I could really use some help, or an advice, at least. I have been through a real shock when I have heard that my little daughter is suffering form some sort of mental disorder that will affect her entire life. What is Rett syndrome anyway? How should we deal with it now?
Well, I will not lie to you, it is far from a mild condition and it will need a lot of time, patience, and a bit of luck for your child to be able to take care of herself. I know that it must be hard on you right now, but with a help from the doctors, therapists you will learn all you need to make her independent as much as possible. As for the syndrome itself, it is a development disorder and there is no cure for it at the moment.