Does anyone deal with the feeling of dizziness, wooziness, spaced out feeling, in combination with numbness sensation in head and/or limbs? It's not all the time, but it's more often than not for me. I've had 2 MRIs that were normal and bloodwork done and I did test positive for Sjogren's Syndrome. Wondered if anyone has had any luck w/ getting symptoms to decrease and they often take over and seem to be debilitating. If you've had any of the above or success in decreased symptoms, you can contact me as this site is hard to follow for responses. Thanks!
Cara
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Hi Cara i was diagnosed with Sjogren's about 19yrs ago now i have had dizziness wooziness, and spaced feelings for the last year (among other things) also numbness in arms, legs and hands the dizziness can last up to a month then go's as quick as it began,it can be so bad at times it becomes scary i have been to my doctors a few times thinking i have had ear infections all i get from them is if it continues we'll do a scan. it is kind of nice to know i am not imaging things
lyn
lyn
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Hi Lyn! Thanks for the response. It's crazy b/c it seems as though each day is different and a new symptom occurs. Are you on any medication? My rheumatologist really wanted me to start plaquinel, but I'm afraid b/c of the side effects. Do you have any other autoimmunes?? Are you able to work full time?? I'm 37 and work full time, but every day is a struggle. Good days are few and far between. I guess it could be worse, but this new normal SUCKS!!!!
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Hi Ladies,
I have similar symptoms. I used to have them occasionally but since my daughter was born a year ago I've experienced the symptoms pretty much daily. I'm on plaquenil and feel no better. I will be moving and scheduling an appointment with a new rheumatologist. Maybe I'll find more answers then. I do not work, but I have a 6 year old and a 1 year old, most days are rough, I try to ignore my symptoms and enjoy my kids.
Heather
I have similar symptoms. I used to have them occasionally but since my daughter was born a year ago I've experienced the symptoms pretty much daily. I'm on plaquenil and feel no better. I will be moving and scheduling an appointment with a new rheumatologist. Maybe I'll find more answers then. I do not work, but I have a 6 year old and a 1 year old, most days are rough, I try to ignore my symptoms and enjoy my kids.
Heather
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Sorry to hear. It is a daily struggle for sure. Where are you located? I'm in Cleveland and have seen 2 rheumys which were pretty good, one with Cleve clinic and the other with univ hospitals.
Cara
Cara
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