I have had it from 55 1/2 years ( type 1) and for most of that time it has been out-of-control.
I'd like to kow what reduction in life-expectancy has occured?
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If you read the latest research you will find that there is only about 3 years difference in life span between Type 1 diabetic and non diabetic. This info was published last year. Check it out on the internet. Having a little type 1 daughter I was delighted to read this. You can't compare someone who took Type 1 50 years ago with someone who gets it now because the traetment is so much better. I try to stay positive rather than negative :-)
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Hi,
I just wanted to join this talk because like so many of you I to am a type one diabetic. I recently attended a funeral. One of my friends a type one diabetic also passed away in her home from diabetic keto. She was only 22 years old. I have had diabetes for 25 years. I wish I could say like so many of you that my life has been rosey but that would be a lie. I have been fighting with diabetes my whole life. Teenage years where brutal. Nothing short of brutal, hormones, life, partying, fitting in, relationships, are all things that effect our diabetes. Anyone who says any different is painting a picture of diabetes that isn't true. Wither ay of us want to admitt it or not, diabetes is a hard life, it is with you 24/7, 365 days a years, we go to bed with it and we wake up with it. It never gives you a break. It can be hard to balance your life around diabetes, and most people in their teens rebel. I'd lie to you and say everything will be okay but the cost of rebelling is steep with diabetes. You will face complications. I was very pleased to see that some of you were able to say you had gastroparesis, odd statement I know. It's just I fought to have gastroparesis reconqized as a illness. I was the fourth person in Canada to be diagonsed with gastroparesis and I was the fourth person to get a gastric electrical stimulator put in! Which I am pleased to say was successful in treating gastroparesis. I do have a feeding tube in from the gastro but it is only in so I can get my transplant. They wouldn't put me on the transplant list unless I could say I could always take my antiregection medications for the transplant. Once I am done those meds I will be able to pull out the feeding tube. I also was the first person to insist that there has to be a better option for feeding tubes, they only wanted to put in a line that was this big tube that hung down? It sucked, so I got them to put in a peg type and I connect a tube to the peg, it's called a MICKEY tube. If you are faced with a feeding tube, insist on getting a mickey put in. They will be relucant but trust me it's so worth it.
The best advice I can give any diabetic is of course test your bloods, it's the number one way to tell how you are really doing. The next thing I tell anyone I've just met with diabetes is, you have to fight. You have to fight for yourself and don't blindly follow the doctors. Do your own research become informed and know diabetes inside out. Know what happens in your body with your blood sugars high and low. And don't give up when you think your sick, your probably are. If I didn't go to my doctors and hospitals and insist I wasn't throwing up from the flu or my blood sugars I wouldn't be here today and no one would be able to say they have gastroparesis. I even went as far as finding a doctor in the States that was exploring the idea of gastro to come up to Canada. You can do amazing things as long as you fight for yourself. I am more than sure there are many diabetic's that have had rosey lives but I am equally as sure there are diabetic's out there that haven't. If you have had a rosey life that's great but please remember that there is people out there that haven't. As someone who has been fighting to raise awareness diabetes being a serious illness I want diabetes to start being honest with themselves and others. You may feel your life has been wonderful with diabetes and you've had no problems but I guarantee if someone offered you a cure, you'd take it. So, diabetes can't be that wonderful can it?
It's time we were all honest. I'm not saying that painting a wonderful carefree life with diabetes isn't something you should do. Nor do I care if you have had a wonderful carefree long life with diabetes. I just want diabetes to say, that diabetes is a serious illnesss, that needs serious awareness. If people think that diabetes isn't really that bad they will stop searching for a cure. I mean why would you cure something that really hasn't affected the person who has it. We as diabetic's need to stop saying we are okay, everything is fine, diabetes isn't that bad, things could be worse. Trust me I've said it all. I never say, I'm tired of diabetes, it beats me down and i'd like to eat that peice of cake without worrying or I'd love to say my teenage years were rough but I'm not worried about the complications I will face from those years. I'd love to say any of that but I can't. NO other illness is like diabetes out there. NO other illness puts so much fault on the patient, NO other illness has the shame we carry, I mean really, we actually feel bad because we were careless teenagers? That's nuts. Who hasn't been a carefree teenager? Diabetes is a progressive illness, complications and damage will come no matter who you are. That's the black and white of it. So, it really comes down to fighting for awareness and a cure. And all of us need to stand together and say, we want a cure. We don't want to live with diabetes. If people think it's not that bad, they will lose the drive to find better choices for us.
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Congratulations ! On a job well done.............Not many people around with ALL your EXPERIENCE ......
I was the age of 14 about 1965, I have had "juvenile type I DIABETES for 47 plus years now.
A friend of mine has also had it for 52 yrs. & "lives a lone". (SCARY) Her mother happen to be the RN who helped teach & run a few DIABETIC CLINICS in our days....
I won't bore you with all my details but give me an email.........
***Post is edited by moderator *** Private e-mails not allowed***Please read our Terms of Use
if it's allowed from this website.
Best Wishes to everyone.........
SUSAN
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Hi,
i just wanted to say my last post was posted right after passing away from diabetic keto. it was honestly, shocking. I'm encouraged to see and read so many posts about how long others have lived with diabetes. My message still remains the same, keep fighting. I feel like the poor fish that swims up stream! I'm sure most of you out there feel the same! I lam in kidney failure and as of yesterday my function was down to 10%? Everything I've read says I should've been on dialysis long before I reached this level but I'm not! My creatin is in the high 400s so everything indicates I should be on dialysis. In Canada in order to be on the transplant list you must be on dialysis. Yet, my doctor won't start dialysis? So, I'm frustrated to say the least! the last time I was at the renal clinic I over heard my kidney doctor tell the nurses, I wasn't a priority? That since I was the reason for my kidneys failing I can wait? I just want diabetic's to know that there is a huge misunderstanding out there. I guess the best way to explain it is, a doctor would never say to a cancer patient, " your here because you smoked, so your treatment can wait" that would never happen? So, why is that except able for diabetics? Again, I'm swimming up stream. Yes, I'm well aware diabetic control influences complications but regardless of how I got to this point, I still got to this point. The reasons why are no longer important. But, with so much focus on diabetic's being in control of their lives it seems that diabetes as a serious illness gets over looked? Diabetes is very hard on your body and even those who have been "perfect" diabetic's will still face complications. Of course, I'm not supporting the "oh, we'll" I'm going to do whatever I want because I'm going to get complications anyway additive? I'm just saying, don't beat yourself up if you face a complication. I'm glad to see so many others out there that have so long with diabetes and have kept up fighting. It gives me hope that my fight will be worth it, if I can make living with diabetes as long as so many of you have!!!
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Good man Jack, just what I wanted to hear! I too have a little girl with type 1 & was getting depressed reading about life expectancy & complications. Hopefully by the time our girls grow up there will be a cure, & if not treatment is improving all the time & with it the chances of leading a perfectly normal & long life. My daughter never lets diabetes slow her down & I take my inspiration from her. To her its a nusiance but one that she can over come.
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My son was diagnosed with type 1 diabetes three weeks after having the MMR - no family history - we all had a bug that lasted 2 days, he was ill for 2 weeks with same bug and was never right after - I believe the MMR along with the bug overwhelmed my sons immune system and caused the type 1 diabetes.
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My son was diagnosed with type 1 diabetes three weeks after having the MMR - no family history - we all had a bug that lasted 2 days, he was ill for 2 weeks with same bug and was never right after - I believe the MMR along with the bug overwhelmed my sons immune system and caused the type 1 diabetes.
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