Hi,
Bit confused as to what's been going on with my lymph nodes - over a year ago I was pretty poorly with lots of stomach issues and generally being run down and picking up tonsilitis quite frequently. I ended up being diagnosed with endometriosis, and the episodes must have left my immune system in a bad way which is why I was picking up all the infections.
Fast forward a good few months of feeling a little better and I notice a bean sized lump on the left side of my neck. I didn't think much of it until a few months later when I picked up tonsilitis again and it increased to the size of a golf ball. I went to the drs and she immediately sent me for a chest xray and an ultrasound. The xray was clear and by the time I had the ultrasound, it had shrunk a bit after the antibiotics. the ultrasound did notice a few enlarged lymph nodes in the left side of my neck. The biggest one being around 2.5 under my jaw. The radiologist wasn't very nice, and was quite dismissive about it all and just kept telling me it was from the recent infection, even though I had noticed them months before this. He said it looked reasonably a normal shape and to come back in 3 months.
When I went back in 3 months, he went to check if it had grown but realised he hadn't bothered to note down the size of it the last time, so made a "guess" that it hadn't really grown. He asked if I wanted the needle biopsy and when I said yes, he seemed really put out. Nice guy huh? He did the needle biopsy (which was really uncomfortable!) and when I had the results a few weeks later it said they hadn't found cancer cells but they'd refer me to an ENT.
The ENT has suggested I have the biggest node taken out in an excisional biopsy under general anaesthetic as it's the only way to definitively know what's causing it. I don't think they're concerned at all, which reassures me in some ways. But I'm still worried there's something underlying that's to blame for the recurrent tonsil infections and swollen neck glands.
I don't have any cancer symptoms such as weight loss, night sweats etc. I do get a lot of lower back pain and sometimes tingling skin, but never any extreme itching.
I have always had HUGE tonsils, and at the moment I have picked up tonsilitis AGAIN and they are massive with a lot of big crater like holes in them. I'm just a bit worried that I seem to keep getting infections, I feel weak and tired all the time, and the lumps in my neck have been there for a while.
Surely if it was something sinister it would have gotten worse by now? Has anyone had anything similar to this or any explanation for recurrent tonsilitis and neck lumps? Any help would be appreciated.
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