My father has been battling mylofibrosis for 4 years now. His spleen is extremely enlarged due to his weekly injections of 45,000 units of "EPO", but this is the only thing that will keep his red cell count up. My question is does anyone know of anything that he can do, or take, to help relieve the terrible itching? He will literally scratch himself until he bleeds and His doctor say that the itch is due to his ill balanced blood chemistry. Any suggestions?
I am 50 years old, same diagnose as his. Now all I am experiencing is the being tired all the time from the lack of red blood cells, the enlarged spleen, and the lack of appetite.
The clinic was very adamant about how dangerous a bone marrow transplant is, but my biggest problems are all the medical bills coming. I live from paycheck to paycheck and barely make it on that. I have a wife and 3 kids to worry about and don't have any idea where to get help. I am desperate. I can help you, I can even help myself.