pineal cyst

Hi I am a 27 years old girl from Norway.

In the annual shift 2015/2016 I started to notice a lot of pain in the head, nausea, dizziness, problem with balance, vision trouble, trouble sleeping, pressure headache (feels like my head is going to explode) exhausted, poor appetite and mood swings.

I have never been bothered by headaches from before of so I figured that something was wrong, I got an MRI of the head February 2016 and they found a Corpus Pineale cyst that measured 1.7 x 1.1 Cm 1.6 x 1, 6 x 1.4 cm it is shaped like an arrow, according to the documents, so it is not perfectly round.

Doctors who checked the images and my symptoms and checked blood samples etc. thought that this had no cysten with cysten and doing so they dismissed this with even.

They sent me back and forth from 4 different hospitals, and with many different samples and surveys they tried a ICP measurement. Where checked the pressure in the brain, this pressure turned out and be elevated but the samples could not say how high it was since the doctors had made some errors, etc. so there stopped everything up. So now I just sit and wait with even more pain and frustration.

I got lots of tablets mixed other:

Ketorax: Pain Killers

Nobligan: Pain Killers

Paraginforte: Pain Killers

Topimax: press medesin

Diamox: press medesin

Furix:

Sleep I do not remember the name tablets.

Tried more morphine tablets for the pain but is no one thing that works out for the pain, the doctors believe that they are not as bad as I'm going to have to. And believes that there are mental and not physical so they think I need a psychologist and not a medical doctor.

I understand the frustration of everyone with this diagnosis.

I was diagnosed with Pseudotumor Cerebri in addition to Corpus Pineale cyst

Where in Colorado? I am in the Springs and seeking a Dr who will take me seriously. I am a 35yo female with a 10mm cyst. I have all of the symptoms and am beginning to have issues with bradycardia and the doctors have said that my symptoms can't be the cyst. I need a good doc to take me seriously.

Hello fellow sufferers. I was originally diagnosed with anxiety 16 years ago after a car accident. I have been on medication for anxiety for 15 years. 2 years ago I also started having issues with medication after neck issues from accident which completely made me incapable of any functions so a MRI was done to see why I was vomiting so much every day and the accidentally found an 14mm cyst on my pineal gland stating that it has been there for over 10 years. (Hmmm..... about the same time I started having anxiety). The neosurgeon said that all my vomiting, dizziness and blurred vision has nothing to do with the cyst. Anytime I change or add medication to deal with my back issues, I get the symptoms of serotonin syndrome. It is my thought with everything that I have researched that all these extra symptoms is due to throwing my chemicals out of balance, especially the serotonin. I am just waiting for another MRI to see if it has grown, but believe that if the pineal gland does produce serotonin, and is blocked by a cyst, we aren't getting enough of this "happy" chemical in our system, hence we end up with anxiety and/or depression. Seems pretty logical to me but the specialists can seem to listen to a patient and the fact we all have the same symptoms with a pineal cyst. I would love to hear what everyone else thinks? Cheers and keep pushing and fighting for your body to function normally :-)

Hi! My daughter is 21 and was diagnosed in April of 2016 with a 13mm pineal cyst and we just learned it has grown to 15mm. We are extremely concerned with her vision issues, severe anxiety, migraines and depression. She is a single stay at home mom (with us) and has a wonderful Neurosurgeon that we found. He has ordered an MRA and MRV so we are just waiting for this to happen. Does anyone have any thoughts or suggestions on this? Will she need to have surgery to have it removed and most importantly will it continue to grow? I know these are questions to ask the Physician, but we are still learning about this and would love to have some feedback.

Hello Vicki. I'm just wondering if you got this fixed? Your symptoms are exactly like my wife who was diagnosed with a 7mm one 11 years ago. Just wondering what you found out if anything?If you didn't get help yet maybe talking to me will give you more insight and viceversa. Thanks much..

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Michelle my wife has exactly your story. Hers was 7mm 11 years ago now she has all of your symptoms. Maybe we can help each other.

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Just diagnosed with a .9 penial gland cyst. I am worried. I have all the same symptoms mentioned by everyone else, yet no one listens. Headaches, insomnia, ataxia, scleritis, etc.... Don't really know what to do.......waiting.

I'm 13 and mine is 9.45mm, and mine is located on my vision nerves. I'm wondering, how big does it have to be before I could possibly lose my sight?

Unreal... I feel I've found my group here... Glad to hear it's not just me having all these issues, feeling lost & crazy... All your stories posted are extremely similar

Hi I live in the Midlands also and have been diagnosed with a 13x7mm pineal cyst
My symptoms are blurry vision headaches dizziness brain fog my memory is some thing awful muscle twitches all over my body.. anxiety.. and developed tinnitus as well.. all this since February this year yet they tell me i have anxiety and it is nothing to do with this cyst I haven't worked for 5 months how can this be none related and how is anyone meant to live like this!!! I feel suicidal no one listens

I am a hardcore gamer and after having a pineal cyst i could not look at monitors anymore...it was a nightmare...my eyes would strain after just 10 min of looking at any screen.i did not want surgery or any medicatios that doctors could gvie me to make themselves and the pharmaceutical companies richer and have a life long customer on medications. I took the all natural approach and went on an anti inflammatory diet and it was a miracle i rarely feel any symptoms of my pineal cysst anymore and only have eye strain when i overdo it and play games all day.i take turmeric,apple cider vinegar,cut out high fructose corn syrup unless i am at a party etc(i am only human haha) and i work out.i promise that your cysts will shrink narutally if you look into anti inflam diet and you will be healthier too.good luck everyobe and god bless you all during this pineal struggle.

I started having headaches three weeks ago. My anxiety is in overload, I'm tired but don't sleep too much. Sometimes my hand tingles and my left foot gets numb. I'm forgetting words and feel confused. They did an MRI and said everything looked good except my pineal gland is enlarged. Going for a contrast MRI tomorrow I hope. Hoping and praying it's something that. Can BE treated. This forum made me feel better. Thank you.

Yes, I am...Told it was a growth but didn't think it was cancer...Could b cyst but seeing me to ANOTHER oral surgeon, SIX DOCTPRS N STILL NOT SURE:(.

OMG please please please email or call me...I have every single one of the symptoms and had heart failure for no apparent reason a year ago and I'm only 32 and I lost my hearing in one ear which they said is menieres disease I also have Ra and lupus my email is ***this post is edited by moderator *** *** posting of private information such as name, phone number or email address is not allowed in order to protect your privacy*** Please read our Terms of Use​ I don't even care that I'm posting my email name and phone number publicly lol

I am 19 years old and have a 18mmx14mmx18mm pineal cyst. I have seen three neurologists in the past year who have all told me my symptoms have nothing to do with the cyst, that the pineal gland doesn’t do anything in the brain, and that I shouldn’t compare myself to other people. My symptoms are like everyone else’s. Severe depression and anxiety, daily migraines, eye pain, and trouble with sleep patterns. I also have PCOS, chronic fatigue, inter-cranial pressure, and memory loss. I discovered this almost a year ago and thought I had found an answer to all my problems upon researching the hell out of the cyst and it’s symptoms, but in reality no neurologist will even listen. They have their minds made up when they walk into the room. I just want this out of my brain. I want the pain to stop. I used to be so strong and active, now I feel like I’ve succumbed to these things and I can’t even function.