I've been experiencing abdominal numbness and discomfort (dysesthesia) since about the age of 14 I'm now 26 it's hard to say if the condition has gotten progressively worse it's always caused me discomfort and some pain. After returning from traveling i thought i give it another go mentioning it to my GP (doctor). At the time my GP tried to downplay the condition not knowing what it could be. Later that evening after my GP had spoke it over with a colleague i was booked in for an mri scan. After my first scan i was invited for a second scan ,within a week, this time with the addition of a dye. It didn't take long for the radiologist to suggest a syrinx (cyst) was present in my spine. It was then confirmed by my GP in addition it was also suggested i had a chiari malformation. Im currently awaiting an appointment with a neuroligist and neurosurgeon.
I wouldn't suggest to much self diagnosis but to read up on the symptoms of chiari malformation and syringomyelia (syrinx) as its such a rare condition (8.9 in 100,000) your GP may not have come across this before so it might be worth suggesting the above mentioned conditions and asking for an mri which is considered the gold standard in diagnosis. It is not considered a life-threatening condition in most cases but it is believed it will worsen with time as the syrinx spreads.
www.nhs.uk/conditions/chiari-malformation/Pages/Introduction.aspx
Please reply if this has helped you in anyway.
Ill try to update with progress.
Loading...
After getting up and walking for about 5-10 min, numbness goes away. This always helps, but leaves me scared.
Been to doctor but still no idea what's wrong.
Loading...
Loading...
I hope someone could read this as some of us are having the same sign, however we simply neglect it since it just fade after the attack.
Loading...
Loading...
Loading...
Loading...
Loading...