one day you wake up then you find out that your toes don't work on one foot. I thought it was because I fracture my foot? I wasn't told where the facture was...and it took an MRI to find it. Next I experiencing numbness in my foot? And my foot was turning more towards the other foot then it had before.
Since that day, I found out by just walking into a room where I met a Neuro doctor that he said to me, "you have drop foot"! Great what is it? I was never told why, what cause it, or anything. I was told to see an Ortho doctor. Which I was sent to this Neuro doctor from one of those Ortho type doctors tellnig me that he can't help me...after many regular type x-rays.
So I did go to an Ortho doctor and he said almost the same thing when he walk into the room...drop foot....and he also said he couldn't help me as well. etc. But he did write me a scrip for a FOB and I am still wearing it since this pass Dec. when I purchase one, and it hasn't been a year yet.
Has it help I don't know? I don't know what I am suppose to know?
As for the other promblems I was sent to see this Neuro doctor he order several tests...one being a EMG. I never heard of that either why would I, right?
Well he told me and my husband after he got the results done...I had serve sensory Polyneuropathy? What is that? He told me to go back to my PCP...which I did, who told us he hadn't received any report yet. I had this other apt with my Neuro doctor so I told him out flat....please give me a copy of the report please. He didn't like doing it that way, I explain my doctor hasn't received it and no one is telling me nothing. I know nothing.
You see you go thru life and you may never heard these terms that are being thrown at you like drop foot, emg's, and other nerve damage....so it is not fermular to us at all. SO yes we want to know what, why, where, etc. only fair I see.
The Neuro doctor wants to try med's on me and the first one is Gabapantan (mis spell) 300mg 3x's a day...well I almost go blind...really....I got off it asap...Pharmpist said it was too strong to start me at.
So did my PCP. Then he gave me 100mg 3x's a day I almost had simular thing go on with that med also. I began to be afaird if there was anything now? I think the Neuro thought so too without saying anything...He did all types of MRI's from my neck at first then my back areas, and last was my brain...maybe several of those as well.
He told us I had Serve Sensory Polyneuropathy with some sort of plastic???? we, husband and me ask him did you say, "plastic" yes he said it again...not sure what or how that came or effected me.
I had to take this report without any of the doctors I saw helping me explain what it was...no help!!!!!!
and try to fig it all out on my own. I would of rather had someone helping me.
The Neuro doctor did say something about the EMG he did....he was puzzle by the right side being worse then the left side leg and didn't know why? Today if a doctor looks at my legs they will only look at my left side....they won't look at the right? weird.
I decided I needed another opion....I had to go to my Nuro doctor to get the reports because I had to sign their agreement to do this. The Neuro who said I had this polyneuropathy was upset at me for going to another neuro....my husband was withness to his disagreeable look and story he told us.
But I knew I had to get a second opion....wouldn't you? Since my PCP was in the dark, and him thinking badly about this Neuro doctor....I had too look for another neuro type doctor.
My Plumb doctor ( I have copd) said to both me and my husband I have too as well...he was worried that I wasn't being look after welll. He fear that I would get worse by all his doctor knowledge without saying to much but needed help when I would get worse by his words asap. I needed some pain management or pills whatever...he wasn't too forth coming. But warn us I needed to go to a well known hospital in our area.
So since I've been going to this doctor for a while I trusted him...I listen to him....so I did whatever I could to go to this hospital clinic for help....it took several months but I got in.....I found it to be disapointing....it wasn't about finding out what was wrong with me...it was about how to put me down...how to discredit me....or find away to say I didn't have anything wrong.
Yet they treated me well....their actions after and druing the test they insisted I have again EMG said miles of stories on how they thought espiecally in their so call report I got a copy of.
They wanted to know who came up with CMT? I said I did that...why because no one was talking to me explaining nothing to me...so I had to do my own rearches.....They never ask me that question.
Anyone would want to know how where why etc. wouldn't they?
Well they limitnated my idea or question only put to my first Neuro doctor by the way....I feel the first Neuro doctor did me in....sabatoge (mis spell) me.
(I have a learning disability all my life so spelling and writing is hard for me fyi)
I couldn't beleive they didn't want to look at my right leg....that was weird...they only wanted to look at my left leg and below the knee. I was letting them do what they wanted....
And the report only dealt with what they found on the left side....so i think their report isn't fully none complete to me. OK they said I didn't have CMT....that was ok...good....they couldn't understand or did they explain to me why the drop foot...they even said they didn't understand why I have drop foot.
These are Neuro doctor saying this???????wow....I was shock by that statement.
So how can I trust their report? I can't! not compairing both legs, not explaining the drop foot and making a statement they don't understand how I have drop foot? weird they suppose to know how this happens don't they?
WELL only thing I have left is to try to find better doctors.....and I try too do this still today....I have no Neuro...oh my first Neuro doctor on my last visit with him told me that he couldn't help me any more...I was too hard and I need to find another doctor....yeah ok.
So here I am getting worse every month....something new is happening....I have no answers and I thought I had good insurance United Health Care Advanage.....but it seems so many doors have close to me....I was as nice as I can be....but I have no answers.....
I have numbness on both sides left and right...my toes are going like my left foot on my right now...and it has travel further up my leg.....they can both do the same thing at the same time now....
I might be having another drop foot on the right side....I take nothing excpet some pain pills I get from my PCP....but it only works most of the time...thank heaven I have them.
I don't know what is going on....I do have another problem...my fingers espiecally the little fingers are going weird as my feet....they tend to get so hurtful that they feel broken and to just move them a tiny bit they feel so much pain...my thrumbs espeically the left one does simular if I move it wrong...the pain is so bad. I drop things too.
I have headaches to bad everyday....I take several pain med's to stop the pain. I had blurry vision time to time I rub my eyes and think it was my glasses....bought new glasses thinking it was time for new ones.
I fall down without too much warning....I do get a sharp pain in ankles and this weakness asap and I know i am going down....I can't stop it....or I just walk and without any of that going on I just claps to the floor.
I never know when. I do it just with a few steps or with several steps....I have a cane, useless, walker I take it when i am going down with me.....but at least I have something to hang on too...or a now used scooter we got which has since stop running. I have no way to put it into my car my husband does it all for me.....He has serve knee pain in both legs...and had surgery for his knees it's as if he never had this surgery ....now his lower back is so much pain...he is in more pain then I am...I feel for him having to help me....we just don't have enough money to buy one of those lifts right now...
But since the scooter broke I have to rely on stores I go to....for their scooters.
At home I use my walkers and rely on them....I have both bad and good days...today I have numbness in both legs from my toes up to my knees and they are all around the entire leg...they raise and lower and squees...they feel like they are shortening my legs...weird feelings...I know.
They do both legs at the same time together....I usually get serve swelling...on the legs when this goes on...but not always not today so far.
I have pain in my back and I use hot towel or shower to help with it, besides pain pills, sometimes nothing works towards the back pain....I cry...
I get cramping or whatever you want to call it so bad in my feet and legs and now my arms it makes me cry out loud....it is so unbareable....can't tell you how bad it can get...it is more then 10....
I take whatever we have my hydroconde 7.5 and something we purchase off the shelf from the drug store. anything to help stop the pain....
I just want to get help....if my body as the last neuro doctor said doesn't kick in my muscles and work correctly please why couldn't he help me?? instead he is puzzle by all that he found.
I only want help please help me.
thank you
Loading...