Are there any other people in the same boat here? I have congenital nonspherocytic hemolytic anemia and I am looking for other people. I am on medication and things are going pretty well with me now, but I am just looking for some support. This looks like a place where there are a lot of people. Hope to meet some others.
I am sorry to hear about your illness! may I ask how it is treated? What kind of symptoms do you have from such a disease and also, are there any operations involved? I am sorry that I am asking all these questions instead of being supportive. I hope that is OK with you, tell me if it is not.