Are there any support groups for people with vasculitis here? I have just had my daignosis, and I was found to have urticarial vasculitis. I think having a skin condition brings its own set of problems with it, especially if you have lesions in visible places. It is horrible to be stared at while you are at the supermarket, or on a bus. Sometimes I feel that people think I am a drug user or something, and I just want to go over to people who are staring and explain to them that I have vasculitis. There is a real stigma attached to skin diseases in a society that doesn't accept differences, and especially for women who are expected to look perfect at all times.
So if you have urticarial vasculitis too, what do you do about these issues? Do you attempt to cover your vasculitis up, or have you learnt to accept the way you look and the way others react to it?
Sorry people, I wasn't intending to write a novel but this has been on my mind a lot lately, and I am finding it really hard to cope.
Hope to hear from some others!
So if you have urticarial vasculitis too, what do you do about these issues? Do you attempt to cover your vasculitis up, or have you learnt to accept the way you look and the way others react to it?
Sorry people, I wasn't intending to write a novel but this has been on my mind a lot lately, and I am finding it really hard to cope.
Hope to hear from some others!
I feel sill writing to a post that is almost three years old. I have it and have been battling it for 10 years or so. I have seen countless doctors. I figured it out when I watched "Fat, Sick and Nearly Dead". I have gone to the doctor's and they are testing me for it now. I would love to talk to others that have this. It is so difficult to explain to others about how one feels.