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Regarding driving, in California if you have a seizure DMV can take your license for 3 or 6 months. If you have another seizure, clock goes back to zero!

I had no post-operation seizures; my license was gone for 4 months. I'm a single dad of 3 kids, ages 8, 11 and 13. We used public buses (a royal pain, but at least there was a bus 4 blocks away every 45 minutes!), and I purchased an electric adult tricycle, which goes 20 mph and isn't DMV-regulated!!! (no license, no insurance, no registration required). I liked my electric bike so much I actually have 5 of them now! (one is a small folding bike I built that I can take on public transportation -- it still goes 20 mph!!).

Regarding earlier posts, I would ENCOURAGE ANYONE who has a meningioma to have removal, if possible! (I'm a 58 year old guy who had a 3.5 cm to 4 cm meningioma). The only residual problem is numbness on one arm (I can still feel things, it is just slightly numb all the time). Other problems cleared up after surgery!
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bazilia wrote:

Guest wrote:

I found one also 2 yrs ago and wasn't going to do anything until it just started to grow. Mine is very small about 1.5 cm but it is very close to my sagital sinus and I'm now experiencing loss of memory, misspoken words, headaches all the time, dissiness. I was curious to know how big yours is. I have a friend who had a menengioma removed which was the size of a grapefruit (yes a grapefuit). I believe it took her about 7 months before she was cleared to drive because she had seizures. Even though mine is very small I am very scared. My husband and I have 4 children to take care of, I have to get back to work and drive!

mungo wrote:


Hello! I am about to have a Craniotomy performed and am quite scared, I must admit. I was found a brain tumor and am hoping to get rid of it with this surgery. I am interested in how long it takes to recover from a surgery like this? Thx!


ima 36 year old female and just had mine removed 5 days ago. Mine was 2+cm and within 3mm of my sagital sinus. right frontal lobe. loss of memory, stuttering, head pressure. I took myself to Johns Hopkins ER, they admitted me and same day performed my surgery~. i am so thankful and so grateful the outcome would have been different if i waited and if it were ON my sagittal sinus. REMOVE asap is my opinion. as soon as i got out of surgery, i was walking normal again, no more stuttering (my language is wired backwards) i was so happy to be admitted to the #1 hospital for brain surgeries and left the ICU 24 hours later. I am taking swelling meds and seizure meds etc but will be off of them later this week. feel great and back to being a mommy of 3!!!


Hi, I wanted to quickly chime in.. I went through a craniotomy to resect a tumor -size of a baseball- in mid Dec. I was out of the hospital in 3 days and back to work on Jan 3 - I work from home and took naps in the afternoon.

I started to travel for work in February and spoke in front of a large audience at a big trade show..It is less than 4 months now and I am back to running 5 days a week..averaging 35 miles/week.

Be positive and get the tumor removed by a surgeon with a good track record.
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I really appreciate hearing this as my mom is 81 and scheduled to have a tumor removed. My brother and I will definitely help her to take it easy during recovery. I am glad you are doing well.
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I am 7 weeks post-op from a craniotomy for a meningioma of the cerebellum. I still have migraines, and am going through water, physical, and therapies. I can't keep the car between the lines, so I can't5 drive. Vision is horrid, but don't want to get new glasses until all healed. I just didn't realize part 2 was coming. Hang in there, Mungo.
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Tegratol after 8 months was killing me I had my skin falling off it affected my lungs and my immune system went so low that I got a staph infection so bad that my nose and eyes turned black as if beaten.
It was killing me. I sweitched from HeNry Ford Main and switched to U of M HOSPITAL. a HOSPITAL IN LAKE tAHOE ON A VACATION FOR MY NIECES WEDDING SAVED MY LIFE. MONTHS OF bAGS OF VANCOMYACIN BY iv HEALED ME i AM ON KEPPRA 1 YEAR LATER. STILL VERY TIRED .WEAK
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Sharon, I'd like to chime in on anti-seizure medication. If you need it, you absolutely need it. But many times it is prescribed by neurologists and neurosurgeons just as a precautionary measure after surgery. I had a craniotomy for a 3.5 x 4.5cm meningioma in November 2011. I had a horrible reaction to Dilantin -- it seemed as if my mind was very fuzzy, like I wasn't there. I wasn't driving at the time, and I told my neurologist I was going off Dilantin to see if I really needed the stuff. I told him I wasn't risking anyone else's safety because I wasn't driving then. It has been more than six months since my operation -- 5 months since I discontinued use of anti-seizure medication -- and NO POST-SURGERY SEIZURES!!! I am happy as a clam! Again, if you need anti-seizure medication you need it, but if the doctors have just prescribed it to cover themselves you might consider discussing with them if you really need it!! Good luck!!! For the record I'm 58 years old; sometimes age gives people a perspective on things.
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Hi,
My tumor was the size of a big egg. I am jus too tired and having strong headaches.
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where was your tumor?
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My tumor was on the upper left side of my brain (which affected my right side -- my toes wouldn't move, and later might right hand was affected). It was about the size of a golfball (3.5 x 4.5 cm).
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I had 6 brain tumors, my first 2 surgeries is 3 months apart. it took me 6 weeks to recover, the doctor said, it will take 3 months for your body to get adjusted, that is why my second surgery is 3 month later. that was just before I turn 64. But my 3rd. surgery they took fat from my belly to fill in the empty space of the tumors, I ended up in rehab for 2 weeks before I went home, The older you get, the longer it takes to recover. I still have one more tumor, I admit I am guite scared , now that I am 68 to go thought it again. it might take me forever to recover.
So far he did not say anymore, I guest as long as I don't have any new symtom, he is just going to leave it. Good luck on your surgery.
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I have had two tumor surgery's one they opened my head, and removed a huge cancer tumor from the right side of my brain, two years ago. I never had any symptons, but was told after surgery I would have probably only lived a couple of more days. I went thru radiation, and almost one year later it was back, but this thime they did Syber Knife, which is not invasive. I pray it does not come back, like you say over 65 recovery takes longer. Second tumor was real small, and they are watching me real close. Any one else out there have brain cancer. This keeps me scared all the time. Good luck to all.
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I appreciate reading everyone comments and personnel experience. My heart and prayers go out to all of you going through such an ordeal. My mom just had surgery removing a large brain tumor that was pressing on her optical nerve on 6/19/2012. The worse part as a family member for me is that I am 3000 miles away, and I am her only family. I am trying to be as supportive as I can talking with case workers, nurses, and the doctor, and ensuring she has what she needs. I do plan to visit in August. Anywho, reading your experiences has given me a sense as to whet she is going through, as well as what I should expect. She got her breathing tube removed 4 days later, and called me on the 5th. It broke my heart to hear her, and that her speech was slurred and she was very sad. If there is any advise anyone has, I would appreciate it.
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Well, one thing your family can be happy about is that she's a survivor! Your doctors may or may not be concerned about the side effects of the oiperation, many times they subside or are gone completely!

She was probably prescribed some sort of cortisone/sterioid medication to reduce brain swelling, and I know this medication had a GREAT impact n how I left! Likewise if she is or was prescribed antiseizure medication. You can Google her medications if you like to see the side effects.

Again, she made it, and that's a good thing! She may have a complete recovery!!
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I posted this when I was 7 weeks post-op. I'm now 3.5 months post-op. Part 2 is still here. Not being able to see now seems great to me. I can't wear my glasss because I am too tender behind my ear, as that part of the glasses hurts it. I can't hear well, either, due to it being so close to my ear. I was told I need patience. Not going to happen to a Type A. Still have the headaches, and still very tired all the time.It will take time to heal, Mungo. It will heal sometime!
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This guest response is correct. I had a craniotomy for a craniopharyngioma pit tumor 2 years ago. I became panhypopit, with nothing working in the pituitary. No homestasis without meds..I got overheated, dizzy, you name it.. Today, I stopped steroids. I regained ACTH function in the pit. You can continue to heal a year or 2 or 3 or 4 after surgery.
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