainting.
Blood pressure normal
Not pregnant
No flu virus
not anemic
no other cause found.
Two doctors and an emergency room visit by Thursday morning. (2 days). At this point I couldn't walk - right leg hyperreflexive (overstepping), very dizzy, head splitting...
MRI Thursday night which revealed Chiari 1 malformation and 1.5 mm cyst on my spine (syringomyelia).
Symptoms have greatly improved on their own but still can't drive and sleep 16 hours per day. Neurologist is an id**t but seeing neurosurgeon next week.
The herniation of the cerebellar tonsils though the foramen magnum. Your brain slides through the hole through which your spinal chord is supposed to connect.
Symptoms (in order of most often cited):
occipital headache - headache at base of skull often associated with neck and even shoulder pain. The headaches are almost always associated with strains such as sneezing, coughing, strain during defacation, WEIGHT LIFTING (someone described these headaches perfectly and then mentioned they were a weightlifter).
Neck pain and/or neck stiffness
Feeling of heavy head
and then in no particular order:
fatigue, dizziness, unbalance, difficulty swallowing, hiccoughs, sleep apnea, and some others I'm sure I missed.
Generally this is no big deal - fairly common. Some estimates are 1:1000.
Occassionally though, the cerebellum rests on the spinal chord restricting or interfering with the flow of cerebrospinal fluid.
This fluid flows up your spinal chord and around your brain (through 4 ventricals), and back out where it gets recycled.
If you have Chiari 1 malformation, it is somewhat likely that you also have the leftover canal in your spinal column which should have closed shortly after your birth. If it's there and the CSF is impeded, it can back up into your spinal column and form a cyst or syrinx. This is called hydromyelia or syringomyelia.
Symptoms:
fatigue
vertigo
dizziness
tingling in hands or feet (depending upon the location of the syrinx on your spine)
Although there is no cure for Chiari 1 malformation, surgery can sometimes relieve serious symptoms. If you have a syrinx and increasing symptoms, surgery becomes more imperative. There is a chance that the syrinx can cause irreversible damage to your spinal column including paralysis.
Why I know:
Experiencing increasing fatigue and increasing episodes of vertigo and weakness, increasing frequency of these occipital headaches I've had since puberty. Fainted/lost muscle control on Tuesday morning. Tuesday night was experiencing such vertigo and headache pain that I became nauseus and started vomiting. The pressure caused by vomiting increased the headache pain which caused more vomiting.
Dr. called in anti nausea medication.
Wednesday morning feeling worse although no longer vomiting. Went to Dr. had another fainting/drop attack in waiting room and again in exam room. Sitting upright caused extreme fatigue. Lying down caused vertigo. Change in position caused drop attack/fainting.
Blood pressure normal
Not pregnant
No flu virus
not anemic
no other cause found.
Two doctors and an emergency room visit by Thursday morning. (2 days). At this point I couldn't walk - right leg hyperreflexive (overstepping), very dizzy, head splitting...
MRI Thursday night which revealed Chiari 1 malformation and 1.5 mm cyst on my spine (syringomyelia).
Symptoms have greatly improved on their own but still can't drive and sleep 16 hours per day. Neurologist is an id**t but seeing neurosurgeon next week.
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"Sounds like a Chiarti 1 Malformation possibly with associated syrinx.
Chiarti 1 malformation is a fairly common cogenital (birth) defect and is suspect of hereditary influence."
Hopefully that info may help some people on this board . . . but personally I have had multiple MRIs and CT scans of my brain/head/spine and they found nothing like that. (And nothing else to explain the dizziness, heavy head, fatigue, etc.)
Chiarti 1 malformation is a fairly common cogenital (birth) defect and is suspect of hereditary influence."
Hopefully that info may help some people on this board . . . but personally I have had multiple MRIs and CT scans of my brain/head/spine and they found nothing like that. (And nothing else to explain the dizziness, heavy head, fatigue, etc.)
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23 yr old /M
i was hanging out out at a friends one night
we were smoking pot, something i had been doing for some years now
all of a sudden i was stricken with a dizzy nauseating feeling
as i left his 11th floor appt i was in the elevator and i looked in the mirror
and my eyes were super dialated.
my eyes returned to normal
this feeling has remained for about 5 days now.
i went to the doctor on day 2 and was prescribed antivert and antibiotics
one thing i noticed was the feeling, it was familiar to be because i got it a few times prior after smoking pot out of aluminum/tin foil
while at my friends we were just smoking out of glass. but this is when i had the feeling begin.
needeless to say since then i have given up smoking pot (and cigarettes) cold turkey cause i was quite worried
over the past 5 days i havnt done much and i have fallen asleep a few times throughout the day and woken up an hour or 2 later sweating profusely.
most of the time when i wake up i feel normal , but when i get up and start moviing around the feeling creeps back into my head.
my head feels like its full of air and sometimes the back of my neck and head aches ( minor - to more severe when trying to go to sleep at night )
its day 5 and my right eye seems to be watery and earlier while on the phone with my mother ( phone on left ear ) my right ear began to gurgle.
alot of pople said its a head cold but that doesnt make sense to me because theres no sinus cavities in the back of my neck/head ( right? )
the severity of the dizzyness/nausea varies throughout the day randomly
i also have pretty much no appetite so this also worries me
also i have an area of dry tough skin at the base of my skull on the back of my head im guessing and hoping it is eczema like i have on my elbows and eyelids
thanks
i was hanging out out at a friends one night
we were smoking pot, something i had been doing for some years now
all of a sudden i was stricken with a dizzy nauseating feeling
as i left his 11th floor appt i was in the elevator and i looked in the mirror
and my eyes were super dialated.
my eyes returned to normal
this feeling has remained for about 5 days now.
i went to the doctor on day 2 and was prescribed antivert and antibiotics
one thing i noticed was the feeling, it was familiar to be because i got it a few times prior after smoking pot out of aluminum/tin foil
while at my friends we were just smoking out of glass. but this is when i had the feeling begin.
needeless to say since then i have given up smoking pot (and cigarettes) cold turkey cause i was quite worried
over the past 5 days i havnt done much and i have fallen asleep a few times throughout the day and woken up an hour or 2 later sweating profusely.
most of the time when i wake up i feel normal , but when i get up and start moviing around the feeling creeps back into my head.
my head feels like its full of air and sometimes the back of my neck and head aches ( minor - to more severe when trying to go to sleep at night )
its day 5 and my right eye seems to be watery and earlier while on the phone with my mother ( phone on left ear ) my right ear began to gurgle.
alot of pople said its a head cold but that doesnt make sense to me because theres no sinus cavities in the back of my neck/head ( right? )
the severity of the dizzyness/nausea varies throughout the day randomly
i also have pretty much no appetite so this also worries me
also i have an area of dry tough skin at the base of my skull on the back of my head im guessing and hoping it is eczema like i have on my elbows and eyelids
thanks
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