I hope you do feel better soon. One thing I did find that made the tingling worse was getting dehydrated. I exercise a lot and when I get very thirsty, the tingling gets worse. Ditto after drinking wine, which of course, also dehydrates you. You might try drinking more water & see if it helps. Have no idea why the connection, but just an observation. It's not a dramatic difference, but enough to feel a bit better. I also notice it is worse when I walk or hike a long distance as the feet "pound" on the ground, but I just live with that because that is my lifestyle.
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Hi oldgal...how are you feeling now? I had surgery three weeks ago and ended up in emergency with a calcium crash...horrific experience. No one mentioned the panic symptoms I now have and no one can explain the numbness and tingling even though I am taking a lot of calcium.. Is there hope? I wish I never went for surgery.
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The same thing happened to me exactly! How are you now. I am struggling with everything. I found out most doctors know very little about hypoparathyroid and I have had to figure almost everything out myself.
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I am 3 weeks post op-- I get around pretty good but still have to rest. My husband thinks my recovery is too long also. I had really expected to be ok within a week-- but I'm not going to push it! 63 years old.
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Hi everyone-this is oldgal from several years ago. I just got a notice that something was posted on this thread, so I came to read. I am now 4 years post surgery. For those who had recent surgery, please be patient with your time of recovery. It took me at least a couple months (maybe more, don't remember exactly when) to feel a normal level of energy. I think the Tampa people are talking through their hats saying you'll be whizzing around in no time. I have not met anyone for whom that is the case (4 others) I went through many, many months of neuropathic symptoms. At first, it was horrible, feeling like I was being shocked. It gradually subsided to the point that it is still there in my feet, but 1-2 on a 10 scale. I just live with it and rarely think about it anymore. It makes hiking a bit more difficult because my feet really hurt with long distances, but I am just grateful I can still be active. It does get better! So hang in there!
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One week post op on parathyroid surgery, One adenoma. Still feeling terrible. Doctor has me on more than 4500 mgs of calcium a day which means I have stomach pain from that. A little less bone pain, but otherwise no improvement. Surgeon and staff said I would feel wonderful only a couple of days after surgery. What a joke. And they are making me feel like a failure that I am not out running a marathon by now. After reading from real people who have had this surgery, I am realizing that we have all been lied to and that feeling better is months away, if it ever comes. Doctor wants me to be happy that my kidneys are no longer at risk and I have lowered my chances of more bone loss. Pretty hard to be happy about that when I feel like throwing up all the time and cry my eyes out 2-3 times per day. Right now, having this surgery was one of the biggest mistakes of my life. Plus the fact that I have an ugly purple scar across my throat; I didn't have any neck wrinkles so the surgeon "made" one for me.
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I am also one of these patients! It has been 3 years and I still have not completely recovered. I agree that we were all lied to.
My question is,if there are so many unsatisfied patients why has there not been a Class Action Suit brought against these doctors. It's a shame that people will continue to be deceived and will have to suffer the side effects of this surgery.
My question is,if there are so many unsatisfied patients why has there not been a Class Action Suit brought against these doctors. It's a shame that people will continue to be deceived and will have to suffer the side effects of this surgery.
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It's getting annoying- 100+ days since 1 parathyroid removed... still have chronic pains: right sided headache, paresthesia, leg cramps, horrible feet pain, occasional dizzy spells, shaky, fatigue, hands and feet fall asleep easily.
Dr says "blood tests look great, see me for a 6 month checkup!"
Dr says "blood tests look great, see me for a 6 month checkup!"
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This is oldgirl again. I am so sorry your problems have lasted this long. I just hope they subside as mine did. I looked at my last post 6 mo. ago and at the time I still had some occasional neuropathy. It is zero now. It has been 5 years. I agree with another poster. People in the medical community do not tell you about the potential side-effects. I don't know what the actual percentage of people this happens to, but obviously quite a few. I think the surgery is done on a lot more people than the statistic I saw of 1/100,000. I live in an area of 500K and I personally know 3 others (a 4th I met through one of my docs), so I think it is a LOT more.
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My neuropathy is much less now, four years out, but I still get occasional tingles. Glad to hear they have subsided.
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Oldgirl, am post Parathyroidectomy 6 days. Thought I was losing it til I found this site and read some of your posts. I am 69. Waiting on first follow up with surgeon who performs 1 or two a month. I have had symptoms for several years and finally my md figured it out. Surgery was 4 hours, could not find one of the glands. Removed 2 and left under developed one. Had a lot of fatty tissue in area and had to remove all. That he could. I have been thrown for a loop. After reading several posts I see I am not alone. Will try to be patient and hope for a positive outcome. Glad to still be breathing, hard as that is. My surgeon explained very little of what might happen. Now I am expecting anything. Glad you made it thru, gives me hope!
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I am really sorry to hear about your problems. It took me years to get the correct diagnosis as well-I had extreme calcium levels for at least 7 years before I ended up in the ER almost passing out which led to my parathyroid level being tested. No Dr. ever even mentioned the high calcium levels as being a problem even though it was in my chart! I also had two glands removed in a long surgery. I have never heard of a Dr. mentioning all of the possible side effects. For me, my whole body went into a tailspin 2 days after surgery. I had no idea what was going on (Neither did M.D.). It took months to feel decent and years to feel good, but symptoms are gone now. Hopefully, you will have a full recovery as well.
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I just had this surgery in July 2016 I went back to work in a week. Now I'm having dizzy spells so bad and I'm having trouble taking calcium supplements. Don't see my doc until January.i feel lost on this
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I like your optimistic post and hope all of us recover. Give it time. This is my story: I am experiencing something similar 10 days after the surgery: dizzy, nauseous, feel like crying (depressions?). I felt much better right after the surgery (maybe being cut and in a different type of pain distracted me for awhile) but yesterday got dizzy and felt nauseous just like for the last few years before I diagnosed myself and demanded my doctor did the calcium and PTH tests. Anyway, I read the operative report and it looks like the surgeon did not check all 4 glands. Yes, he removed one that was enlarged, but ... Why would not he check all 4? Very upset about that too. I have not been back to see him yet (in a couple of days). I guess, it is a question for him. He is a controlling type, I was "scared" to ask many questions. What the heck? I should have insisted on him checking all 4 glands then! I hate myself for not "fighting" for my health. I am very anxious to see my first blood work results. I will update you if interested. For now, let's have faith we are on the road to recovery.
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