Frustrated because no one has answers.
Often, I have swelling at the base of my skull, primarily on the right side. This past year, the left side flares up at times. Rarely does both sides flare at the same time. I've been told it was a lymph node. Its right where it feels as if there are nodules on the base of the skull in the back. So here's my problem: if you tilt your head back, there's always a swollen place right at the top of my neck right side and base of my skull right side. I can't sleep with that side touch anything, it's extremely tender, and the largest it swells to is about the size of half a golf ball outward. Other symptoms when these areas are or about to flare up are: exhaustion, dizziness, shooting pains that reverberate, other lymph nodes swelling, nosebleeds headaches, light doesn't bother me nor sound, . I understand lymph nodes swell when sick, but I am NEVER sick. No cough, no fever no slight indicator of anything, it's totally random, I can't pattern it. It has come and gone now for a few years. Lasts for a day or so and goes away but I just want an answer. I have been to doctors who have stated
1. Drug seeker 2. Cat scratch fever 3. Muscle spasm 4. Possible cancer (not kidding) 5. Occipital neuralgia 6. You just want something to be wrong with you 6. Migraines 7. Secondary lime disease 8. Closed gead trauma 9-11. I have no idea.
I'm 30, not on any medications and the only thing I take for pain is ibuprofen. I have minor allergies to normal things (dust, ants, etc.). I have asthma and that's all. Overall a healthy person. A healthy person with a few diagnoses that only bits and pieces match up with, nothing that pulls it all together.
Anyone else have any ideas????
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Have you have an ultrasound of the tissues at the base of your skull? I just had to shave the bottom part of the back of my head for an ultrasound which showed odd shaped balding patterns! And the ultrasound showed that both sides I have swollen occipital gland/lymph node 2x1cm. When this area is touched, I get immediate head pain that has lasted up to 7 days before. They thought my head pains were stress, muscle tension, trigeminal neuralgia, and I've tried numerous pain meds and injections (nerve blocks and botox) And the o my relief I get is Percocet. Which obviously is NOT a long term solution. I have been in and out of work the last 7 months, have seen ENT, eye doc, 4 neurologists, neurosurgeon, rheumarologist, physical therapy, massage therapy, and DO. I'e had MRIs MRA and xrays of head and neck. Everuthing looks "normal". It wasnt intil PT put me in traction on my neck that the pads pushed at the base of my skull and boom, instant head pain, primarily in the orbits (forehead area) but sometimes feels like a headband squeezing around my head down the the base of my skull. My erythrocyte sedatary rate was tested 7 months ago which showed higher levels, yet I am not sick. No colds, fevers, no other swollen lymph nodes. Very strange. Hoping for biopsy or gland removal/drain. This is miserable and frustrating!!!!
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Hi, guys.
The member of our staff gave a short answer to your issue, with several possibilities for your condition.
"Given the persistent swelling at the base of your skull and the other symptoms you've described, it's essential to continue seeking medical attention until you find a satisfactory answer. Here are some potential considerations based on your symptoms:
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Occipital Neuralgia: Occipital neuralgia is a condition characterized by irritation or inflammation of the occipital nerves that run from the top of the spinal cord up through the scalp. This can lead to pain and tenderness at the base of the skull.
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Cervical Lymphadenopathy: Swollen lymph nodes in the neck can sometimes cause tenderness and discomfort, but it's essential to investigate why the lymph nodes are swelling.
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Chronic Inflammation or Infection: Chronic inflammation or infections, even if not presenting with typical cold or flu symptoms, could lead to recurrent swelling and other symptoms.
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Migraines: Some types of migraines can cause neck pain and sensitivity, though the persistent swelling may not be a typical migraine symptom.
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Autoimmune Disorders: Certain autoimmune conditions can cause swelling and pain in various parts of the body.
Given the variety of symptoms you've experienced, it might be worth considering seeking a second opinion from a different healthcare provider or consulting with specialists such as a neurologist, rheumatologist, or an ear, nose, and throat (ENT) specialist. They may conduct further tests and investigations, such as imaging scans or blood tests, to help identify the underlying cause.
It's essential to communicate your symptoms clearly and persistently to your healthcare provider and advocate for a thorough evaluation. Keep a journal documenting your symptoms, their frequency, and any triggers you notice."
Maybe this answer give you some clues about your condition.
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